 |
|
06-02-2007, 06:07 PM
|
#21
|
|
Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
|
Sandy,
You will be so very missed, my heart and sympathy go out to Sandy's family. This so such heart breaking news...
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
|
|
|
|
06-02-2007, 06:09 PM
|
#22
|
|
Senior Member
Join Date: Feb 2006
Location: South Florida
Posts: 131
|
I shall always remember Sweet Sandy.
May God Bless her and her family, May they find peace.
God Bless All
__________________
Lala
DX Fall05 Stage 4 er+ pr+ her2+ liver and bone mets
DX Fall06 Brain mets, Brain mets gone Spring 2007
|
|
|
|
|
06-02-2007, 06:16 PM
|
#23
|
|
Senior Member
Join Date: Mar 2007
Location: Norco, Southern California
Posts: 53
|
I am so sorry for us losing Sandy. I know she is happy and not hurting anymore, but her family (both biological and Her2) will really miss her. I had really come to love her even though I found this site not too long ago. Her logs about her crazy socks, her green shoes, and always signing off with hugs will be missed so very much.
Beckie
__________________
Diagnosed 4/06, age 55
1.1 cm tumor
Pre-op x-ray caught lung nodules
6/06 - Stage 4, Her2+++, er/pr-
Mets to lungs(largest 3 cm), liver (largest 5.5 cm), and bones
Began taxotere, herceptin, & aredia
7/06 - radiation to lower spine & left shoulder for pain
8/06 - everything smaller
12/06 - stopped taxotere (toe infections)
5/07 - bone mets advancing
6/07 - add navelbine to herceptin & aredia
6/07 - discovered brain mets (3 in cerebellum, largest 2 cm.)
7/07 - WBR, change to Tykerb/Xeloda
9/07 - targeted radiation
10/08 - started navelbine/herceptin
2/09 - brain mets - targeted radiation
5/09 - mets in liver progressing, changed to Ixempra
7/09 - mets in liver still going, to the brain again, on gemzar now
9/09 - gemzar failed, started Doxil today
I know Who holds the future, and I know He holds my hand.
|
|
|
|
|
06-02-2007, 06:48 PM
|
#24
|
|
Senior Member
Join Date: Aug 2006
Location: Toronto
Posts: 64
|
I am so sorry, she was one of the kindest of members.
|
|
|
|
|
06-02-2007, 07:16 PM
|
#25
|
|
Senior Member
Join Date: Oct 2005
Posts: 3,519
|
No, no, no. How can this be? My heart is just broken in half. But she is now in the arms of the Lord and that is a beautiful and peaceful place to be.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
|
|
|
|
|
06-02-2007, 07:20 PM
|
#26
|
|
Senior Member
Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
|
Thank you Sandy!!!
I too have been thinking about Sandy so much. She was one of the first people to welcome me to the group. I have been thinking and praying for her so much. I have been checking daily and hoping for the best. I will miss her on this site. She was such a inspirational and positive force for all of us. I will always keep fighting like you and consider you a cyber friend. Heart felt prayers go out to her family, all of us and everyone she has touched. Wow am I going to miss that cheerful smile, positive posts, and pink ribbon sweater in her picture.
__________________
Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009
|
|
|
|
|
06-02-2007, 07:30 PM
|
#27
|
|
Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
|
I am so very sad to read this. Sandy was one of the first ladies to welcome me to the site when I was diagnosed with IBC in 2005. She was a positive and inspirational woman. I will miss her thoughtfullness and sweet personality that shined on this board.
My prayers are with her family.
Love and Prayers,
Lexi
|
|
|
|
|
06-02-2007, 07:42 PM
|
#28
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
I am saddened to hear about Sandy....her loss will be truly missed by all of us....I logged on tonight to see if there was any news and read Steph's post....this disease is beginning to leave me emotionally exhausted...may we all gather strength from each other to continue our fight as a special tribute to Sandy and all the other angels who are no longer with us.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
|
06-02-2007, 07:46 PM
|
#29
|
|
Senior Member
Join Date: Sep 2005
Location: San Francisco Bay Area in California
Posts: 176
|
One of our dearest angels! Oh, and who is 2nd "ghost"??
Awww, shoot! :-(
I have never met Sandy in person, as we lived on the opposite coasts, but we have exchanged such personal emails, and I had always truly enjoyed reading from her.
I shall keep our fun note exchanges in my memory forever...
I do not mean to make any unthoughtful & seemingly abrupt turns, but:
Steph, who is our second "ghost"? (in "Thinker" mode)
__________________
Blessings & Peace,
~jojo~
1st Dx: May '03 at age 35
Stage 3b
6cm IDC tumor
17/18 + nodes
Neoadjuvant: 4x A/C dose dense; 12x weekly Taxol & weekly Herceptin
Left Mastectomy: Nov '03
27x Rads
Stage 4 since June '04
Still on maintenance Herceptin since the very beginning
Currently on Abraxane (3 weeks / 1 week off)
|
|
|
|
|
06-02-2007, 07:59 PM
|
#30
|
|
Senior Member
Join Date: Jun 2006
Location: Grand Terrace, Southern California
Posts: 114
|
I am so sad
Sandy I just met you. You was so concern about me and what type of treatment I was recieving. That was a wonderful feeling. I love looking at your picture because you was full of love. When Christine posted that you went to the hospital I told myself that you will fight this, she will be home soon, and I start praying. I was waiting for your email saying you had on your funny sock and lucky shoe and to thank us for the support. I know right now you are thanking all of us. And I am thanking you for reaching out to me. I will pray for your family. I want to say good bye and now you at home with are Heavenly Father. Love you, Sandy.
Rendi Cotton
__________________
04/97- breast bx. diagnosis breast cancer.
05/97- radical mastectomy; 5cm tumor & 11 lymph nodes.
10/97- City of Hope, high dose chemotherapy.
11/97- 36 radiation therapy.
01/98- NED; tamoxifen.
02/02- breast reconstruction.
08/04- recurrence; mets to rt lung; thoracentesis; femara.
09/04- thoracentesis; ER/PR +, Her2+++.
10/04- total abdominal hysterectomy.
02/06- mets to 9th rib; monthly zometa; arimidex.
06/06- medi port insert; weekly herceptin.
10/06- 3 weeks herceptin treatment.
02/07- mets to liver; arimidex
11/07-liver clear
02/08-chemo taxol/herceptin weekly treatment
12/08-taxol not working
01/09-navelbine/herceptin weelky
03/09-navelbine not working
04/09-xeloda/tykerb
09/09-30 radation to neck; xeloda/tykerb not working
11/09-Gemzar/herceptin weekly
04/10-tykerb/herceptin weekly
06/10-cancer spread to left lung;stop treatment; tap
07/10-right lung collasps; TDM1
|
|
|
|
|
06-02-2007, 08:08 PM
|
#31
|
|
Senior Member
Join Date: Nov 2006
Location: West Virginia
Posts: 105
|
i am stunned! I'd checked the site before I left for vacation but it wasn't working, then I come back to find that the woman with the impish grin and beautiful heart has left us. I have always enjoyed her presence on this site and her way of looking at the light side of life, while still being a spitfire when she had to be. Heaven is a happier place today because she is there. My best to her son and husband-You were truly blessed!
Stephanie
|
|
|
|
|
06-02-2007, 08:24 PM
|
#32
|
|
Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
|
So sad!!!!
My sincere condolences to Sandy's husband and her family. I am still totally shocked by this news, although I knew she wasn't doing well these past few weeks. She was such a fighter, and her posts gave so much hope to everyone on this site. She seemed to care about everyone and was so upbeat. I really expected her to keep going. She seemed to be doing well this past winter which makes it hard for me to believe.
She will be missed by so many in our support group, but she will always be in our thoughts and her memory will still continue to give us support and hope. How can we donate to the HER2 support group in her name?
Thinking of you, Sandy!!!!
Barbara H.
|
|
|
|
|
06-02-2007, 08:46 PM
|
#33
|
|
Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
|
another angel has earned her wings
Steph,
I am absolutely heart sick to hear the news of Sandy's passing. She was an unusual gem with a heart the size of Texas. Her great sense of humor kept us smilin' through the day and now her loss is almost unbelievable! Steph, thank you for staying in touch with Sandy and her family.
Love and Hugs, Kim From CT
|
|
|
|
|
06-02-2007, 09:45 PM
|
#34
|
|
Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
|
How to donate, etc.
Can't seem to reply - I get an error message. I'll try again.
You may make a donation to this site in Sandy's name in the ABOUT US section of this site. Go to the bottom of the right hand column and there is a link. They take a check or Paypal.
JoJo -
The "ghosts" quip was from back when Sandy and I first met in 2004 at the San Antonio symposium. We were both approaching our 5 years since DX and we said we must be ghosts since we had passed our "due dates" according to the stats for our particular situations. That was the theme that year - stage IV can be survived and have a good life quality. Ask Esther - she was also one of us showing the world that it can be done!
It was a difficult day as I knew the post on losing Sandy would shock some and upset everyone at the least. I also notified Joe and Chris at ASCO in Chicago.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|
|
|
|
|
06-02-2007, 09:54 PM
|
#35
|
|
Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
|
I am so very sorry. There are no words for times when our grief is beyond expression. To Sandy's family, our sincere condolances to all of you.
Sandy had a beautiful soul. Her words were always spoken with kindness and compassion. May God's strength be with you during this difficult time. You are in our prayers.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
|
|
|
|
|
06-02-2007, 11:31 PM
|
#36
|
|
Senior Member
Join Date: Sep 2005
Location: Simi Valley, CA
Posts: 94
|
I don't know what to say, it seems so quick... I'm so sad.
Jen
__________________
Jen
DX 10/04 IDC Grade 3
ER/PR-, Her2+++
4/20+ Lymph nodes
Stage 3a
Age 38, CA
|
|
|
|
|
06-03-2007, 03:32 AM
|
#37
|
|
Senior Member
Join Date: Jan 2007
Posts: 368
|
When I read this yesterday, it really saddened my heart.
I always enjoyed reading Sandy's posts. I'll really miss her.
God bless her and her family.
__________________
12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
|
|
|
|
|
06-03-2007, 04:45 AM
|
#38
|
|
Senior Member
Join Date: Mar 2006
Posts: 1,843
|
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
What a lovely doctrine for life. I had never noticed it on her posts before.
We all so frail, it is so easy to be fearful or callous. My marks are not very high.
I will miss her friendly face, and try and remember her mantra.
RB
|
|
|
|
|
06-03-2007, 06:24 AM
|
#39
|
|
Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
|
Such sad news
So sorry to hear of Sandy's passing. I enjoyed reading her upbeat posts, and will miss her. I send my deepest condolences to her loving family.
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
|
|
|
|
|
06-03-2007, 08:41 AM
|
#40
|
|
Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
|
God bless her familly and all her friends. She was such a support on this board
and I will remember her smiling face.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 05:31 PM.
|
Linear Mode
