![Reply](http://her2support.org/vbulletin/images/buttons/reply.gif) |
|
08-17-2008, 11:08 AM
|
#21
|
Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
|
Thank you Joe for letting us know
I am so sorry to hear this... This has been another terrible year.
My condolences to Vanessa's family
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
|
|
|
08-17-2008, 11:21 AM
|
#22
|
Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
|
I will miss our dear Vanessa. May God's grace comfort her family during this difficult time.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
|
|
|
08-17-2008, 11:36 AM
|
#23
|
Senior Member
Join Date: Sep 2005
Posts: 556
|
I am so sad and depressed. When are we going to achieve the cure for this desease? My heartfelt condolences to her family and friends.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
|
|
|
08-17-2008, 11:37 AM
|
#24
|
Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
|
Very sorry about Vanessa. My sympathies to her family.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
|
|
|
08-17-2008, 11:48 AM
|
#25
|
Senior Member
Join Date: Aug 2007
Location: Stayton, Oregon
Posts: 69
|
Oh, how my heart breaks at losing another sister. Vanessa's family are in my thoughts and prayers. Love to all, NanaKaren
__________________
Dx 7-21-05
1.7 cm invasive ductal carcinoma
Her2 +3 strongly positive
micromet in sentinel node
Sept.05 Lt.lumpectomy/bilat.reduction
Oct.05 4 rounds of AC/12 rounds of Taxol with Herceptin
Radiation 5 weeks
Herceptin only until Jan.07
Started Femara-stopped
Started Aromisin-stopped
Currently on Arimidex with a great deal of pain
Stopped Arimidex
Taking Tamoxifen
Karen
|
|
|
08-17-2008, 02:13 PM
|
#26
|
Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
|
So sorry
to hear about Vanessa. My prayers for her family for strength and peace. I will surely miss her posts and contributions to this site. I'm so sad!
__________________
Diagnosed 4/03/03, age 50
3.5 cm, 0/19 positive nodes
Stage IIA
Her2++, ER & PR++
RB Mastectomy, 4 AC,
|
|
|
08-17-2008, 02:28 PM
|
#27
|
Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
|
My sincerest sympathies to Vanessa's family. I know how much her children and grandchildren meant to her. She was one proud momma.
You will be sorely missed Vanessa.
Tearfully,
Lexi
|
|
|
08-17-2008, 03:32 PM
|
#28
|
Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
|
I echo previous posts...she was such a sweet and positive person. My heart goes out to her family. She will be greatly missed. This year has touched our little family so hard.
With heavy heart, Ruth
|
|
|
08-17-2008, 03:42 PM
|
#29
|
Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
|
This is just too sad.
i can't believe she's gone. Her family will be in my prayers.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
|
|
|
08-17-2008, 04:07 PM
|
#30
|
Senior Member
Join Date: Nov 2006
Location: West Virginia
Posts: 105
|
My sincerest sympathy to Vanessa's family and friends. This really rips at my heart to have lost another strong woman who helped me find my way when I felt lost.
Love and prayers to you all,
Steph
|
|
|
08-17-2008, 05:45 PM
|
#31
|
Senior Member
Join Date: Jul 2006
Posts: 869
|
My heartfelt sympathies to Vanessa's family. This is getting so hard to take...our many losses. Ceesun
|
|
|
08-17-2008, 05:54 PM
|
#32
|
Senior Member
Join Date: Dec 2005
Posts: 274
|
My deepest sympathy goes out to Vanessa's family. I remember how happy she was when the new grandbabies were coming last year. My thoughts and prayers are with all of you.
Sincerely,
Liz J.
|
|
|
08-17-2008, 07:16 PM
|
#33
|
Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
|
I am so sorry to hear of Vanessa's passing. She had such a sweet, caring disposition.
We will miss her.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
|
|
|
08-17-2008, 07:50 PM
|
#34
|
Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
|
You have fought the good fight... Thank you, Vanessa, for being our friend and our inspiration. You will live in our hearts.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
|
|
|
08-17-2008, 08:42 PM
|
#35
|
Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
|
Vanessa felt such joy with the birth of her grandchildren. I wish they had had a chance to know her warm, kind spirit.
Keeping her family in my thoughts and prayers.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
|
|
|
08-18-2008, 12:16 AM
|
#36
|
Senior Member
Join Date: Oct 2005
Location: southern california
Posts: 287
|
I am so saddened whenever I hear of a loss. I do not post much but I read regularly and Vanessa will be missed.
Alice
|
|
|
08-18-2008, 05:05 AM
|
#37
|
Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
|
Truly sad. I would have liked to have met her.
maria
|
|
|
08-18-2008, 05:38 AM
|
#38
|
Senior Member
Join Date: Apr 2007
Posts: 292
|
So sad. ![Frown](http://her2support.org/vbulletin/images/smilies/frown.gif) It is sometimes hard for me to remember a person by their avatar, but Vanessa's smiling face and gorgeous hair popped up in my head when I read this just now. She was such a sweet person...
I am just going to put this out there...this sucks.
__________________
Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA
|
|
|
08-18-2008, 05:42 AM
|
#39
|
Senior Member
Join Date: Sep 2005
Posts: 589
|
Another horrible loss. My thoughts and prayers go out to her family.
Eric
|
|
|
08-18-2008, 05:43 AM
|
#40
|
Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
|
No!!!!!! . Too many losses of wonderful women I admired. I miss you Vanessa. My condolences to Vanessa's family.
Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 08:28 PM.
|