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Old 10-02-2010, 12:38 PM   #1
Rich66
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Location: South East Wisconsin
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support line (maybe her2support could get a break?)

Posted on another forum:


Hello everyone.

We're writing to share information about a telephone support service for advanced breast cancer patients which may be helpful to you. If you're not familiar with telephone support services, the Los Angeles Times recently published an article describing their benefits, especially for cancer patients.

The service we'd like to share with you is provided by Compassionate Counseling Services. CCS provides group and one-on-one support sessions designed specifically for breast cancer patients and caregivers. The sessions are led by Stephanie Stern, MSW, LCSW-C, a licensed clinical social worker.

Here is what one participant said about Stephanie's work:

"I want to thank you for all that you have done, for walking this path with us, always there for us, waiting in the background with open arms to catch us when we fell too far, your guidance full of compassion and understanding."

There is a small fee for the sessions, but as an Inspire member, you're eligible for a free session to see if this type of support is right for you.

To learn about the types of sessions offered and find out how to participate, please call (800) 861-4655.

To learn more about Compassionate Counseling Services visit www.compassionategroups.com.

We hope this new support option will be a great help to you. Please do share your feedback and let us if you have any questions.
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Mom's treatment history (link)
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Old 10-02-2010, 02:30 PM   #2
v-ness
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Re: support line (maybe her2support could get a break?)

there's another support line called Your Shoes that hooks you up with a survivor who had a similar diagnosis to your own, which i think is a great extra bennie. it is 1-800-221-2141. yet another is specific to HER2+ BC, the HERConnection support line (which i've called myself) at 866-449-HER2 (4372). valerie
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8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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