 |
|
11-24-2007, 07:54 PM
|
#41
|
|
Senior Member
Join Date: Aug 2007
Location: Detroit Metropolitan Area, Michigan
Posts: 592
|
Please everyone --- not another word!
Andi,
Obviously this has had a major impact on you. I am very sorry for your being hurt and feeling vanquished.
I know you realize that those who say ' *I don't care* or *I am glad I missed it*! ' are referring to missing any inappropriateness that was posted. I missed all of it, but now it is time to put the whole thing to rest. Although the posts were removed from this site, we all need to accept the fact that none of us can change or erase what occurred. Think of it as merely politely vanished for the benefit of many, and not vanquished. I'm absolutely sure your beliefs expressed on this site have not gone astray. It is time to move on.
God grant me the
Serenity to Accept the things I cannot change ; the
Courage to Change the things I can; and the
Wisdom to Know the difference.
Where is the world is Chinese Hamster Tip-Her2? I wonder where she went for her2rkey on Thanksgiving?
Joanne S
|
|
|
|
11-24-2007, 09:23 PM
|
#42
|
|
Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
|
Sorry. I think I missed most of this. I have been trying to piece together. I wouldn't mind leaving many of these posts up to further discuss. So without seeing it I can't comment. BB
|
|
|
|
|
11-25-2007, 12:01 AM
|
#43
|
|
Senior Member
Join Date: Oct 2005
Posts: 3,519
|
TipToe's schedule is posted under the 'Keeping your mind off of B/C" Forum...
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
Last edited by hutchibk; 11-25-2007 at 12:03 AM..
|
|
|
|
|
11-25-2007, 01:02 AM
|
#44
|
|
Senior Member
Join Date: Oct 2007
Location: Australia
Posts: 309
|
Dear Joe & Christine ~ thank you for everything you do!
I am so very new to this site and really have no idea what everyone is talking about... it's just that having recently gone from Stage 2 to Stage 4 Her2+++ BC - with bone mets.... I realise with my reading here HOW much I am going to need this site!
I have searched the net and there seems to be so much thought, compassion and hope here I really do hope you folks stick around and keep on keeping on! THANK YOU!
Blessings all
Hermiracles
__________________
2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
***************
|
|
|
|
|
11-25-2007, 09:37 AM
|
#45
|
|
Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
|
Andi,
What I meant was I do not care to read negativity it does not mean burying my head in the sand. And I believe others that said they "were glad they missed it" meant just that.
__________________
Mary
Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED
Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson
|
|
|
|
|
11-25-2007, 01:51 PM
|
#46
|
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Ditto Mary!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
|
|
11-27-2007, 12:04 AM
|
#47
|
|
Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
|
Hello Christine and Joe,
I am just beginning to get an understanding as to how it is through the efforts of the both of you that we have this supportive site to go to. It has truely been invaluable to me to have this source to go to. I thank you from the bottom of my heart for the work you have done to make this all possible for me and others like me. I never realized the extent of your efforts until I read this thread. I would like to make a donation to help you with your work.
Thank you from the bottom of my heart.
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
|
|
|
|
|
11-27-2007, 02:05 AM
|
#48
|
|
Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
|
Dear Joe and Christine,
I am in shock reading your post. I have happily only read supportive and informative posts. If anyone dared to say something ill of the site or you, I would be very angry.
Not having read these posts, I can only suggest that cancer can make you very moody and with depression you can enter a sort of "menopause craziness."
We all need you and this site so much. You are my best support group and the information I have learnt has not only helped me but my other friends off-line with HER2 and inflammatory bc.
I really don't think I would be alive today or feeling so good without you and this site.
The thought of death is sometimes overwhelming and people react differently. Some people believe in God, some don't or have given up hope, some believe in positive thoughts, some just want the scientific facts, some need to vent about their personal problems and family, some hate that.
What we all should remember is what our parents taught us: "If you can't say something nice (or helpful), don't say anything at all."
Even surrounded by good friends and family, there are times we feel alone and our feelings are complicated.
I know I appreciate this site particularly because I can talk to "friends" who have or are going through what I am and that is an invaluable help. I live in France and yet I feel so close to all of you. I hope sometime I will meet you face to face.
I love you all and hope for your recovery and that you never suffer pain.
love and hugs
sarah
|
|
|
|
|
11-27-2007, 11:15 AM
|
#49
|
|
Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
|
It Really Does Take A Village!
I have noted since early childhood that GOOD THINGS ALWAYS COME OUT OF BAD. I try to remember to remind myself of this when horrid inexplicable things occur. Once again, out of something disheartening and painful have come beautiful realizations, deepened appreciation and important awakenings -- to bless us all. The more painful the Lesson, the greater the reward. I hate that reality, but it gives me something to hold to when I feel adrift. Today, I feel renewed joy in my heart for us all! Together, we can weather any storm. Survival is a group effort. Surely, doing so and thriving depends upon that.
With much loving energy to Joe, our Christine and all my Sisters and Brothers...
Andi 
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
|
|
|
|
|
11-27-2007, 04:32 PM
|
#50
|
|
Senior Member
Join Date: Jul 2006
Posts: 869
|
Joe and Christine, I have been a bit off lately due to my mastectomy Nov 8...not sure of what you are refering to, but please know you 2 are like a lifeline to me. I appreciate this website so much. Ceesun aka Cathy
|
|
|
|
|
11-27-2007, 06:35 PM
|
#51
|
|
Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
|
Dear Joe and Christine,
I owe my life, quite literally, to this site and that means you two! Just one more voice to the chorus, we love you and appreciate you more than you know.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
|
|
|
|
|
11-27-2007, 06:54 PM
|
#52
|
|
Senior Member
Join Date: Sep 2005
Posts: 232
|
Lolly,
I am with you. I would not have known to fight for Herceptin had I not spoken to Christine.
Karen
|
|
|
|
|
11-27-2007, 10:39 PM
|
#53
|
|
Senior Member
Join Date: Nov 2006
Location: Bedford, Virginia
Posts: 134
|
Dear Joe and Christine,
Words cannot begin to express the gratitude that I feel for having the opportunity to share my concerns, my fears, my success stories, etc. I have a husband who is computer illerate, and I continue to marvel at the spouses, especially you--Joe, that are helping to improve the quality of our lives.
My Oncologist tells me that I am the exception, rather than the norm, because I am constantly questioning treatment and procedures. I have so much to learn from folks like you, Sheila and Kate. This weekend, we lost Nicola, who was an inspiration for us all.
I have a sister who is 16 years older than me, and there are none wiser. Time and time again, she has preached to me to "let go and let God." It is wonderful advise and applies in so many situations.
I am have been blessed. I count this website as one of my many blessings.
Many thanks for your heartfelt generosity.
Louise
__________________
- Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
- Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
- AC/Cytoxin combo - 4 treatments (dose dense);
- Taxol/Herceptin combo- 12 weekly treatments;
- Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
- BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
- MRI, 08/02/07 - NED
- 1 year Anniversary - 09/07; completed Herceptin 11/07.
- Mammo 02/14/08 - NED; MRI - 08/2008 - NED
- 2 year Anniversary - 09/08
- Mammo 02/09 - NED; MRI - 08/09 - NED
- 3rd year Anniversary - 09/09
- 5th Annivery - 09/2011 - NED
|
|
|
|
|
12-01-2007, 03:09 PM
|
#54
|
|
Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
|
I would just like to add how grateful I am for this site and the knowledge and support I have gained from it. Thank you, Christine and Joe!
|
|
|
|
|
12-01-2007, 06:22 PM
|
#55
|
|
Senior Member
Join Date: Mar 2006
Posts: 1,843
|
Thank you Joe and Christine for your wonderful efforts.
<img src="http://www.smiliegenerator.de/s31/smilies-21813.png" alt="Hail The Admin" /> |
|
|
|
|
12-01-2007, 06:50 PM
|
#56
|
|
Senior Member
Join Date: Oct 2007
Posts: 47
|
I join R.B!!!
Patrice
|
|
|
|
|
12-01-2007, 09:29 PM
|
#57
|
|
Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
|
Ditto for me - Hail the ADMIN!!
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
|
|
|
|
|
12-03-2007, 11:07 PM
|
#58
|
|
Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
|
My thank you to Joe and Christine. I have learned from and shared this site with friends who needed information and support. I mailed my modest contribution 2 weeks ago. It is not about the money, but it is my way of contributing more than just by typing.
Love to all, Catherine
Pox on the spammers
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
|
|
|
|
|
12-05-2007, 09:57 PM
|
#59
|
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Hello All! My name is Bill Stewart, Nicola's husband. I am still trying to learn my way around the site, but as I do, I am amazed at the number of beautiful smiling faces I see that I recognize. My incredibly courageous wife, Nikki, passed away a few months before we expected her to, and left me with the heartwrenching task of trying to locate friends that may have been left hanging with no information. I apologize. I have been trying to learn this site adequately so that I may make a posting for all to see, but I'm not sure I have found it yet. I know she loved you all, and spent a lot of time reading and posting here.
|
|
|
|
|
12-05-2007, 10:12 PM
|
#60
|
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Nicola's husband Bill here, I got here late, too late to comment on the inflammatory situation, but as those of you who knew my fiery redhead would agree, she would be writing pages and pages putting people in their places. She loved this site and loved you all.
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 07:03 AM.
|
Linear Mode
