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Old 02-22-2007, 10:11 AM   #1
TriciaK
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Bronchoscopy results and a question

Hi everyone, Just wanted to tell you the lung doctor called me at 7:30 last night to tell me the bronchoscopy showed no malignancy---good news, and what I expected. But she said she feels she needs to do another kind of needle biopsy of the lung, and I am wondering why. She said it was just a precaution, to make absolutely sure there is nothing there. I am inclined not to do it, even though I am very impressed by this doctor. I think I will discuss it with my new oncologist. As I said before, we have been extremely impressed with the quality of doctors and hospitals here in St. George, Utah. They all seem so thorough and so caring, taking extra time and explaining everything. Have any of you had the broncoscopy and then another biopsy too?
We are leaving Saturday morning to drive to Texas to see our 31 year old granddaughter who is dying of acute renal failure. She has been on daily dialysis for nearly 10 years and it is no longer working. Please pray for her---her name is Jennifer. She is the little granddaughter who gently chastised me when I was first diagnosed with BC over 20 years ago. I didn't want the children and grandchildren to know, but Jennifer and her cousin came to me and said "Grandma, how can we take care of you and pray for you if you don't want us to know you need us?" Now she is the one so very ill, and my heart aches for her. It seems sad to me that I am still alive after 3 bouts with cancer and severe heart problems and Jennifer is the one dying. Jenn's mom, our daughter Sherrill, is also not well. We feel we just have to spend some time with them.Then on the way back we will stop in Arizona to attend the wedding of another granddaughter. It will be an emotional trip! I will touch base here when we get back, but be thinking and praying for all of you. Hugs, Tricia
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Old 02-22-2007, 10:27 AM   #2
rinaina
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Tricia, my heart goes out to during this most difficult time with your grandaughter. It is so sad when one of our loved ones, so young, is stricken with such illness. It is difficult as the elder to understand it all but we are not the ones who decide anyone's fate. I am praying for her and you and want you to know my thoughts are with you. What an emotional trip indeed, the bad with the good, (your other grandaughter's wedding). Talk about an emotional roller coaster ride. Glad your trip will end on a positive note though. Try to enjoy the good times. I know your visit with the sick daughter and grandaughter will be much appreciated and that your support will mean the world to them.
Also good luck with your decision on whether or not to have the biopsy. I don't know anything about this but hopefully all will be okay as the bronchoscopy showed.
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Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 02-22-2007, 11:20 AM   #3
Karen Weixel
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Dear Sweet, Tricia,

Sending you and your family healing prayers, strength and peace.

Hugs,
Karen
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Old 02-22-2007, 12:20 PM   #4
Mary Jo
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Dear Sweet Tricia - You really are such a sweet, sweet soul. That comes through loud and clear on this board. Such a positive inspiration you are to many on this board. We are blessed to "know" you in this way.

I have offered up a prayer for your granddaughter Jennifer. I pray the Lord's peace to surround her and all of the family during this time.

God Bless you,

Mary Jo
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 02-22-2007, 01:14 PM   #5
tricia keegan
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Unhappy I'm so sorry-

Of course I'll remember Jennifer and you in my prayers Tricia and I'm sorry too I can't advise on the biopsy but do what seems right to YOU and you won't go far wrong.
Will be thinking of you through this tough time.
Tricia
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 02-22-2007, 01:22 PM   #6
Andi
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Tricia - I'm so sorry to hear about your granddaughter. My prayers will be with her and you and your family. Have a safe trip.
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-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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Old 02-22-2007, 05:23 PM   #7
mslinda
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Tricia, I too am sorry to hear about your grandaughter. I will be praying for her, her mother, and you on your trip. Please be safe.


Linda
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Diagnosed 12/23/04
Biopsy 12/28/04
Lumpectomy 1/04/05
IDC, ER-PR-, HER2Neu+++
7mm tumor, Stage 1, Grade 3
6 CAF's
38 Rads
Finished 10/05

"Worry looks around. Sorry looks back. Faith looks up."
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Old 02-23-2007, 01:47 AM   #8
jhandley
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thinking of you

Hi Tricia
My prayers are with you. Often we forget that others have health problems too. Keep healthy and well on your journey.
Kind regards
Jackie
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Old 02-23-2007, 08:04 AM   #9
MJo
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I am sorry about your granddaughter. Isn't that just like life -- a life-threatening illness and a wedding at the same time. I get so focused on cancer that I forget there are other life threatening medical conditions. My cousin died last Christmas Eve from HepC. I remember when he was 5 and I was 8 I taught him to tie his shoes. It's so painful to lose loved ones. I am sending up a prayer for you and yours.
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 02-23-2007, 09:40 AM   #10
Joy
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Tricia

I am thinking of you so much. What hard family times. You are so strong and so warm and comforting. I know your family will feel better with your presence. Travel safe and take care of yourself first so you can help the others. I'm happy about the bronchoscopy (not that you had to have it, but the results).

I had a broken windshield in St. George once and found it to be lovely there despite picking glass out of my legs for awhile. I'm happy the medical care seems quite good.
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joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 02-23-2007, 04:43 PM   #11
Adriana Mangus
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Thumbs up Needle biopsy

Tricia; Initially I had the bronchoscopy, then the needle biopsy to make sure that in fact this was a recurrence from the original diagnosis from 1994, and indeed it was, the doctor wants to make sure that there is a connection to the bc, and not lung cancer. When the cells from the lung are biopsed the doc's will know that the cells are from the breast and not other type of cells, such as non-small lung cancer cells, It's important to go through it. Not the best answer but, hey, you are a long time bc survivor, another biopsy won't hurt you! Hugs.
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 02-23-2007, 06:19 PM   #12
Jean
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Dearest Tricia,

What a Special Lady you are....I will pray for you and your family with all my
heart.

Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 02-23-2007, 06:55 PM   #13
Sheila
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Tricia

Why must our lives be filled with such bittersweet events....you have a grandaughter so gravely ill at such a young age, and another about to marry...I am so glad to hear your lung tests were normal, and I will keep your grandaughter Jennifer in my prayers....have a safe trip Tricia.
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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