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07-11-2006, 03:55 PM
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#1
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Senior Member
Join Date: Jul 2005
Location: Ontario, Canada
Posts: 722
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vacation news...........
Just a note that I will be going on vacation with my boys to the west coast this weekend, returning beginning of August. I will not be taking my laptop so I will not be able to post. However, I will be visiting Steph in Seattle so I will be taking requests to pass on 1 (one) kiss per request. I just hope that I don't get more than 10 requests because I think (husband) Emile may get a little excited, or angry. I will get caught-up upon my return.
more news.... daughter (bloodclot) loren is doing much better, in good spirits and started back to work this week.
more news.... I registered my cottage with COTTAGE DREAMS, an Ontario program to share your cottage with cancer survivors. The ONLY reason I say this is I'm not sure how wide spread this concept is but wow, if you don't have it in your area, start one! http://www.cottagedreams.org/About/
So... I will miss and be thinking of all of you and.. as Linda said to me so many times, "I will get more out of cancer than it will take from me", quality of life is everything.
Cheers,
Al
__________________
Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
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07-11-2006, 04:19 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Have a wonderful vacation
You certainly deserve to have some time away from it ALL. I will miss your posts but am delighted that you are taking care of yourself. Be careful with StephN - and enjoy the love-fest!
Although I have no idea where you are vacationing, this quote came to mind...and I hope that whatever you do will soothe the spirit and be true "re-creation" for you
"Climb the mountains and get their good tidings. Nature's peace will flow into you as sunshine flows into trees. The winds will blow their own freshness into you, and the storms their energy, while cares will drop off like autumn leaves"...John Muir
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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07-11-2006, 04:38 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Have a wonderful time on your trip, Al. Say hello to Steph; I hope to meet her someday. You and your boys deserve this trip. Enjoy this time together.
Best wishes,
Barbara H.
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07-11-2006, 04:53 PM
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#4
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Al,
Have a wonderful time with your boys and enjoy every minute!!
Hugs,
Lexi
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07-11-2006, 04:59 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Al;
I have heard of Cottage Dreams and am so impressed that you are supporting it!! Perhaps Maryann might enjoy using your cottage on her trip to Canada....I suspect it is isolated enough to make it a "safe" holiday for her and her family. I hope you enjoy your holiday and thank you for your support.
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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07-11-2006, 05:13 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Maryland
Posts: 31
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Al,
Have a wonderful time with your boys...gentle hug to Steph.
What a great idea on the cottage
Warmly,
Judiek
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07-11-2006, 06:09 PM
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#7
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Have a great vacation
Al - have a great vacation with your boys and say Hi to Steph from her HER2 sisters.
Glad to hear that your daughter is doing well and back at work.
That is a great thing you are doing with your cottage. Wish I had something to offer on our beach side of the world. Would love one day to visit yours, it looks awsome.
Have a great time
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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07-11-2006, 06:12 PM
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#8
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Hey, AL!
Guess you had better give me the days you think you will be around our parts, so we can coordinate our life a little bit.
What day do you have the trip to Seattle on the Clipper booked? We can meet you and Adrian at the dock which is only a few blocks from our store.
See you soon. Better get some good wine ready, huh?
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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07-11-2006, 06:28 PM
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#9
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Al...
have a GREAT and restful trip and hugs and kisses to Steph. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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07-11-2006, 07:29 PM
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#10
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Have a wonderful trip. That is such a nice idea, I would love to have a cottage to visit. Good news on your daughter too. Don't get chapped lips with all that kissing...sherryg683
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07-11-2006, 08:18 PM
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#11
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Senior Member
Join Date: Sep 2005
Posts: 90
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Great idea! Thanks for sharing it. Have a good vacation. You certainly deserve it. We will miss you.
- Carol
__________________
Carol
Lyons, CO
dx June '05 at age 55
Stage 1, 1.5cm
ER+++, PR--, HER2+++
Lumpectomy, A/C, T/H
Herceptin stopped due to low LVEF (35%)
2010: NED, but continuing major chemo brain injury
www.BeyondChemoBrain.com
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07-11-2006, 09:59 PM
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#12
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Senior Member
Join Date: Sep 2005
Posts: 312
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Al, I hope you have a wonderful vacation and give a hug to Steph. The Cottage Dream idea sounds wonderful. Does anyone know if there is anything like this in the States?
Janet
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07-12-2006, 10:47 AM
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#13
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Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
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Al, enjoy yourself and just live in the moment for your vacation. Have a great time with Steph. As far as the kisses, how many of us are registered on this site? Better get busy!
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07-12-2006, 11:07 AM
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#14
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Al, You certainly deserve a vacation. Enjoy the time with your children.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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07-12-2006, 02:00 PM
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#15
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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Al
Any option other than a KISS for some of us! lol
Have a great trip!
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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07-12-2006, 02:17 PM
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#16
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Senior Member
Join Date: Sep 2005
Posts: 290
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Great
Go for it Al. Enjoy the vacation. It sounds like a great time. You certainly deserve it. I think maybe I'll try to get Mom and myself out of the area if I can, as I think our lives have been swallowed up by doctors' visits and IV bags. Don't stay away too long. We so enjoy and appreciate hearing from you. Take care.
Tom
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07-12-2006, 03:42 PM
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#17
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Al,
Wishing you a wonderful vacation! Try to rest a bit...so glad to hear your daugher is doing so well. Oh, if I had a cottage I would gladly offer it.
Great idea from a great guy!
Jean
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07-17-2006, 09:35 PM
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#18
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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Dear Al,
Taking care of yourself is well deserved and LONG overdue. Enjoy that salty air and know that Emile breaks out only the best tasting wine...We will all be thinking of you...come back with details; we will get vicarious pleasure hearing about your trip.
Love Kim from CT
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07-17-2006, 09:57 PM
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#19
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Al, I think you'll love Seattle, if you've never been there. It's chock full of fun things to do, and of course seeing Steph and Emile is the icing on the cake! They also have some very delicious dark, dark chocolate at their store 
<3 Lolly |
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07-18-2006, 05:56 AM
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#20
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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>I have heard of Cottage Dreams and am so impressed that you are supporting it!! Perhaps Maryann might enjoy using your cottage on her trip to Canada....I suspect it is isolated enough to make it a "safe" holiday for her and her family. I hope you enjoy your holiday and thank you for your support.<
You never cease to amaze me Al. Sharing your cottage - that is such a nice idea...and Cathy - what a nice idea too. Thanks for thinking of me. The one thing keeping me from a vacation this year (or any year) is money. I could never afford to stay in Canada (unless I bring my mom and she pays - lol).
Al - Have a GREAT trip and please give Steph a HUGE hug for me!!! Steph - please give Al a HUGE hug and kiss for me!!!
..·´¨¨)) -:¦:-
¸.·´ .·´¨¨)) -:¦:-
((¸¸.·´ ¸.·´ -:¦:- -:¦:-
-:¦:- ((¸¸.Maryann -:¦:-´´.
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