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10-01-2013, 06:03 AM
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#1
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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"Stage 4 Needs More" FREE T-shirts
Calling all Stage 4 Sisters, and those who love and support us...
The Metastatic Breast Cancer Network (MBCN) is giving away T-shirts and buttons to raise "awareness" of the un-pink reality of having stage 4 BC.
If you go to this link:
http://mbcn.org/get-involved/categor...s-and-buttons/
they are offering free T-shirts and buttons in honor of National Metastatic Breast Cancer Day (Oct. 13). They'll even ship the items for free in order to get the message out there. They do ask for a donation... but I'm pretty sure they're on 'lizbeth's list of "good" charities... and the donation is purely optional from what I could tell.
Joan M introduced me to them when we were at a Living Beyond Breast Cancer (LBBC) event together, and I've gotten good info and support from them ever since.
I ordered a shirt for myself and a few to give out at my treatment center.
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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10-02-2013, 07:45 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Re: "Stage 4 Needs More" FREE T-shirts
right on, Denise! yes, more awareness and money for mets and for the difficult cancers like inflammatory.
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10-02-2013, 01:22 PM
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#3
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: "Stage 4 Needs More" FREE T-shirts
I don't see MBCN on the list, but this is very cool.
Thanks for sharing.
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10-02-2013, 01:50 PM
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#4
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: "Stage 4 Needs More" FREE T-shirts
You're right!
After further research on the charity site, I discovered that they are too "small" to be rated with the big boys. 
Which makes their work, and their offer even more remarkable IMHO!
Denise |
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10-02-2013, 04:50 PM
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#5
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Senior Member
Join Date: Dec 2011
Posts: 585
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Re: "Stage 4 Needs More" FREE T-shirts
That's awesome. I didn't even know there was a metastatic breast cancer day! Thank you mam!
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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10-02-2013, 10:40 PM
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#6
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Senior Member
Join Date: Jul 2013
Location: Hot Springs, South Dakota
Posts: 158
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Re: "Stage 4 Needs More" FREE T-shirts
You always have such great posts! Just ordered my shirt and buttons. Thanks so much
__________________
Paula T. (saygoon means dog, yes I am Native)
DX March 2012
Stage IV w/ 5 bone mets to spine 2 on ribs
Herceptin, Zometa, Taxotere and Anasterole and of course radiation
2/14/2014 2 mets on pelvic bone
Stop Anasterole continue on Herceptin and Zometa start radiation (again)
2/24/2014 start T-DM1 continue Herceptin and Zometa
4/28 more radiation that brings total to 5 (10 days ea) - I think I will soon glow in the dark....
6/01/2014 Great news! Rib mets gone, 4 of 5 spine mets showing new bone growth and pelvic mets shrinking.
8/28/2014 T11 on spine is being stubborn started Perjeta, Herceptin, Zometa and Taxol - goodbye hair!
9/04/2014 Tomo therapy - pain finally gone
1/3/2015 - starting New Year out as still stable. Feeling positive
2/23/2015 - problems with left leg, bone met flaring up - MORE radiation Whew!
2/24/2015 Stress fracture in right side of pelvic - (great just great) back to wheelchair then walker then.....
2/26/2015 Off Taxol!! Still on Perjeta, Herceptin and Hormone Blocker starting to feel a little more human.
4/10/2015 Cancer has spread to spinal fluid - not sure where I go from here
6/29/2015 Omaya Port placed,begin IT Herceptin on 7/7/2015
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