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02-02-2014, 05:43 AM
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#1
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Senior Member
Join Date: Dec 2011
Posts: 585
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Re: Just add Hashimoto's
Oh my gosh, I am going to ask for testing. I hurt almost all the time, and my oncologist told me I had chemo-induced fibromyalgia. I can't go six hours without taking a nap, and I have lost a ton of weight. A trip to the grocery store wears me out. I can't keep weight on because I just can't eat. I also have elevated liver enzymes, but Im pretty sure that is due to my Tykerb. Can't hurt to have it checked. You must be soooo relieved to know what was causing you to feel so bad, and to know that there is a treatment for it. Im so happy for you...Lots of prayers and big cyberhugs headed your way.
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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02-07-2014, 04:24 PM
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#2
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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Re: Just add Hashimoto's
^ Many thanks SusanN. (-:
I do urge everybody who has not had a look at the iodine thread on the nutrition page to do so and take the time to watch at least the first video.
"A must watch - excellent lectures from impassioned health professionals - the first video lecture I only found recently and is linked later in this thread; I have copied it here because it is more general in nature, by a woman, and probably a better lecture to start with. Dr Brownsteins is more specialist but equally fascinating
The main section on the implications of iodine for the breast may be the place to start to get you attention; it starts at about 4.10 and again at 36.36. Please bear with the controversial introduction. Apparently the lecturer spent 10 years as a board certified female physician in ER, so her move into a more integrated medicine is based on a wide range of experiences. The lecture on iodine is very much research based.
"Dr. Sherry Tenpenny outlines the many disorders that come about because of iodine deficiency IAOMT 2007 L.V. This is a must see, especially for women that have problems with their thyroid or their breasts."
http://www.youtube.com/watch?v=hMjKmi12UX0
and
Iodine The Misunderstood Nutrient David Brownstein
http://www.youtube.com/watch?v=Kd34EJ5E3bI "
Last edited by R.B.; 02-07-2014 at 04:35 PM..
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02-09-2014, 07:22 PM
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#3
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Senior Member
Join Date: May 2013
Posts: 570
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Re: Just add Hashimoto's
Thank you, I'll look at that.
__________________
Tracy Arcari
___________________________________________
11/12 BSE ignored the lump for SIX months.
5/1/13 IDC ER/PR- HER2/neu+++
5/14/13 Mastectomy and SN biopsy
5/20/13 IDC Stage IIb Grade 3 Nodes 1/4 also IDC and DCIS multi focal in remaining dissected tissue.
5/30/13 MUGA and CT thorax, abdomen & pelvis, establish baseline.
6/4/13 Installed my little purple power port.
6/14/13 Chemo started TCH
6/14/13 Informed of suspicious ares on scans scheduled PET.
7/1/13 PET Scan NED!
9/27/13 FINAL CHEMO taken! ----well, maybe not.
10/15/13 Three little tattoos.
10/24/13 Radiation begins and fourth tattoo placed.
11/27/13 Perfectly radiant! Radiation completed the day before Thanksgiving and so, so much to be thankful for this year and every day hereafter.
1/2/14 Happy New Year, you have a Goiter? Muga down to 59%.
1/17/14 Hashimoto's Dz Dx'd. Now maybe I'll feel BETTER!
5/2/14 Herceptin completed! New kitten!
8/19/14 Prophylactic mastectomy (right) and PORT OUT! I'm DONE and now I really am a SURVIVOR.
2/15 Started not feeling so swell. Memory lapses and GI issues with nausea and blurry vision.
4/30/15 U/S cystic gallbladder, cyst on right ovary and mass in my uterus. GYN consult scheduled---and cancelled. I'm not ready.
5/4/15 Brain MRI clear (big sigh of relief)
7/30/15 Back Pain
8/31/15 Radiograph: compression fracture L2
9/10/15 Bone Scan positive
9/21/15 CT scan conclusive for tumor
10/1/15 CT guided biopsy & Brain to Pelvis MRI reveal additional lesions on spine C6, T10, T11 and L2 is collapsing.
10/8/15 Abbreviated pathology: new tumor(s) poorly differentiated carcinoma consistent with known breast primary.
ER-/PR+ (40%) HER2/neu+++ Ki-67 4% Pancytokeratin AE1/3 Strong Positivity in all malignant cells.
10/13/15 Abnormal Dexa: moderate risk of fracture to both femoral head/neck R&L. Significant risk to lumbar spine.
10/14/15 Radiation consult back to the cooker.
10/20/15 MUGA 50% down from 54% after a year off Herceptin (???)
10/21/15 Kyphoplasty L2
10/22/15 Re-start Chemo: Perjeta, Herceptin & Taxotere
10/26/15 PET Scan confirms C6, T10-11, L2, new lesion noted at L4 but no visceral involvement---Happy dance!!!
10//29/15 Xgeva
10/29/15 Radiation Simulation--three new tattoos to add to my collection. Just call me Dotty.
10/30/15 CA27-29 63 U/mol (<38 U/mol)
11/3/15 First Trip to see Dr. E. Mayer at DFCI
11/4/15 Surgical consult to re-install my little purple power port.
11/9/15 Radiation treatment one of five.
11/10/15 Installed my little purple power port and not a moment too soon, took them four tries to get an IV started today.
Yes, we really are going down this road again.
12/5/15 CT for suspected pulmonary embolism demonstrates increase in T10-11 mets.
12/8/15 Bone Scan uptake at T10-11 (not seen 9/17/15) & Right 8th Rib (not evident on PET 10/26/15)
12/10/15 Consult Re: PROGRESSION. Halt THP due today. Schedule PET and order TDM1 for next week. PLAN B.
12/14/15 PET scan: NO PROGRESSION! THP is working, metabolic activity minimal. Merry Christmas to me! Sticking with PLAN A, it's working.
1/7/16 Start Taxol weekly instead of Taxotere (has been too taxing and not rebounding between txs.) Zometa instead of Xgeva.
3/28/16 CT shows new sclerotic lesions on T12, L3, L5, L6, right ilium and head of right femur. No uptake on Bone Scan (progression????)
3/31/16 Discontinue Taxol start Arimidex, still getting H&P.
6/2/16 Discontinue Arimidex and start Exemestane.
6/18/16 PET is NEAD!!
7/1/16 Discontinue Exemestane and restart Armidex (SEs)
8/29/16 CT/Bone Scan Stable (still uptake at T10-11)
10/3/16 BSO pathology negative
10/10/16 MRI: Brain clear!
10/14/16 Switched care to Harold Alfond Center for Cancer Care
11/24/16 Xgeva, New MO preference to Zometa
12/12/16 CT/Bone scan Mostly stable significant uptake at L2 plan to PET
1/12/17 PET shows NEAD celebrate with a new puppy!
3/29/17 CT & BS = NEAD
7/31/17 Aetna denies access to H&P <gearing up for a fight>
8/4/17 CT& BS= STABLE
8/9/17 No treatment, Aetna still denying H&P
8/14/17 Aetna appeal approved H&P through February 2018!
2/5/18 CT & BS = STABLE
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02-19-2014, 08:28 AM
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#4
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Senior Member
Join Date: Dec 2012
Location: Attica, IN
Posts: 371
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Re: Just add Hashimoto's
I read all this again, and I go for my 2nd opinion tomorrow. I feel just like you, and I try each and every day. I come to work and sometimes the pain is doable but then like yesterday by the end of the day it my feet and hands hurt so much I couldn't stand it. I just wanted to go straight home and cry then go to bed.
It is all the things you said above......And I have thought this isn't any quality of life, and I am ready to be done now and Jesus just take me to heaven. I keep searching for an answer because I want to live life more then I did before Cancer because I realize how precious life is and I didn't appreciate my health.
I have taken my 2nd dose of 50,000 units of Vitamin D and maybe that will work. Heck, I don't know.
I get everything you said, and I hope you are feeling better!! What do they give you for this disease?? How do they figure out if you have it???
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant
9/2012 Pre-adjunctive TCH chemo.
12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.
12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+
2/27/13 6 weeks of IMRT radiation finished
2/2013 Started on Tamoxifan 5 years.
8/2013 will take last Herceptin, 17 treatments total every 3 weeks.
BRCA1 & BRAC2 - Negative
August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.
3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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