HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 02-13-2020, 05:28 PM   #1
Pamelamary
Senior Member
 
Pamelamary's Avatar
 
Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 494
8 year stage 4 cancerversary.

Just checking in... Given Doctor Google gave me 8 months in 2012, I feel profoundly grateful for the fact that I am still here. That first year was awful, but I have been lucky to have continued stable since.
There are times that I feel absolutely sick of myself and matters medical, where my life is measured out in cycles of treatment and scans. However, by and large I have been able to pursue my interests in books, film and exercise without any limitations. I have managed to have a couple of overseas trips every year, which have been wonderful.
Getting older is proving to be a bit of a pain, quite apart from the cancer. Never imagined seeing 2020! Another thing is survivor guilt - I still volunteer at a Melbourne peer support network and have seen the loss of many beautiful women. The very young are particularly heart breaking.
There is a growing number of us, the long term survivors. Surely somewhere there are clues leading to a cure?
Best wishes to all on this site, which has been a valuable source of information and support.
__________________
Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
Pamelamary is offline   Reply With Quote
 

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 07:54 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter