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09-19-2011, 10:14 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Stephanie stopped by
Hello All,
I was absolutely delighted that one of my favorite HER2 "family members" and one who has helped me through the years, stopped by the little village where I live. What a terrific surprise!
Stephanie, looking fantastic and her sweet husband, Emile, stopped by on their way From Bordeaux, France to Vence, further East, and it was wonderful to meet her in person! She is as warm and wonderful as her cyber personality projects. I hope they will be back again soon.
Great to meet an HER2er in person and such a special one.
I love this site!!!
Health and Happiness
love sarah
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09-19-2011, 10:34 AM
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#2
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Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
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Re: Stephanie stopped by
I echo your sentiments. Steph is WONDERFUL! I had the pleasure of meeting up with her several times last year when I was in Seattle for the vaccine trial. She is such an inspiration to me and so many of us here. She helped me to keep hope alive that NED for us stage IV is possible! Long may you dance with NED Steph! And enjoy your time in France! Viva la Steph!
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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09-19-2011, 11:45 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Re: Stephanie stopped by
Hi Courtney,
Yes, she's amazing! If you didn't know it, you'd never guess the health problems she's been through by looking at her. You're absolutely right, she's an inspiration.
Stay NED, you look good yourself! carrying quite a load!
Health and Happiness
love Sarah
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09-19-2011, 06:36 PM
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#4
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Stephanie stopped by
Ditto for me Sarah and Courtney! Our Miss Steph is truly a lovely lady, a class act all the way!
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Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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09-19-2011, 06:59 PM
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#5
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Re: Stephanie stopped by
I love when Steph stops by! I've enjoyed her visits in Texas, too. Fantastic!
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Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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09-20-2011, 09:44 AM
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#6
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Guest
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Re: Stephanie stopped by
You are all too much!
Steph here from Vence.
I think we all play off each other,s best qualities!
Everyone has much to offer not forgetting this cancer detour just changed our direction in life a bit. Our basic selves shine through and I feel the same about you all.
Sarah has a lot less stress living the hill village life! She can walk just about any place she needs to go!
Stay well everyone and I will see you all beginning Oct;
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09-20-2011, 10:08 AM
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#7
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Senior Member
Join Date: Aug 2006
Posts: 492
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Re: Stephanie stopped by
I have also had the pleasure of meeting Stephanie and her adoring husband Emile in their wine shop. Wonderful couple!! Thanks again Steph for the lovely afternoon and wishing the best for you always!
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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09-20-2011, 02:43 PM
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#8
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Stephanie stopped by
Hope to hear from you soon, Stephanie. I emailed Doreen yesterday.
Amelia
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09-21-2011, 12:59 PM
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#9
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Stephanie stopped by
How wonderful to meet one of our online buddies, I live in Ireland but have been fortunate in meeting a few people from the U.S I met online and I'm so glad you met Steph 
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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09-22-2011, 02:45 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Re: Stephanie stopped by
Me too!
Health and happiness
love sarah
__________________
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