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Old 12-23-2007, 07:56 PM   #21
Patty F
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Merry Christmas to all. I wish for all a VERY HEALTHY New Year. You have been a great support to me these past few months. THANK YOU!
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Old 12-23-2007, 07:57 PM   #22
StephN
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Wink How we are blessed!

May we all be blessed with good health in 2008 and beyond!
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 12-23-2007, 08:05 PM   #23
Liz J.
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Smile Merry Christmas

Merry Christmas and a Healthy and Happy New Year.

Sincerely,

Liz J.
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Old 12-23-2007, 08:17 PM   #24
Lolly
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Christmas, children, is not a date. It is a state of mind. ~Mary Ellen Chase

Peace, Love and Goodwill to all.
<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 12-23-2007, 10:56 PM   #25
cafe1084
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Last year, as I sat with my family and friends, I was scared that my Holidays with them were numbered. Here's to many more holidays to come, for all of us!

Merry Christmas Everyone!
Stephanie
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Old 12-24-2007, 04:36 AM   #26
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Talking Thanks RB for the thread

Computer problems at home. Jogged to work (well, maybe not jogged..tehehe!) so I could send my love. Thank you all for providing us with the gifts of your friendship. Treasured everyday I carry your support around with me. Blessings>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 12-24-2007, 07:16 AM   #27
suzan w
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Happy Holidays to all my friends here. It is the first place I come when I am scared and need help...and that is what family is all about!!!
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 12-24-2007, 07:20 AM   #28
Joe
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<TABLE cellSpacing=0 cellPadding=3 width="95%"><TBODY><TR vAlign=top><TD class=lang>AFRIKAANS</TD><TD class=trad>geseënde Kersfees</TD></TR><TR vAlign=top><TD class=lang>ALBANIAN</TD><TD class=trad>gëzuar Krishtlindja</TD></TR><TR vAlign=top><TD class=lang>ALSATIAN</TD><TD class=trad>gleckika Wïanachta</TD></TR><TR vAlign=top><TD class=lang>ARABIC</TD><TD class=trad>miilaad majiid</TD></TR><TR vAlign=top><TD class=lang>ARMENIAN</TD><TD class=trad>Shnorhavor Surb tsnund</TD></TR><TR vAlign=top><TD class=lang>BASQUE</TD><TD class=trad>Eguberri on</TD></TR><TR vAlign=top><TD class=lang>BELARUSIAN</TD><TD class=trad>З Божым нараджэннем (Z Bozym naradzenniem)</TD></TR><TR vAlign=top><TD class=lang>BENGALI</TD><TD class=trad>subho baradin</TD></TR><TR vAlign=top><TD class=lang>BOSNIAN</TD><TD class=trad>sretan Božić</TD></TR><TR vAlign=top><TD class=lang>BRETON</TD><TD class=trad>Nedeleg laouen</TD></TR><TR vAlign=top><TD class=lang>BULGARIAN</TD><TD class=trad>весела коледа (vesela koleda)</TD></TR><TR vAlign=top><TD class=lang>BURMESE</TD><TD class=trad>Christmas nay hma mue pyaw pa</TD></TD></TR><TR vAlign=top><TD class=lang>CATALAN</TD><TD class=trad>bon Nadal</TD></TR><TR vAlign=top><TD class=lang>CHINESE</TD><TD class=trad>圣诞快乐 (shèng dÃ*n kuÃ*i lè)</TD></TR><TR vAlign=top><TD class=lang>CORSICAN</TD><TD class=trad>bon Natale</TD></TR><TR vAlign=top><TD class=lang>CROATIAN</TD><TD class=trad>sretan Božić</TD></TR><TR vAlign=top><TD class=lang>CZECH</TD><TD class=trad>veselé Vánoce</TD></TR><TR vAlign=top><TD class=lang>DANISH</TD><TD class=trad>glædelig jul</TD></TR><TR vAlign=top><TD class=lang>DUTCH</TD><TD class=trad>vrolijk Kerstfeest</TD></TR><TR vAlign=top><TD class=lang>ESPERANTO</TD><TD class=trad>gojan Kristnaskon</TD></TR><TR vAlign=top><TD class=lang>ESTONIAN</TD><TD class=trad>häid jõule</TD></TR><TR vAlign=top><TD class=lang>FAROESE</TD><TD class=trad>gleðilig jól</TD></TR><TR vAlign=top><TD class=lang>FINNISH</TD><TD class=trad>hyvää joulua</TD></TR><TR vAlign=top><TD class=lang>FRENCH</TD><TD class=trad>joyeux Noël</TD></TR><TR vAlign=top><TD class=lang>FRISIAN</TD><TD class=trad>noflike Krystdagen</TD></TR><TR vAlign=top><TD class=lang>FRIULAN</TD><TD class=trad>bon nadâl</TD></TR><TR vAlign=top><TD class=lang>GALICIAN</TD><TD class=trad>bo Nadal</TD></TR><TR vAlign=top><TD class=lang>GEORGIAN</TD><TD class=trad>Ahali tseli</TD></TR><TR vAlign=top><TD class=lang>GERMAN</TD><TD class=trad>frohe Weihnachten / fröhliche Weihnachten</TD></TR><TR vAlign=top><TD class=lang>GREEK</TD><TD class=trad>kala christougenna / kala xristougenna</TD></TR><TR vAlign=top><TD class=lang>HAITIAN CREOLE</TD><TD class=trad>jwaye nowel</TD></TR><TR vAlign=top><TD class=lang>HAWAIIAN</TD><TD class=trad>mele Kalikimaka</TD></TR><TR vAlign=top><TD class=lang>HEBREW</TD><TD class=trad>christmas sameakh (barely used)</TD></TR><TR vAlign=top><TD class=lang>HINDI</TD><TD class=trad>Krismas ki subhkamna</TD></TR><TR vAlign=top><TD class=lang>HUNGARIAN</TD><TD class=trad>boldog Karácsonyt</TD></TR><TR vAlign=top><TD class=lang>ICELANDIC</TD><TD class=trad>gleðileg jól</TD></TR><TR vAlign=top><TD class=lang>ILOCANO</TD><TD class=trad>naragsak a paskua</TD></TR><TR vAlign=top><TD class=lang>INDONESIAN</TD><TD class=trad>selamat Natal</TD></TR><TR vAlign=top><TD class=lang>IRISH GAELIC</TD><TD class=trad>Nollaig shona</TD></TR><TR vAlign=top><TD class=lang>ITALIAN</TD><TD class=trad>buon Natale / gioioso Natale</TD></TR><TR vAlign=top><TD class=lang>JAPANESE</TD><TD class=trad>meri kurisumasu</TD></TR><TR vAlign=top><TD class=lang>KABYLIAN</TD><TD class=trad>assegass amegass</TD></TR><TR vAlign=top><TD class=lang>KOREAN</TD><TD class=trad>seun-tan chu-ka-hae-yo</TD></TR><TR vAlign=top><TD class=lang>KURDISH</TD><TD class=trad>Noela we pîroz be</TD></TR><TR vAlign=top><TD class=lang>LAO</TD><TD class=trad>souksan van Christmas</TD></TR><TR vAlign=top><TD class=lang>LATIN</TD><TD class=trad>felix dies Nativitatis</TD></TR><TR vAlign=top><TD class=lang>LATVIAN</TD><TD class=trad>priecīgus Ziemassvētkus</TD></TR><TR vAlign=top><TD class=lang>LIGURIAN</TD><TD class=trad>bun Denâ / bun Natâle</TD></TR><TR vAlign=top><TD class=lang>LITHUANIAN</TD><TD class=trad>su Kaledoms</TD></TR><TR vAlign=top><TD class=lang>LOW SAXON</TD><TD class=trad>vrolik Kersfees</TD></TR><TR vAlign=top><TD class=lang>LUXEMBOURGEOIS</TD><TD class=trad>schéi Chrëschtdeeg</TD></TR><TR vAlign=top><TD class=lang>MACEDONIAN</TD><TD class=trad>sreken Bozik</TD></TR><TR vAlign=top><TD class=lang>MALAGASY</TD><TD class=trad>tratry ny Krismasy / arahabaina tratry ny Krismasy / arahaba tratry ny Krismasy</TD></TR><TR vAlign=top><TD class=lang>MALAY</TD><TD class=trad>selamat hari natal</TD></TR><TR vAlign=top><TD class=lang>MALTESE</TD><TD class=trad>il-milied it-tajjeb / milied hieni</TD></TR><TR vAlign=top><TD class=lang>MANX</TD><TD class=trad>Nollick ghennal</TD></TR><TR vAlign=top><TD class=lang>MAORI</TD><TD class=trad>meri Kirihimete</TD></TR><TR vAlign=top><TD class=lang>NORWEGIAN</TD><TD class=trad>god jul</TD></TR><TR vAlign=top><TD class=lang>OCCITAN</TD><TD class=trad>bon Nadal</TD></TR><TR vAlign=top><TD class=lang>PERSIAN</TD><TD class=trad>eydet mobârak</TD></TR><TR vAlign=top><TD class=lang>POLISH</TD><TD class=trad>Wesołych Świąt</TD></TR><TR vAlign=top><TD class=lang>PORTUGUESE</TD><TD class=trad>feliz Natal</TD></TR><TR vAlign=top><TD class=lang>ROMANIAN</TD><TD class=trad>un Crăciun fericit</TD></TR><TR vAlign=top><TD class=lang>RUSSIAN</TD><TD class=trad>C Pождеством (S rojdestvom)</TD></TR><TR vAlign=top><TD class=lang>SAMOAN</TD><TD class=trad>ia manuia le Kerisimasi</TD></TR><TR vAlign=top><TD class=lang>SARDINIAN</TD><TD class=trad>bona pasca’e Nadale (logudorese) / bona paschixedda (campidanese)</TD></TR><TR vAlign=top><TD class=lang>SCOTTISH GAELIC</TD><TD class=trad>Nollaig chridheil</TD></TR><TR vAlign=top><TD class=lang>SERBIAN</TD><TD class=trad>srecan bozic</TD></TR><TR vAlign=top><TD class=lang>SHONA</TD><TD class=trad>krisimas yakanaka</TD></TR><TR vAlign=top><TD class=lang>SINDHI</TD><TD class=trad>Chrismas joon wadhayoon</TD></TR><TR vAlign=top><TD class=lang>SLOVAK</TD><TD class=trad>vesele vianoce</TD></TR><TR vAlign=top><TD class=lang>SLOVENIAN</TD><TD class=trad>vesel božič / vesele božične praznike</TD></TR><TR vAlign=top><TD class=lang>SOBOTA</TD><TD class=trad>dobro dedek</TD></TR><TR vAlign=top><TD class=lang>SPANISH</TD><TD class=trad>feliz Navidad</TD></TR><TR vAlign=top><TD class=lang>SWEDISH</TD><TD class=trad>god jul</TD></TR><TR vAlign=top><TD class=lang>TAGALOG</TD><TD class=trad>maligayang pasko</TD></TR><TR vAlign=top><TD class=lang>TAHITIAN</TD><TD class=trad>ia orana e te noera</TD></TR><TR vAlign=top><TD class=lang>THAI</TD><TD class=trad>สุขสันต์วันคริสตร์มาส (souksaan wan Christmas)</TD></TR><TR vAlign=top><TD class=lang>TURKISH</TD><TD class=trad>Noeliniz kutlu olsun</TD></TR><TR vAlign=top><TD class=lang>UDMURT</TD><TD class=trad>Shuldyr Ymuśton</TD></TR><TR vAlign=top><TD class=lang>UKRAINIAN</TD><TD class=trad>Z Rizdvom Hrystovym</TD></TR><TR vAlign=top><TD class=lang>VIETNAMESE</TD><TD class=trad>Mừng Chúa Giáng Sinh</TD></TR><TR vAlign=top><TD class=lang>WALOON ("betchfessîs" spelling)</TD><TD class=trad>djoyeus Noyé</TD></TR><TR vAlign=top><TD class=lang>WELSH</TD><TD class=trad>Nadolig llawen</TD></TR><TR vAlign=top><TD class=lang_footer>WEST INDIAN CREOLE</TD><TD class=trad_footer>jénwèl</TD></TR></TBODY></TABLE>
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Old 12-24-2007, 11:16 AM   #29
TriciaK
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Wow, Joe--what a fantastic greeting to us all! All I can add is my wish for a Merry Christmas and my prayers for the best possible new year ahead for each one of you of this great her2 website family. Hugs, Tricia

Last edited by TriciaK; 12-24-2007 at 11:16 AM.. Reason: change
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Old 12-24-2007, 02:00 PM   #30
Donna
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Seasons Greetings!

My son is home for the holidays and I am ecstatic! He got his first part in a professional theater and will earn points toward his equity card! He will be in "Cabaret" Feb-March in Long Beach California - would love to meet up with anyone in the area to go see it!

Happy Holidays to all no matter what celebration your faith leads you to! But most of all, HEALTH and LONG LIFE to all!

Love to you,

Donna
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Old 12-24-2007, 02:09 PM   #31
chrisy
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Merry, blessed Christmas to all of you wonderful sisters and brothers on this site. You are all family and I love you all and wish for all of us a peaceful, healthy and miraculous new year.

Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 12-24-2007, 03:52 PM   #32
Vanessa
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May everyone have a happy holiday season! I am also wishing everyone increased health and prosperity and a cure for this dreadful disease. May we never give up.
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Old 12-24-2007, 07:12 PM   #33
Gerri
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Wishing you all a very Merry Christmas and a new year filled with joy and good health!

God Bless us everyone!


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Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
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Old 12-24-2007, 07:45 PM   #34
Andrea Barnett Budin
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Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
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Wink



With love and
prayers for peace...
Andi

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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 12-24-2007, 08:48 PM   #35
Sherryg683
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Merry Christmas everyone. May the goodness of God shine on you all..sherryg
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Sherry

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 12-25-2007, 05:40 PM   #36
mslinda
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Merry Christmas

I wish all a Blessed Christmas, and that we all experience great health in 2008.

Linda
S. Mississippi
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Diagnosed 12/23/04
Biopsy 12/28/04
Lumpectomy 1/04/05
IDC, ER-PR-, HER2Neu+++
7mm tumor, Stage 1, Grade 3
6 CAF's
38 Rads
Finished 10/05

"Worry looks around. Sorry looks back. Faith looks up."
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Old 12-25-2007, 08:23 PM   #37
hutchibk
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Good health, joy and prosperity to everyone! You are all my heros.
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 12-25-2007, 09:01 PM   #38
BonnieR
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God bless us everyone!!

And Joe, thanks for the special message!
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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