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12-23-2006, 03:25 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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***12/24/01 was the launch of...***
HER2support.org
HAPPY 5 YEAR YEAR ANNIVERSARY!!!!
Joe and Christine,
Thank you is SO minimal for all that you've done/do. You haven't just CREATED a "support group", you gave birth to a whole NEW family, one that embraces each other in way's that only we can understand. May you and everyone this board touches have many years of good health and happiness. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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12-23-2006, 09:02 AM
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#2
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Thanks Rhonda for starting this. I feel I owe part of my 6 year survivial with IBC (the most aggressive and deadly form of bc) to you both. You have provided me with a wrealth of info, support friends from a far (as right now I have no one in my state) and it is inspiring to know I can call you for help anytime. I thank God and my sister in law (who gave me the article in the Family Circle) every day for this site. I would be lost without it. It is the first thing I do every morning, several times during the day and the last thing at night is check this site. It almost addicting but a good addiction. Wishing you both a very Blessed Christmas and a Happy Healthy New Year. Again thanks for all you do for us. Sending you a big hug for Christmas. Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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12-23-2006, 04:56 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Dear Christine and Joe,
You are the best and thank you for making this site. You have helped so many people. Thank you. Have a great Xmas and holidays. Best wishes for you and family in 2007.
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12-24-2006, 11:04 AM
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#4
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Member
Join Date: Oct 2006
Location: Victoria, BC - Canada
Posts: 21
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Happy Anniversary
Joe & Christine,
This site has been wonderful for me as I've searched the Internet for info and help.
THANK YOU.
__________________
Gayle
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Live Strong
IBC dx August 9/06
ER/PR +2
HER2/neu +
chemo August 11/06 - January 8/07
herceptin - 17 treatments, every 3 wks - end Jan 2008
IMRT rads 5 weeks
surgery May 1/07 bilateral mastectomy (left modified radical, right simple)
prophylactic bilateral salpingo-oophorectomy March 2008
letrozole, 2.5 mg daily, start June 2008
lymphedema, left arm, April 2008
osteoporosis, lower spine, August 2010 - fosamax 70 mg
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12-26-2006, 11:02 PM
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#5
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Senior Member
Join Date: Mar 2006
Location: Vancouver, Canada
Posts: 39
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Thanks so much for this site. It has been a huge source for information and insight into this wicked disease. I don't post often but still "lurk" regularly in the hopes that the ever so knowledgeable people on this site have something new to share. Thank you again!! And thank you for the IBC section!!
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12-31-2006, 07:44 PM
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#6
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Senior Member
Join Date: May 2006
Location: California
Posts: 668
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Thanks
I guess I should have replied to any message instead I started a thread, forgive me all, I goofed-off. Now, please read Happy New Year 2007 by me. 
(Addie)
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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