 |
|
09-22-2009, 03:02 PM
|
#41
|
|
Senior Member
Join Date: Oct 2005
Posts: 3,519
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Marie and Ed... God's arms are wide open and ready to receive. Peace and light and angels to surround you ~ that is my prayer.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
|
|
|
|
09-22-2009, 03:12 PM
|
#42
|
|
Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Marie, I ask our loving Lord for a peaceful release for Ed. Tell him the Lord is waiting with open healing arms to accept him. Let him know that the pain and suffering will be all over soon. Take care and God bless you both. (((Hugs)))
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
|
|
|
|
|
09-22-2009, 05:06 PM
|
#43
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Wrapping many arms around both of you as Ed completes his final journey.....such a difficult time for the one you love so much...may m,any angels be with both of you to help you through this!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
|
09-22-2009, 07:49 PM
|
#44
|
|
Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Marie, I am so sorry. You are such a loving caretaker, and up until a few weeks ago I was hoping for a miracle for you and Ed. All I can say is that to two of you are wonderful people, and I have only known you from this site. No words can describe the pain you must feel. Please know that my thoughts are continuously with you.
Fondly,
Barbara H.
|
|
|
|
|
09-23-2009, 07:14 AM
|
#45
|
|
Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Dear Marie,
I have not posted on here for a while - explanation in another posting.
I am so sorry to see that the end is near.
All I can say is that I hope that you remember all the good times and that he and you do not suffer too much longer.
I am so sorry to hear this....I'll be thinking and preying for the two of you.
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
|
|
|
|
|
09-23-2009, 09:14 AM
|
#46
|
|
Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Marie,
I mainly check the board to hear news of you and Ed.
I cannot convey how heartbreaking it is to watch you lose him. I know the you are suffering.
I can only add my prayers to the rest.
Love from San Diego,
'lizbeth
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
|
|
|
|
|
09-23-2009, 09:28 AM
|
#47
|
|
Senior Member
Join Date: Jun 2007
Location: Bergenfield, NJ
Posts: 121
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
My Dear Marie,
I am praying for a peaceful passing. I don't know what to say?
Please know that I'm here for you and Ed, even If I have to drive to RI.
Much Love,
Gemma
__________________
My love to you all
Gemma
____________________________________
Dx July03 at 35
Rt,breast lump.,1 node+
ER+(98%)ER-, grade3
A/C 4rounds,Rad for 38 days
Tamoxifen 2004-05
Recurrence Feb.2006, radi double mastectomy canceled bec. of mets, StageIV lungs mets
Her2+++, BRCA negative
Taxol/Herceptin six rounds of Taxol from April06.then Herceptin alone til May07. Started Tykerb/Xeloda in Jun07-Sept.07 bec of progression of the lympnodes. Navalbine/Herceptin Sept.07 to April 08 due to progression . Gemzar/Hercptin Apr08.June08 Brain MRI showed Brain Mets.CraniectomyAug.1,08, tumor removed completely
completed 20 wbrt!
Started Doxil 10/31/08 (monthly) and weekly Herceptin
Ixempra on 2/13/09
due to multiple hepatic mets
will have Herceptin as well.
Radical rt.breast Mastectomy June2009.
Ixempra/Herceptin 11/06/09--increasing right axillary lymphanenopathy and enlarging left upper lobe nodule :-(
Taxotere/Herceptin 3/5/10,more liver mets, lungs, lymphnodes. 2 weeks on, one week off...
|
|
|
|
|
09-23-2009, 11:10 AM
|
#48
|
|
Guest
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
((((((((((((((((((Marie))))))))))))))))
sending gentle hugs your way. Hoping God is ready to take your mighty oak into his loving hands.............
I'm here for you
Randi
|
|
|
|
|
09-23-2009, 11:25 AM
|
#49
|
|
Senior Member
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Dear Marie,
As 'lizbeth said-- I check these boards to see how you and Ed are coping.
May peace and love surround you both.
Love,
Dana
__________________
-Dana-
]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
|
|
|
|
|
09-23-2009, 11:48 AM
|
#50
|
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Marie, I pray neither of you will have to endure and suffer much more of this. I pray also for a peaceful passing for Ed and am thinking of you both.
((((hugs)))))
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
|
|
09-23-2009, 12:49 PM
|
#51
|
|
Senior Member
Join Date: Feb 2006
Posts: 1,014
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Sweet Marie, you are in my prayers and have always been. You have been such a good wife and caregiver and Ed was blessed to have you. It has been such a long battle for him, I pray that God gives both you and Ed peace. I was at my brothers side when he passed last year and I remember he kept going from what I call one side to the other, he had hardly no pulse the nurse said. He looked up at me and my sister and said "it's white"...I choose to believe he was seeing the white light that was leading him home. May Ed be guided home into Gods arm and be freed from this heavy burdened body he has had to live with. May you dear Marie find peace in knowing you were a blessing to him and may God give you the strength to go on with your life as I'm sure Ed would want...sherry
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
|
|
|
|
|
09-23-2009, 07:45 PM
|
#52
|
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
I don't even know what to say. It's like "writer's block", so I'm just going to ramble. I love you guys. My thoughts and prayers arre and have always been with you. This is one of the toughest things you will ever face, Marie, but you will face it and get through it. You are an amazingly strong woman, and Ed is so lucky to have you. You and Ed were brought together at the right place, at the right time. Everything happens for a reason, Ultimately Good, and it is part of God's plan that you and Ed are together, now, dealing what you are dealing with. Does it make sense? No. Is it easy? No. Will you be strong enough to deal with this? Yes. Will you eventually reach a place of understanding and peace? Yes. Marie, we are with you. You will always have our support and Love and prayers. Love, Bill
__________________
For Nicola
|
|
|
|
|
09-23-2009, 07:50 PM
|
#53
|
|
Senior Member
Join Date: Oct 2005
Posts: 476
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Anytime a member leaves us, we lose a part of us. Please find comfort and peace in your mind.
Ann
|
|
|
|
|
09-24-2009, 08:57 AM
|
#54
|
|
Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
We love you, Marie. We love you, Ed. You are such brave warriors. I'm proud to be beside you in this battle. I salute you. We've got our campfire blazing non stop. We all gather in a circle around it and the faces in the firelight show such love and solidarity, hope, fear and determination. Our angels hover over us, holding in the heat and keeping out the cold....we Believe.
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
|
|
|
|
|
09-24-2009, 02:34 PM
|
#55
|
|
Senior Member
Join Date: Jan 2008
Posts: 154
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Marie,
I've been waiting a few days before I made my post, trying to come up with the right things to say. It hurts me more than I can say to hear this happening, because you were one of the first ones to welcome me to the group when i was first diagnosed, and because Ed and I belong to this very rare group of people that aren't supposed to have bc. I don't think that a day has gone by since I first arrived that I haven't prayed very hard to God to please spare Ed and to watch over the both of you. I feel so helpless to hear that he is suffering like this, and it just isn't fair dammit that people have to suffer like this. I'll stop now before I start sounding bitter, which I always try not to do.
I just want you both to know that I love you dearly, and you both are always on my mind and in my prayers. Please pay attention to what Bill said. He said what I was going to try and say, but he is much better at words than I am.
May God bless you both,
Doug
__________________
Diagnosis and Treatment: DX 12/07/07
Male Diagnosed with DCIS at age 39
Mastectomy on right breast
Tumor Stage pt1b NO MO
DCIS Tumor size 1.5 x 1.x .6cm
Infiltration tumor size .25X.17 cm
Bloom-Richardson Grade 3(score 8)
Nuclear Grade 3 with comedo necrosis
Estrogen+/Progestrone+/HER-2/Neu +++
FISH ratio 4.31
Lymph node removal scheduled 1/07/08
17 nodes tested and all negative 1/08/08
Started Tamoxifin 1/29/08
Oncotype DX score 52 (off the charts, according to my onc!!!)
Starting TCH 3/14/08
BRCA I Positive BRCA II Negative
Finished TC 6/27/08 continue Herceptin
8/1/08 Herceptin stopped due to low Muga score
Mastectomy on left breast 11/10/08
|
|
|
|
|
09-24-2009, 07:42 PM
|
#56
|
|
Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Holding both of you in prayer.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
|
|
|
|
|
09-25-2009, 04:55 AM
|
#57
|
|
Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Darling Marie
I am praying for Ed and you. You are constantly in my thoughts. I am holding you close to my heart.
Peace and love to you
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
|
|
|
|
|
09-25-2009, 05:01 AM
|
#58
|
|
Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Marie,
Thinking and praying for you and the Mighty Oak this morning.
Amelia
|
|
|
|
|
09-25-2009, 05:08 AM
|
#59
|
|
Senior Member
Join Date: Jul 2008
Posts: 96
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Dearest Marie,
Praying for you and Ed and praying for strength from the Almighty, Praying that you will have peace of mind.
|
|
|
|
|
09-25-2009, 05:32 AM
|
#60
|
|
Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
|
Re: ~It Won't Be Long Now! Poor Mighty Oak!!~
Marie- You have brought this entire board closer than anyone else. Your strength has strengthened all of us. I know Ed has had your unrelenting support through all this and please know you have ours.
Warmly,
Maria
__________________
--------------
Dx'd 8/04 at 41
Stage 1 for some onc's; Stage II for others (if you add up the sizes of all tumors).
Infiltrating DCIS
HER2+, ER+10% & PR-
.9cm tumor not visible on mammo, but palpable; visible on ultrasound
Lumpectomy/ clear margins, no nodes
Had Breast MRI after lumpectomy that revealed two more tumors in same quadrant(.4cm and 1.6cm) that were not visible on either mammo or ultrasound.
Re-excision
DD AC+T; Herceptin one year
Rads
NED/Taking Tamoxifen reluctantly
--------------
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 04:37 PM.
|
Linear Mode
