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Old 06-13-2011, 06:01 PM   #1
Sheila
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Papillary Adenocarcinoma of the breast ANYONE???

Anyone have any info on this type of breast cancer...Dont have the tumor assay yet, but I have not heard of this type and am having a hard time getting info online. My youngest sister was diagnosed today with this type of breast cancer.....
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Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 06-13-2011, 09:07 PM   #2
ElaineM
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Wink Re: Papillary Adenocarcinoma of the breast ANYONE???

I never heard of it, but I want to offer some emotional support to your sister. You are a good role model for her too !! Tell her to hang in there and keep putting one foot in front of the other.
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Old 06-14-2011, 02:23 AM   #3
Chelee
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Re: Papillary Adenocarcinoma of the breast ANYONE???

Shelia,
It just never stops for you does it. I did a quick search and it looks like it's got a good prognosis. I found this on a page by the ACS. I just wanted it noted that I was told by someone that has transcribes medical records for yrs they use the word "Carcinoma & Adenocarcinoma interchangeable." So hopefully that applies here? Someone feel free to correct me if not?

>>Papillary carcinoma: The cells of these cancers tend to be arranged in small, finger-like projections when viewed under the microscope. These tumors can be separated into non-invasive and invasive types. Intraductal papillary carcinoma or papillary carcinoma in situ is non-invasive. It is often considered a subtype of ductal carcinoma in situ (DCIS), and is treated as such. In rare cases, the tumor is invasive, in which case it is treated like invasive ductal carcinoma, although the outlook is likely to be better. These cancers tend to be diagnosed in older women, and they make up no more than 1% or 2% of all breast cancers.<<

This was found on the Y-ME webside.

http://www.y-me.org/information/diagnosis/rare/papillary.php

Your sister sure has someone qualified to help guide her along when it comes to bc. I just wish she didn't have to deal with it at all. I sure hope everything turns out ok. Keep us updated.

Chelee
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Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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