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Old 12-01-2012, 04:06 AM   #1
Paula O
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Join Date: Jul 2011
Posts: 954
Has everybody signed this petition AND passed it along?
Subject: FDA Blocks Life-Saving Drug, Herceptin T DM-1
Hi,
Her2 Breast Cancer patients suffer from one of the most aggressive breast cancers. Herceptin T DM-1 is a revolutionary drug that has shown great results.It has been successfully tested in humans for over 4 years. Yet last Sept. 1, 2010 this FDA decided to block approval, and run more trials , until 2013 ! The drug it is being tested against has been shown already to have many more side effects to the patient and a lower quality of life. Why are they making Stage 4 patients wait, and suffer more ???
That's why I signed a petition to Dr. Kathleen Sebelius, Secretary of Health and Human Services.
Will you sign this petition? Click here:
http://signon.org/sign/fda-blocks-li...p&r_by=6302511
Thanks!
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Old 12-04-2012, 11:14 AM   #2
fullofbeans
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Join Date: Jan 2007
Location: UK
Posts: 617
Re: Has everybody signed this petition AND passed it along?
Done and bumping it up
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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Old 12-04-2012, 11:34 AM   #3
Kellennea
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Join Date: Sep 2011
Location: Mt. Prospect, IL
Posts: 177
Re: Has everybody signed this petition AND passed it along?
Also signed!
__________________
10/01/10 - Dx at age 44. Found lump after miscarrying & was told it was "probably a clogged milk duct" not so much:
stage II - invasive ductal carcinoma ER/PR+ HER2+
10/01/10 - BRCA test - Negative
11/3/10 -2.5cm tumor removed via lumpectomy, clear margins. sentinal node biopsy - nodes clear!
12/2/10 - port placement
12/2/10 to 3/17/11 - 6 rounds of taxotere, carboplatin & herceptin every 3rd week.
04/20/11 - 6/6/11 - 33 rounds of radiation
4/6/11 to 11/2/11 - 11 additional rounds of herceptin every 3rd week
7/15/11 - port removal
7/5/11 started my 5 year journey on Tamoxifen
9/4/11 -1 yr Chest MRI - CLEAN!!!!
9/5/12 -2 yr Chest MRI - CLEAN!!!!
8/29/12 - Started spotting after being in chemopause 1.5 years. Ultra sound detected 6cm ovary mass & very thick lining. YIKES! Taken off Tamoxifen
9/6/12 - Full abdominal hysterectomy. Pathology report came back clean... thank you baby Jesus!!
9/28/12 - Started Anastrozole
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