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Old 10-23-2006, 11:01 AM   #1
RobinP
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BC movie tonight on Lifetime

Thought some may enjoy this movie tonight on Lifetime, Oct. 23rd at 9pm called WHY I WORE LIPSTICK TO MY
MASTECTOMY which is about a 27 year old. Here's the link for it .
http://www.lifetimetv.com/movies/ori...relipstick.php
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2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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Old 10-23-2006, 05:41 PM   #2
Sheila
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Robin

I plan on watching...even if I have to prop my eyes open...I read the book and it was great!
THanks for the reminder.
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 10-23-2006, 08:35 PM   #3
rinaina
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watched it and would like to now read the book. does anyone know what year it was that she was diagnosed? i thought it was about 10 years ago. encouraging that she is doing well. she was so young as are many here.
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Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 10-23-2006, 08:48 PM   #4
Sandy H
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I just watched it and really enjoyed it. She was beautiful! Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 10-23-2006, 09:13 PM   #5
sadie
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Just watched it. It was so uplifting. Finally a story that did not totally glamorize the situation. I was able to relate to several of her emotions. She even broke down crying during some of the same times that I found difficult to handle.
I even thought of this support group during the movie.
You were/are my "angels" when I couldn't find anyone in my situation.
ALMOST makes me want to go out and get a tattoo! lol
Bless you all.
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Dx Oct 2005 IDC
Lumpectomy
1cm / Stage 1 / grade 3
Sentinel node neg
Her2+++
ER+ / PR weakly+
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Old 10-24-2006, 03:32 AM   #6
KellyA
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Made me think differently!

I just watched the movie and loved it! It was realistic, yet very positive. It also made me think about something. I've had the "first stage" of reconstruction done and the implants are in. Now I am waiting on the nipple construction. You know, this sounds silly, but it never occured to me that I might not want to get nipples. I've just been going along with the plan. She was right- they are only there for me and my hubby- The tatoo idea was so great- don't know if I would do it or not- but a great idea!

The movie airs again on Sat. night at 9pm-

KellyA
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Old 10-24-2006, 03:47 AM   #7
Mary Jo
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I loved the movie as well. Being 16 months out of diagnosis it brought the feelings right to the forefront as she went through diagnosis etc. However, saying that, the movie wasn't depressing either. It was realistic, yet she handled it with a sense of grace, dignity and sense of humor.

Thanks for the recommendation.

Mary Jo
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 10-24-2006, 06:06 AM   #8
momdeeco
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I loved the movie also. We do have so many "angels" in our lives. Funny thing...my daughter and I have talked about tatoos, and had already planned a mom-daughter lunch, then tatoo shopping today!!!!!
Karla
PHIL 4:13
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Old 10-24-2006, 08:21 AM   #9
RobinP
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This movie hit too close to home for me and was a bit emotional so I didn't finish watching it. It airs again this weekend to those who missed it.
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2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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Old 10-24-2006, 08:42 AM   #10
cherylynnie
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Smile why I wore lipstick

I happened to watch The View yesterday and they had the author on and the actress who played her. I tivoed it because I didn't think I could stay up that late, but I stayed up and watched it. Many of the emotions that she and her husband had occured in my house as well. My husband was watching Monday night football but I told him I want him to watch this movie as well.

When I was first dx there was a radiology tech. that I called my angel, because he was so kind and caring. So when she referred to diferent people as angels it all seemed so real to me. Also any one that helped me in some way received an angel from me, the willow tree ones.

It has been 13 months since dx but as we all now it is so fresh. Many times tears just streamed down my face. It was a great movie on Lifetime, now I am going to go get the book.
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Stage II, Grade III, ER+/PR-, Her2 3.0 amplified, N 0/5, dx 9/05, 39 yrs
Right Mastectomy, immediate tram flap reconstruction
4 AC, 4 Taxotere finished 3/15/06
Currently on Herceptin and Tamoxifen
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Old 10-24-2006, 08:42 AM   #11
cherylynnie
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Smile why I wore lipstick

I happened to watch The View yesterday and they had the author on and the actress who played her. I tivoed it because I didn't think I could stay up that late, but I stayed up and watched it. Many of the emotions that she and her husband had occured in my house as well. My husband was watching Monday night football but I told him I want him to watch this movie as well.

When I was first dx there was a radiology tech. that I called my angel, because he was so kind and caring. So when she referred to diferent people as angels it all seemed so real to me. Also any one that helped me in some way received an angel from me, the willow tree ones.

It has been 13 months since dx but as we all now it is so fresh. Many times tears just streamed down my face. It was a great movie on Lifetime, now I am going to go get the book.
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Cheryl
Stage II, Grade III, ER+/PR-, Her2 3.0 amplified, N 0/5, dx 9/05, 39 yrs
Right Mastectomy, immediate tram flap reconstruction
4 AC, 4 Taxotere finished 3/15/06
Currently on Herceptin and Tamoxifen
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Old 10-24-2006, 11:21 AM   #12
Sheila
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I have had the reconstruction for 3 years, and have never gone back for nipple reconstruction...I always wanted to do the tattoo thing too...so I loved when I saw that in the movie...I wanted a smiley face or a dream catcher...my husband and family think I'm nuts.....but after all, its my fake breast....I should pick what I like. If I get brave enough to do it, I'll post the tattoo.
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 10-24-2006, 09:00 PM   #13
Bev
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I could relate to how everything is our decision even if we know squat about medicine. I'm trying to correct that now. BB
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Old 10-24-2006, 09:55 PM   #14
Lani
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The reason the choice is yours...

is because they don't really know the right answer

With so many unknowns, it becomes a risk/benefit choice which everyone feels differently about.

They radiate many more than a dozen people unnecessarily to prevent 1 recurrence
(and even if an occurence takes place, it doesn't increase the chance of distal metastasis or survival)

For those who are not triple negative or her2+, they give a lot of chemotherapy when the vast majority do not need it and do not benefit from it. Should the doctors be the ones deciding the acceptable ratio of unnecessarily treated patients(in whom they could cause a second cancer with the treatment) to one patient benefiting?

Once breast cancer starts to be treated as separate diseases they may be able to quote better statistics and find better tailormade treatments (hopefully more targetted and less toxic) and their and your decision will become easier

It is scary to realize they don't know all the answers--but if that is true, your opinion/ wishes carries/carry all that much more weight!

I am tryiing to help an 84 year old her2+ breast cancer patient get information to help her decide whether, at her age, to have radiation therapy. They don't do prospective randomized trial for people in her age group (too many would die of other causes before results could be tabulated), rather they "mine" Medicare data (unfortunately medical records/billings are not always accurate) to see how people do.

The question is for an improvement of a few percent in local recurrence, what chance of fatigue (which might be debilitating in an 84 year old) would one risk? Only the person knows how tired they are, how much fatigue might impact their quality of life, how it might be psychologically to have to have another lumpectomy or a mastectomy if it recurred, etc.

Would you want a doctor deciding this for you when you are 84? The articles are there, the information (as it is/that there is) is there--I even found one for rate of recurrence with lumpectomy plus radiation therapy in patients over 70 that are her2+. I hope she has the inner strength to make the decision herself as I doubt a doctor could make the decision any better than she can.
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Old 10-25-2006, 04:37 AM   #15
IRENE FROM TAMPA
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I Watched

and thought the movie was great. That actress did a wonderful job. I want to watch it again if it's on this week-end.

What I thought was very SCARY was the fact that her DOCTOR did not detect the lumps and she had to bring it to her attention. Thank goodness she did not let it go like some people might do when they hear, everything looks ok. This reinforces the fact that we have to be adament about our own health care.

Early detection could make that big difference. I will tell my daughters to watch this time if it's on again.
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Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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Old 10-25-2006, 04:45 AM   #16
tousled1
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I agree with Lani and Irene. You must be diligent about self breast exams and you are the one that must make the final decision regarding your treatment plan. Hopefully, women who do not have breast cancer and watched the movie will become more aware of what they must be doing.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 10-25-2006, 06:47 AM   #17
RobinP
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Sheila, I'll have to watch the end of the movie to see the tatoo. I never finished that part of my reconstruction, but maybe I'll get it sometime.
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Old 10-25-2006, 11:45 AM   #18
SusanV
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Loved the movie...I even made my husband watch it instead of Monday night Football. I related sooo much to all of it, the emotions, the fear and the uncertainty.
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Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
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Old 10-27-2006, 05:53 PM   #19
Liz J.
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Hi all, I am not much of a TV watcher but I had to check this out. It was very well done and we can all relate in some way or another. I don't mean to knit pick but unless I am going crazy I could not help but notice her getting her first chemo on the right side. If I had never had a mast. I would not know you are not supposed to get anything done on the affected arm if you have a good arm. OK, I know I am pushing it but I couldn't help but notice. I guess I can't help myself. All in all the movie was very well done.

All the best.

Liz J.
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Old 10-27-2006, 08:07 PM   #20
Bev
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I guess my issue is that as a novice you receive a diagnosis and need to make a decision in a week or two. You really have no clue. After 1.5 years I'm begining to understand the bigger picture. As time is of the essence you just go with what is reccomended rather than a careful analysis of options. BB
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