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Old 09-30-2009, 03:26 PM   #1
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Who else has a Power Port?

I went for port placement yesterday and I thought I was getting the smaller Bard port. The interventional radiologist put a Power Port in. I told him I heard they were large & didn't want one. He said he had two sizes and the one he put in was the smaller of the two. So he put it in regardless of what I wanted...he said that was the best option for my anatomy. (Gee thanks for letting me have a say in this.) When I got home I'm reading this little "Patient Guide" that came with it and it mentions that you can have MRI's BUT
goes on to say that the device can be scanned under the following conditions. Then it goes into technical stuff. Adjustments, etc.

It even mentions how the MR image quality can be compromised if the area of interest is in the same area that's close to the device. That they will have to optimize MR imaging parameters for the presence of this metallic implant. That bothers me since he placed right below my left collarbone and ran the tubing up over my collarbone into my jugular vein. It feels absolutely awful. It's very uncomfortable and hurts today.

So for any of you that have a Power Point does it affect your MRI's? That's an important area IMO to have scanned for cancer since it goes to nodes in the clavicle, neck & chest areas. Also does anyone else here have their port tubing running over their collarbone into their jugular like this? I don't like this idea at all...I'm worried about kinks and clots now. I had mine in my arm before so this is entirely different to me...maybe this is the normal place for them? Any feedback you have on those two issues would be appreciated.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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