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05-08-2010, 06:56 AM
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#1
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Senior Member
Join Date: Oct 2008
Location: Detroit, MI
Posts: 205
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News story. Must have been a slow news day...lol...just kidding
Hi all-
I wanted to share the news story about me that was on our local NBC affiliate, WDIV Channel 4 last night: http://www.clickondetroit.com/video/23491496/index.html
It feels kinda narcissistic sharing this but I wanted you to see it.
They filmed for an hour…and 56 minutes ended on the copy room floor. My son Oscar kept picking his nose. LOL
The hook of the story was supposed to be about “how I am helping other moms (and dads and sisters and brothers)” and about representing HER2Support.org on my trip to Washington DC next week for the Department of Defense Congressional Review Board on breast cancer…but they never mentioned it. They also never put my blog link out there. Oh well...it is a video I will cherish and the people that came to film us were so kind.
My very best to you all! You are all always in my thoughts and prayers.
p.s. They also didn’t show when I thanked you all…my army of supporters. So let me now thank you again…so very much! I couldn’t have gotten this far without you!
__________________
Maureen
My loves
IDC & DCIS, HER2+++ Diagnosis: October 1, 2008 - Tumor: 6.8 centimeters, never showed on mammograms
- ER-/PR-
- November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
- Stage IIIc
- Lapatinib Clinical Trial start: November, 2008
- Surgery: May 5, 2009
- Started Herceptin: May 19, 2009
- Started Radiation (33 rounds): June 10, 2009
- September 2009: Moved to Michigan to be closer to family
- 12/09 - still on Herceptin until May 2010
- August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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05-08-2010, 09:38 AM
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#2
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Senior Member
Join Date: May 2009
Posts: 510
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Re: News story. Must have been a slow news day...lol...just kidding
Beautiful, beautiful, beautiful!!! I'm in tears right now. Happy Mother's Day to you and all moms and grandmas affected by Breast Cancer. May we see the end of this disease soon!
Thanks for posting the link and good luck with your fundraiser!!!
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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05-08-2010, 09:46 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Re: News story. Must have been a slow news day...lol...just kidding
How wonderful Maureen. Happy Mother's Day
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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05-08-2010, 11:16 AM
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#4
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: News story. Must have been a slow news day...lol...just kidding
Oh Maureen, the video was incredible! I've followed your blog for a long time now, and am always wishing you well. Thank you so much for allowing us to see it. Your children are beautiful, and you look terrific. Happy Mothers' Day!
Barb A.
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05-08-2010, 12:22 PM
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#5
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Senior Member
Join Date: Jun 2009
Location: Los Angeles, CA
Posts: 309
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Re: News story. Must have been a slow news day...lol...just kidding
FABULOUS MAUREEN!!!! such beautiful children you have--
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED
12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line
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05-08-2010, 02:46 PM
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#6
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Re: News story. Must have been a slow news day...lol...just kidding
You go girl, happy Mothers Day and good luck with
your walk. Great video.
pab
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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05-08-2010, 04:07 PM
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#7
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Senior Member
Join Date: Sep 2009
Location: Kensington, CT
Posts: 394
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Re: News story. Must have been a slow news day...lol...just kidding
Maureen,
What a beautiful story. Happy Mothers day and many, many, many, many, many.................................more....
Kris....
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found
Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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05-09-2010, 07:00 AM
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#8
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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Re: News story. Must have been a slow news day...lol...just kidding
Maureen,
Thank you for sharing the link. They may not have gotten everything you wanted but it is wonderful. And yes I had tears and goose bumps.
Your sisters are so proud of you and all you are doing to find a cure. Good luck in DC.
Love your curls!
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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05-09-2010, 05:36 PM
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#9
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Re: News story. Must have been a slow news day...lol...just kidding
Maureen,
Great video and great message. We are so proud of you, you have such a great hear. Good luck in DC and Happy MotherĀ“s Day!!!
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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05-09-2010, 05:59 PM
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#10
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: News story. Must have been a slow news day...lol...just kidding
Marueen,
Your story is so moving and beautiful like you and your children. I am always amazed at how such an ugly disease like breast cancer - brings out such beauty in people. You are amazing!
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-10-2010, 07:05 PM
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#11
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: News story. Must have been a slow news day...lol...just kidding
Maureen,
Loved it! LOVED IT! LOVED IT!!!!!!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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05-10-2010, 07:57 PM
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#12
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Member
Join Date: May 2010
Posts: 13
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Re: News story. Must have been a slow news day...lol...just kidding
Maureen,
Happy last day of chemo!! Thank you so much for sharing your video. Yours is an incredible story. Your children are so lucky to have such a caring mom with an indomitable spirit!
Nance
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05-10-2010, 09:34 PM
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#13
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Senior Member
Join Date: Jul 2006
Posts: 869
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Re: News story. Must have been a slow news day...lol...just kidding
Maureen, What a wonderful story and great service you give to others....wish you the best! Hey, I am a local Dearborn gal, don't know how I missed this terrific news report!! Ceesun
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05-11-2010, 04:12 PM
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#14
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Re: News story. Must have been a slow news day...lol...just kidding
Hi Maureen,
That is such a beautiful story... and you and your children are also so beautiful. It seems like you squeezed a great deal of information into a short time and you hit so many great points.
Thank you for sharing!
Carolyn
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05-11-2010, 05:38 PM
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#15
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Senior Member
Join Date: Aug 2009
Location: Moultrie, GA
Posts: 431
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Re: News story. Must have been a slow news day...lol...just kidding
Thank you for sharing this heart touching story. You will indeed be a fantastic representative for the rest of us when you serve on the panel. Good luck to you!
Thanks,
Sandra
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
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05-12-2010, 09:01 AM
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#16
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Senior Member
Join Date: Jun 2009
Location: Hunterdon Cty, New Jersey
Posts: 51
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Re: News story. Must have been a slow news day...lol...just kidding
"Inspirational" can be an overused word and the true meaning can get watered down, but INSPIRATIONAL truly applies to you! Thank you so much for all you do for the fight FOR ALL OF US!!! You have a beautiful family.
__________________
2009
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
2010
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
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05-13-2010, 06:05 AM
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#17
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Re: News story. Must have been a slow news day...lol...just kidding
What a tribute to you and your family! You are a role model for young Moms faced with this obstacle called cancer....this story brought tears to my eyes and joy to my heart!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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