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04-03-2010, 09:24 PM
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#1
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Senior Member
Join Date: May 2006
Posts: 3,142
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Happy Easter Everyone !!
Aloha,
Peace, Joy and good health to everyone this Easter and forever. Happy Spring !!
ElaineM
Last edited by ElaineM; 04-03-2010 at 09:25 PM..
Reason: addition
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04-03-2010, 11:04 PM
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#2
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Re: Happy Easter Everyone !!
Happy Easter everyone. I'm so grateful to our Lord for eternal life.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
Last edited by Faith in Him; 04-04-2010 at 08:18 AM..
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04-04-2010, 06:01 AM
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#3
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: Happy Easter Everyone !!
Sending along my best wishes for a blessed Easter too.
Barb A.
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04-04-2010, 06:47 AM
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#4
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Senior Member
Join Date: May 2009
Posts: 510
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Re: Happy Easter Everyone !!
Feliz Pascoa!!!
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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04-04-2010, 08:02 AM
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#5
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Happy Easter Everyone !!
Happy Easter. I pray that this next year will see the eradication of breast cancer and give the scientists the answers they need to cure us all.
I really hope God is listening today
Love Ellie
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04-04-2010, 10:03 AM
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#6
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Happy Easter Everyone !!
Amen, Ellie.
Peace and love to everyone in the meantime.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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04-04-2010, 04:06 PM
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#7
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Happy Easter Everyone !!
復活節快樂!
One of my early memories was getting the painted egg from the small 'mission' church in our neighborhood. The Chinese consider chicken eggs greatest nutrition source. Boiled eggs with shells colored in red are traditionally given to neighbors, friends and relatives to announce a new born.
Forty, fifty years ago, eggs were not mass produced in Taiwan. So it was a big deal when children brought home free eggs...
And for an old culture that believes firmly in 'cause-effect', a 'free' gift does stir people's soul and makes them wonder...
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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04-04-2010, 05:14 PM
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#8
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Happy Easter Everyone !!
I'd like to also wish everyone here a VERY HAPPY EASTER.
Ditto that one Ellie! I know we all want that...except if they found a cure tomorrow that would be ok with me too.  You can't tell I'm in a big hurry can you. lol
I had an exciting Easter already...we just had a 7.2 magnitude earthquake. I had just finished taking a shower and was trying to part my hair and I felt funny...kind of dizzy. I felt weird and for a minute thought oh no I have brain mets. I held on to the sink and realized it was a very slow moving earthquake. I've never felt one quite like that one. It kept moving for a good 35 or 40 minutes. Water was being thrown out of my pool. My dogs started barking...oh boy...what a day. I hope everyone else had a less eventful day. I'm sure Joe & Christine felt it...it was a doozy.
Enjoy!
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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04-04-2010, 06:11 PM
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#9
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Member
Join Date: Apr 2010
Posts: 5
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Re: Happy Easter Everyone !!
Happy Easter
I'm a brand new member and not sure how to navigate for the best support.
I was diagnosed with invasive ductile breast ca in March and had a lumpectomy and right axillary dissection with 4 of 26 nodes positive. I have a oncotype recurrence score of 63, Stage 3 , ER + and PR negative and HER 2 + cancer. I just started last week on chemo with CAF and will continue every 3 weeks for 4 treatments and then I'll start taxol? with Herceptin for total of 52 weeks and 12 of Taxol. During the 52 I'll have radiation.
I have already been totally flattened by fatigue and seeing "stars" when I stand up. Anyone have a similar diagnosis or someone with whom I could relate? I'm feeling isolated and obviously scared.
Thanks
Mary
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04-04-2010, 06:35 PM
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#10
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Happy Easter Everyone !!
Hi Maryr, I'm sorry you had to join our club that no one wants to join. But you did find the best board for support and information on Her2/neu.
As far as using this board your off to a great start. What you will want to do is start a "new" thread so that people can help you out with your questions. So when you log on the "Her2group" forum--look up to the top of the board towards the left side and you will see in blue a button to click on that says "New Thread". Once you click on that your all set...just type in your question and then you will get replies. Your new Her2 sisters will be more then glad to help you.
I hope I explained well enough how to start a new thread? I may of just confused you...hope not. If I did just holler and I will copy your post and start a new thread for you. But please stick around and let us help you out. This is a great group of women and men.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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04-04-2010, 07:39 PM
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#11
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Member
Join Date: Apr 2010
Posts: 5
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Re: Happy Easter Everyone !!
Thank you so much Chelee.
I greatly appreciate you.
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