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Old 07-16-2007, 07:41 PM   #1
Stephanie
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Tykerb and Medicare

I have a question for my mom, who will be going on Tykerb just a soon as we can get some. The onc office was dealing with Medicare and her supplemental insurance on this today, and my question is--have your insurances been treating Tykerb as a prescription drug with a copay (like an antibiotic) or as a chemo, with whatever percentage you usually pay for chemo or herceptin?

We had this problem when she started on Xeloda--Medicare was treating it as a prescription, and her secondary insurance was charging a horrendous copay. We got that reimbursed and straightened around, and now we're having the same problem with the Tykerb--they want to charge her a prescription copay for it. It seems to me that the Tykerb should fall in the same category as the Xeloda, and be covered like chemo and herceptin are covered.

Any input is greatly appreciated! Thanks in advance.
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Old 07-17-2007, 02:11 PM   #2
Lolly
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Stephanie,

I had the same problem and when I contacted my insurance provider was told the problem is with Medicare's billing code for Tykerb, and the insurance providers have no control over how the government codes Tykerb.

Xeloda was a reasonable co-pay, but Tykerb is viewed as a "specialty drug" which puts it into a different class. I was advised to take it up with Medicare, which I haven't had time to do yet. However, the light at the end of the tunnel is that after 3 months of high, high co-pay's I finally reached my maximum annual out-of-pocket amount and it's now appx. $170 a month.

Thanks to Christine's heads up, I just participated in GSK's teleconference regarding the news release on food/Tykerb interaction(GSK's advice is follow the FDA approved use, which is "on an empty stomach"), and I asked the GSK moderator about this issue of Medicare/Tykerb. She said GSK is well aware of the difficulty for patients, although GSK can't effect a change in Medicare's policy. They advise patients who face a high co-pay to get in touch with:

"TykerbCares"
http://www.tykerb.com/tykerbcares.html

and they will guide you through the Patient Assistance process for financial assistance with the cost.

Hope this helps, let me know if I need to clarify.

<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 07-17-2007, 06:46 PM   #3
Stephanie
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Thank you, Lolly, I really appreciate the info. I will pass it along to my mom.

Regards,
Stephanie
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Old 07-18-2007, 11:10 AM   #4
hutchibk
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From what I understand, GSK Access/Tykerb Cares program will carry you through the donut hole on medicare Part D...
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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