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Old 01-07-2011, 05:14 AM   #1
Pam P
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Join Date: Sep 2005
Location: MN
Posts: 731
update on my progress

Big doctor day yesterday. First my oncologist, then my ortho surgeon.

Onc. had my pet/ct scan report. Stable for the most part; bone mets same or slightly improved from Sept. scan. New on pet/ct (but also appeared on Sept. CT scan} small nodules in left lung low metabolic suv and non- specific. Onc. says not identified as cancer, but this is new and has me worried. My hemoglobin is holding at 9.9 since the transfusion which is good for me. My ca2729 has shot up another 1000 pts and is now 3900!!!!! That has my onc. nervous even though the scan report was pretty good. He wants to switch me to something stronger that tykerb with the herceptin. He mentioned abraxane or halaven. Reading Sheila's good results with halaven, I' like to try that. I won't start a new chemo though for another month or so to let me heal more from the surgery and get started or maybe even finished with radiation, I do have to have radiation on my femur and have a consult with that onc, next Wed.
I told the onc. about the blood in the stool tests being positive at rehab. He wants me just to repeat them now to see if it has cleared up. So I have my little collection supplies. Yuck.


My ortho surgeon had xrays taken and said the hardware in my leg looks good. He took out my staples and said things look to be healing well. No restrictions - do things as I feel comfortable. I have a huge hematoma the size of a softball sticking out on my hip. he said not to worry about it, it will dissolve gradually; should look much better in a week. Said to not start getting radiation treatments for 2 more weeks.

So overall good news I guess. I'm feeling in kind of a funk though- tired, blah,. Onc. said it's probably still from the surgery. Ortho didn't agree; said my energy should be back to normal now from surgery and tired feeling could be something else. I don't know if i'm a little depressed from being so homebound for these last 3 weeks. Maybe if I can get out of the house a little and back to 'normal' routine I'll feel better. That's what I'm going to try even though I don't feel like doing anything. Wah, wah, wah,

Thanks for listening and for all of your support and good wishes during my surgery and healing. Love you all. Pam
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Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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