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Old 04-25-2013, 06:38 PM   #1
KG1993
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steroids and muscle weakness

anyone else who has been on steroids for swelling end up with muscle weakness and confusion?

mom had MRI all good. had spinal tap, everything clear. STILL little confused at times and having difficulty walking with the same leg that she had problems with when she was diagnosed with left frontal lobe tumor. gamma knife was done in feb. could the symptoms be from the tumor healing? starting physical therapy tomorrow.

Kim
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Old 04-25-2013, 08:50 PM   #2
NEDenise
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Re: steroids and muscle weakness

Oh hunny!
Muscle weakness is my middle name! If I get any slower on the stairs...I'm going to have to give up on them entirely!

The docs assure me that this too shall pass. I can't wait!
Tell your mom to hang in there.
Thinking of you both
Denise
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1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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Old 04-26-2013, 03:17 PM   #3
KsGal
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Re: steroids and muscle weakness

Yes mam. I definitely have the muscle weakness from the steroids. Im 44 years old, and if I got down on the floor for something, I had to crawl over to a table to get back up. I think the confusion may be from the whole brain radiation tho. I supposedly have problems with my short term memory and cognitive abilities, although I really only agree with the short term memory part. They told me to make sure I exercise every day to keep my muscles from melting from the steroids, so I was riding a stationary bike. Started at 30 minutes a day, and ended up at the end where I could barely do 10. It does get better. I have been off steroids a few weeks now, and I do notice a difference. Hang in there. Hugs and prayers to you and your mom.
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Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
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April 2015 remain NED
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Old 04-27-2013, 07:31 PM   #4
dearjilly
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Re: steroids and muscle weakness

YEP!! Me too! I was on dex in Oct., and I couldn't lift my leg up a stair the pain was so bad. I'm 33, but felt 93.
I'm back on the dex, and I have muscle weakness again.
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[
Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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Old 04-29-2013, 10:40 PM   #5
KsGal
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Re: steroids and muscle weakness

See, she isn't alone. My nurse told me it can take 3-5 months after you get completely off the steroids to begin to feel like yourself again. Ugh. Big hugs to you.
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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