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Old 11-12-2014, 06:30 AM   #1
LaDonna28
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Join Date: Aug 2014
Posts: 78
Has anyone skipped last TCPH treatment?

I have been having a real rough time with the chemo, especially the last two treatments. My vision is messed up (and was told that may be permanent) and I have facial twitches, I am also getting neuropathy pain in my arms/hands feet regularly. (I get a lot of SE,but these are the worst)
When I saw the breast surgeon AND the oncologist, neither could feel any of the tumor at all (originally was 2 cm) and they are both pretty positive that it never ended up in the nodes to begin with based on the MRI and their palpitations. I was going to go with lumpectomy/radiation based on this info, but am so dreading anymore chemo and the SE.
Has anyone skipped a TCPH treatment without having any repercussions? Are you still NED?
I so appreciate the feedback.
__________________
Steriactic biopsy July 2011 for microcalicificarions - negative
Mammogram 2012, 2013 no change
Mammogram July 8, 2014, more microcalcifications and mass (10mm per radiologist)
Diagnostic Mammogram July 10, 2014
Steriactic Biopsy July 15, 2014
July 21 given diagnosis DCIS and IDC upper, Outer quadrant of right breast
ER Pos >95%. PR Pos 90%, HER-2-neu positive (score +3) Grade 3
Breast surgeon on July 29, 2014 says 2 cm
MRI states only mild to moderate bilateral physiologic background parenchymal enhancement with uptake on intermammary nodes
BRCA tests all negative :)
August 8 port placement. Lung partially collapsed. On oxygen until further notice
August 9, '14 started TCPH therapy with nuelasta shots. 6 cycles @ 3 weeks
5th treatment T and C dosages lowered due to bad neuropathy
6th and last TCPH changed to PH only for Dec 1st
Lumpectomy and node biopsy Dec 2
100% complete response from TCPH neoadjuvent therapy: tumor completely gone-dead cells only. Node completely free of ANY cells. Staged at 0! Margins clear from 4mm-10mm from dead cells.
2 week period following surgery went in for draining of Hematoma that filled surgery void area in breast 3 times
Continued with Herceptin only December 22, 2014 @ 3 weeks until ???
Started radiation Jan. 7, 2015 plan is for 16-20 rads
january 25th 2015 last radiation completed. Stopped at 16 due to Seroma (void in breast is filled with fluid)
January 30 Tamoxifan started
Still on oxygen, tamoxifen side effects kicking my butt. Seeing a gastro dr. due to a lot of stomach issues.
July 2015 - 3D mammogram nervous as all hell - but came back clean!!!! YEAAH
March 2016 - only using oxygen at night! Stomach issues better and trying to wean off the heartburn meds. Am hoping to get reconstructive done Jan 2017.
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Old 11-12-2014, 12:34 PM   #2
supportwife
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Join Date: Oct 2014
Posts: 49
Re: Has anyone skipped last TCPH treatment?

My wife's 6th taxotere treatment was cancelled due to neuropathy. I think it all depends on what dose you get.
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Old 11-12-2014, 06:36 PM   #3
carlatte7
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Join Date: Jun 2012
Posts: 129
Re: Has anyone skipped last TCPH treatment?

My onco cancelled my last two TcH b/c of a "pathological complete response" which was confirmed with surgery. Still NED.
__________________
Age 54, married farm wife/school nurse/mom of 5 adult children...March 2012- found 2.5cm hard, non-painful mass on bse. It was not there, and then it was. Yikes.
Biopsy- DCIS, IDC, er-/pr-/her2+++, grade3. 1 node suspicious on us. Biopsy +.
Plan was for Neoadjuvant TCH x6, Herceptin q3w x a year.
May1- first chemo.
May 5- I could no longer feel the mass. Really. Neither could my oncologist.
July 2- 4th TCH- Oncologist cancels last 2 tx due to "complete response"
August6- lumpectomy with axillary node dissection. No disease present in breast. 1 out of 14 nodes + (4mm)
MUGA #2- 72%
Finished 30 rads Oct '12. Mild lymphedema noticed when I had 2 rads left.
Continue Herceptin q3w until next May
April '13- first mammo since surgery- calcium deposits that are " not concerning." Well, they are concerning to ME! Turned loose from surgeon for 6 months! One more Vit H, will make plans then for port removal.
Oct '13- no change in calcium deposits. "See ya in 6 months!" Keeping port for now.
March '14- oncologist says return in 6 mo.
April '14- mammo unchanged. Surgeon will see me in 6 months but no mammo for a year unless something changes. Its getting easier, but oh, boydo i hate that scanxiety! Keeping port until 2 year anniversary of last Herceptin.
Sept'14- bloodwork good, return to onco in 8 months.
Oct'14- surgeon will see me in April '15. Moving on.
May '15- mammo unchanged, keeping same schedule. Tumor markers soon and if all is well port comes out.
July '15-tumor markers normal. See onco in a year. Appt. for port end of month. First grandchild born July 1st- for today, life is good.
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Old 11-19-2014, 09:43 AM   #4
LaDonna28
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Posts: 78
Re: Has anyone skipped last TCPH treatment?

Update! I saw the Onc and due to the neuropathy SE, I am skipping the last chemo; although, I will still get the perjeta and Herceptin on Dec. 1. My lumpectomy is scheduled for the 2nd (along with node biopsy. See the radiologist on Dec. 11 to get that part started. Of course the herceptin will continue as well.
I am just happy at least the chemo part is over. Now for the next step! AND I will be able to have a good Thanksgiving and feel up to Black Friday!
__________________
Steriactic biopsy July 2011 for microcalicificarions - negative
Mammogram 2012, 2013 no change
Mammogram July 8, 2014, more microcalcifications and mass (10mm per radiologist)
Diagnostic Mammogram July 10, 2014
Steriactic Biopsy July 15, 2014
July 21 given diagnosis DCIS and IDC upper, Outer quadrant of right breast
ER Pos >95%. PR Pos 90%, HER-2-neu positive (score +3) Grade 3
Breast surgeon on July 29, 2014 says 2 cm
MRI states only mild to moderate bilateral physiologic background parenchymal enhancement with uptake on intermammary nodes
BRCA tests all negative :)
August 8 port placement. Lung partially collapsed. On oxygen until further notice
August 9, '14 started TCPH therapy with nuelasta shots. 6 cycles @ 3 weeks
5th treatment T and C dosages lowered due to bad neuropathy
6th and last TCPH changed to PH only for Dec 1st
Lumpectomy and node biopsy Dec 2
100% complete response from TCPH neoadjuvent therapy: tumor completely gone-dead cells only. Node completely free of ANY cells. Staged at 0! Margins clear from 4mm-10mm from dead cells.
2 week period following surgery went in for draining of Hematoma that filled surgery void area in breast 3 times
Continued with Herceptin only December 22, 2014 @ 3 weeks until ???
Started radiation Jan. 7, 2015 plan is for 16-20 rads
january 25th 2015 last radiation completed. Stopped at 16 due to Seroma (void in breast is filled with fluid)
January 30 Tamoxifan started
Still on oxygen, tamoxifen side effects kicking my butt. Seeing a gastro dr. due to a lot of stomach issues.
July 2015 - 3D mammogram nervous as all hell - but came back clean!!!! YEAAH
March 2016 - only using oxygen at night! Stomach issues better and trying to wean off the heartburn meds. Am hoping to get reconstructive done Jan 2017.
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Old 11-22-2014, 08:43 AM   #5
eva9310
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Join Date: Jul 2014
Posts: 27
Re: Has anyone skipped last TCPH treatment?

I had a/c first then taxol weekly with herceptin & perjeta every 3 weeks x 4. I gotwverythj h but the last 5 out if 12 taxol treatments due to a horrible side effects. I just had my double mx and left side auxiliary node dissection. Even though I missed the last 5 taxol treatments I had a complete pathologic response! Praise God. I'm choosing no rads and moving forward with reconstruction. I think it just depends on how you respond. I had already had an untrasound and my nodes appeared clear and my tumor was shrinking by the time surgery came it was gone. I still have some neuropathy side effects. My side effects could have become permanent and my oncologist wasn't comfortable continuing. I did finish all my perjeta and will continue herceptin for the next 9 months. Good luck to you.
__________________
Eva

Age 41: IDC Stage 2B - Left Breast Only
Two tumors 4.5 CM & 2 CM, 2 Nodes Positive
ER/PR Negative, Her2 Positive, Ki-67-80%
DX - Early May 2014, MD Anderson
A/C X4 Chemo Started May 28, 2014 - Done!
Ultrasound after A/C shows small tumor gone, Nodes Clear!
Taxol x 12 Weeks - Halfway Done!
Herceptin & Perjeta X 4 With Taxol - Halfway Done!
Herceptin X 9 months every 3 weeks after surgery
Double Mastectomy w/ Tissue Exp 11/15/14
Will wait for pathology report to determine rads! Hopefully not!
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Old 11-29-2014, 07:19 AM   #6
Paula O
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Posts: 954
Re: Has anyone skipped last TCPH treatment?

LaDonna,
My oncologist recommended skipping the last dose of chemo so I had 5 out of 6. The neuropathy symptoms became constant in my fingers and feet, I was having lots of twitching in my face and eyes and some occasional involuntary drooling. The neuropathy symptoms are now only nominal in my feet and the rest cleared up. I too have had some negative changes in my vision which the eye specialist said he sees in a lot of cancer patients. Still, all these things plus dental repercussions have been worth it. I was diagnosed 12/10 and am still happily NED. I wish you the very best, LaDonna. How is it going now?

Paula
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Old 12-09-2014, 08:11 PM   #7
LaDonna28
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Join Date: Aug 2014
Posts: 78
Re: Has anyone skipped last TCPH treatment?

Paula,
I had my lumpectomy on Dec 2 and had complete response! I am NED! Love my new name! I see the radiologist in a couple days to start that part of my 'insurance policy' and my first Herceptin only is Dec 22.
I am on cloud nine with my surgery pathology report. Merry Christmas! I still have neuropathy issues, but then I had them minimally before from carpal/cubital tunnel problems. I am just happy to be NED. I am going to talk to my GP about removing my ovaries since I don't have the other parts from a partial hysterectomy. I keep reading about high ER+ people having relapses. I am just so happy I am NED. 😀😀😀😀😀😀😀
__________________
Steriactic biopsy July 2011 for microcalicificarions - negative
Mammogram 2012, 2013 no change
Mammogram July 8, 2014, more microcalcifications and mass (10mm per radiologist)
Diagnostic Mammogram July 10, 2014
Steriactic Biopsy July 15, 2014
July 21 given diagnosis DCIS and IDC upper, Outer quadrant of right breast
ER Pos >95%. PR Pos 90%, HER-2-neu positive (score +3) Grade 3
Breast surgeon on July 29, 2014 says 2 cm
MRI states only mild to moderate bilateral physiologic background parenchymal enhancement with uptake on intermammary nodes
BRCA tests all negative :)
August 8 port placement. Lung partially collapsed. On oxygen until further notice
August 9, '14 started TCPH therapy with nuelasta shots. 6 cycles @ 3 weeks
5th treatment T and C dosages lowered due to bad neuropathy
6th and last TCPH changed to PH only for Dec 1st
Lumpectomy and node biopsy Dec 2
100% complete response from TCPH neoadjuvent therapy: tumor completely gone-dead cells only. Node completely free of ANY cells. Staged at 0! Margins clear from 4mm-10mm from dead cells.
2 week period following surgery went in for draining of Hematoma that filled surgery void area in breast 3 times
Continued with Herceptin only December 22, 2014 @ 3 weeks until ???
Started radiation Jan. 7, 2015 plan is for 16-20 rads
january 25th 2015 last radiation completed. Stopped at 16 due to Seroma (void in breast is filled with fluid)
January 30 Tamoxifan started
Still on oxygen, tamoxifen side effects kicking my butt. Seeing a gastro dr. due to a lot of stomach issues.
July 2015 - 3D mammogram nervous as all hell - but came back clean!!!! YEAAH
March 2016 - only using oxygen at night! Stomach issues better and trying to wean off the heartburn meds. Am hoping to get reconstructive done Jan 2017.
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Old 12-09-2014, 10:34 PM   #8
Paula O
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Posts: 954
Re: Has anyone skipped last TCPH treatment?

Hooray for such a wonderful response! I'm happy for you, NED LaDonna.

Paula
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