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My mom had a craniotomy to remove one large tumour in September 2003, then WBRT in October/November, then radiosurgery to target two smaller tumours in December. She has had to stay on Decadron to combat swelling. Decadron has many unpleasant side effects, but when the doctor tried to wean her off of it, she experienced nausea and some cognitive problems. She is not able to drive and does not seem 100% in terms of cognitive function. Also, she is still experiencing fatigue and weakness.
The frustrating thing is trying to figure out which symptoms are caused by which treatments. When she feels nauseous, is it due to the Decadron, is it residual from the WBRT, is it a result of swelling, or is the cancer returning??? The doctors seem unclear on this.
Her life right now is dominated by nagging, unpleasant, but not life-threatening health problems (don't know whether to call them symptoms or side effects). To be honest, I was hoping her quality of life would be better at this point, but it could also be worse. I wish I knew what to expect for the future.
Sorry this isn't more helpful.
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