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08-21-2011, 02:40 PM
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#1
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Senior Member
Join Date: Apr 2010
Posts: 129
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Update on latest scan results
I haven't posted in a while, but June 3rd I had a lung wedge resection and did chemosensitivity testing with the whole live tumors. I was progressing at the time, and there was a 7 week gap between my last PET/CT and my first new treatment. I have to assume I continued to progress during that time. I had 5 treatments with my new combo (navelbine/herceptin/tykerb) before my latest scan. I was hoping for either only slight progression or stability (due to the 7 weeks virtually untreated). Instead I had pretty substantial regression! I never thought I would be able to use that word! I have "numerous" lung mets, so they didn't count and measure all of them, but on average they have shrunk by 1/3 to 1/2!! And the metabolic activity is reduced. Also, no new sites. This is the best news I have ever had on a scan. Finally some good news! I am so happy I did the testing. I would have wasted precious time and added toxicity without it. Now let's hope my cancer doesn't get smart and become resistant!
__________________
March 2010: Diagnosed with Stage IIIC IDC with axillary, mammary and suplaclavicular node involvement. ER/PR -, HER2+++. 7cm tumor in right breast.
April 2010: Started neoadjuvent chemo. 4 DD A/C every 2 weeks, 4 DD Taxotere every 3 weeks with Herceptin weekly.
August 2010: Finished chemo!
August 20, 2010: PET/CT showed no cancer in any nodes, and only a little uptake to the breast.
September 9, 2010: Bilateral mastectomy with immediate reconstruction with implants and Alloderm.
September 16, 2010: Pathology report showed 18/51 positive axillary nodes, 3.2cm tumor. Granual sized cancer found in the fatty tissue between levels 1 and 2.
October 19, 2010: CT showed several spots on lungs and 1 spot on liver. Liver spot is 2mm, lung spots range from 2mm to 4mm. We don't know if they are cancer or not.
12/15/10: Brain MRI clear
1/7/11: PET/CT
1/13/11: Recurrence in lungs. Start Tykerb
5/13/11: Progression in lungs
6/3/11: Lung surgery to get tumors for chemosensitivity testing.
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08-21-2011, 02:46 PM
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#2
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Update on latest scan results
I'm so glad this regime is working so well for you and hope that continues!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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08-21-2011, 03:21 PM
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#3
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Senior Member
Join Date: Jun 2011
Location: Central New Jersey
Posts: 53
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Re: Update on latest scan results
Dear DeenaH,
Congratulations! What great news. I rejoice with you.
Thank the Lord. kathyG/Queazy
__________________
kathyG
Stage 1, grade 3, her+++
er 90%, pr 70%, KI-67 25%
1st Chemo 6/29/11
1st chemo taxotere and carboplatin (no good.)
2nd Chemo - Adriamycin and Cytoxan Hardly any side effects, Thank God.
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08-21-2011, 03:50 PM
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#4
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Update on latest scan results
This is really great news !!!! Congratulations !!!
Can you give us the name of the chemo sensitivity test or the name of the company where the tissue testing is done? I think other members could benefit from chemo sensitivity testing.
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08-21-2011, 04:26 PM
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#5
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Update on latest scan results
Thank you so much for the update. You've just described the complexity of cancer treatment and our unique journey. Here's to more good news!
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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08-21-2011, 04:46 PM
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#6
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Senior Member
Join Date: Apr 2010
Posts: 129
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Re: Update on latest scan results
Elaine - I had my assay done at Rational Therapuetics with Dr. Robert Nagourney. You can Google Dr. Nagourney, and you will find a lot of info on him. I truly believe had it not been for him, I would be trying one drug after the other until I found the right one. My cancer also showed resistant to several standard of care treatments.
Jackie - it is so true. Cancer treatment is so unique to each of us and our individual cancers.
__________________
March 2010: Diagnosed with Stage IIIC IDC with axillary, mammary and suplaclavicular node involvement. ER/PR -, HER2+++. 7cm tumor in right breast.
April 2010: Started neoadjuvent chemo. 4 DD A/C every 2 weeks, 4 DD Taxotere every 3 weeks with Herceptin weekly.
August 2010: Finished chemo!
August 20, 2010: PET/CT showed no cancer in any nodes, and only a little uptake to the breast.
September 9, 2010: Bilateral mastectomy with immediate reconstruction with implants and Alloderm.
September 16, 2010: Pathology report showed 18/51 positive axillary nodes, 3.2cm tumor. Granual sized cancer found in the fatty tissue between levels 1 and 2.
October 19, 2010: CT showed several spots on lungs and 1 spot on liver. Liver spot is 2mm, lung spots range from 2mm to 4mm. We don't know if they are cancer or not.
12/15/10: Brain MRI clear
1/7/11: PET/CT
1/13/11: Recurrence in lungs. Start Tykerb
5/13/11: Progression in lungs
6/3/11: Lung surgery to get tumors for chemosensitivity testing.
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08-22-2011, 04:09 AM
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#7
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Update on latest scan results
So glad to hear your good news. As you say all our cancers are unique and so are our immune systems. Hope you get a very long time on this new combo.
Ellie
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08-22-2011, 12:37 PM
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#8
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Senior Member
Join Date: Oct 2008
Location: Detroit, MI
Posts: 205
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Re: Update on latest scan results
That is facinating....and oh SUCH good news. Thank you for sharing, Deena!
__________________
Maureen
My loves
IDC & DCIS, HER2+++ Diagnosis: October 1, 2008 - Tumor: 6.8 centimeters, never showed on mammograms
- ER-/PR-
- November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
- Stage IIIc
- Lapatinib Clinical Trial start: November, 2008
- Surgery: May 5, 2009
- Started Herceptin: May 19, 2009
- Started Radiation (33 rounds): June 10, 2009
- September 2009: Moved to Michigan to be closer to family
- 12/09 - still on Herceptin until May 2010
- August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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08-22-2011, 01:25 PM
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#9
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Update on latest scan results
Deena,
Glad to hear you good news.
Amelia
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08-24-2011, 05:46 PM
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#10
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Senior Member
Join Date: Oct 2010
Posts: 229
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Re: Update on latest scan results
Regression, I love that word! Praying it continues and you see only great results from your new combo.
__________________
Diagnosed: Feb 2010 @ 46 yrs old
Invasive Ductual Carcinoma, left
2/28/10 Bilateral Mastectomy (tissue saving for future reconstruction)
3.2 cm 2/18 +lymph nodes
Stage 2b; E+/P+/Her2 +++
Nottingham score grade 2
Ki67 30%
3/2010 A/C 4 DD/2wks
5/2010 Herceptin/Taxotere 4D/3wks
8/2010 Herceptin until May 2011
Tamoxifin 20mg
9/2010 RAD 34 treatments
Pet scan Aug 2010 clear
Port removed July 2011
Bone scan, chest MRI 12/11 clear
Vaccine trial began Oct 2011
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08-25-2011, 09:28 AM
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#11
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Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
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Re: Update on latest scan results
Woot Woot! Doing the happy dance for you Deena! This is great news. Go Nabelbine Go! Kick those mets to the curb and leave our Deena alone! It was so great to see you and Susan last week. Let me know the next time you're in SF! Take care and enjoy this victory. Love, love, love, Courtney
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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08-25-2011, 06:32 PM
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#12
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Senior Member
Join Date: Apr 2010
Posts: 129
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Re: Update on latest scan results
It was so great seeing you too Courtney! Sorry I missed the meeting Tuesday. Ryan started school on Wednesday, so I had to get home from my Melisko appointment early. My next scan is November 2nd, so hopefully we can meet up again then. She pushed me off to 10 weeks from 8, so it will be a while before my scans line up with susan's again.
__________________
March 2010: Diagnosed with Stage IIIC IDC with axillary, mammary and suplaclavicular node involvement. ER/PR -, HER2+++. 7cm tumor in right breast.
April 2010: Started neoadjuvent chemo. 4 DD A/C every 2 weeks, 4 DD Taxotere every 3 weeks with Herceptin weekly.
August 2010: Finished chemo!
August 20, 2010: PET/CT showed no cancer in any nodes, and only a little uptake to the breast.
September 9, 2010: Bilateral mastectomy with immediate reconstruction with implants and Alloderm.
September 16, 2010: Pathology report showed 18/51 positive axillary nodes, 3.2cm tumor. Granual sized cancer found in the fatty tissue between levels 1 and 2.
October 19, 2010: CT showed several spots on lungs and 1 spot on liver. Liver spot is 2mm, lung spots range from 2mm to 4mm. We don't know if they are cancer or not.
12/15/10: Brain MRI clear
1/7/11: PET/CT
1/13/11: Recurrence in lungs. Start Tykerb
5/13/11: Progression in lungs
6/3/11: Lung surgery to get tumors for chemosensitivity testing.
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08-25-2011, 09:29 PM
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#13
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Senior Member
Join Date: May 2010
Location: Melbourne, Australia
Posts: 434
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Re: Update on latest scan results
Wonderful news about the regression. All the best
Trish
__________________
5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004 6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006 oopherectomy, Arimedex
12/2006 liver mets largest 9cm
1/2007 Herceptin,
3/2007 Taxol + Herc
1/2008 Herc alone
4/2008 Multiple bone mets,Zometa
7/2008 Herc + Gemcitabine
8/2008 Herc+Navelbine/vinoralbine
10/2008 Herc+Carboplatin+Taxol
12/2008 Tykerb+Xeloda
2/2010 Herceptin + trial drug
5/2010 Herceptin+Tykerb
8/2010 Tykerb+Abraxane
9/2010 Abraxane
12/2010 Abraxane+Tyk+Herc
4/2011 Tyk+Herc+Femara
6/2011 Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011 Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011 Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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08-31-2011, 02:58 PM
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#14
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Senior Member
Join Date: Jun 2011
Location: Central New Jersey
Posts: 53
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Re: Update on latest scan results
Dear DeenaH,
Thank you for sharing such great news. We all love to hear the positive news as it gives us all hope for similar news for ourselves. Keep doing what you are doing and hope that this becomes a permanent state of remission and cure for you.
God Bless. kathyG/Queazy
__________________
kathyG
Stage 1, grade 3, her+++
er 90%, pr 70%, KI-67 25%
1st Chemo 6/29/11
1st chemo taxotere and carboplatin (no good.)
2nd Chemo - Adriamycin and Cytoxan Hardly any side effects, Thank God.
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