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Old 09-20-2016, 07:27 AM   #1
Jane
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Join Date: Nov 2005
Posts: 23
How long did you stay on Arimadex

Hi,
I'm in my 11th year of taking Arimadex, after a bilateral mastectomy in 2005 at the age of 47.

I'm waiting to hear back from my oncologist to see if she wants me to stop. I just had a Dexa scan showing osteopenia.

I'd be curious about other HER2 women's experiences with Arimadex. I tolerate it very well and actually am scared to come off of it.

Many thanks,
Jane

57 years old
2005 Stage 3 cancer, right breast, 6 cm tumor, 3 positive lymph nodes
Had the usual ACT chemo plus a year of Herceptin
Have been blessedly well and lucky since treatment
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Old 09-20-2016, 05:01 PM   #2
suzan w
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Location: Naples FL
Posts: 1,744
Re: How long did you stay on Arimadex

5 years for me
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 09-20-2016, 09:19 PM   #3
Teal55
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Join Date: Apr 2015
Posts: 47
Re: How long did you stay on Arimadex

I was on Arimadex for 6 months. I'm off for 5 days and my oncologist is switching me to Aromasin. I have been having severe joint pain. My head feels foggy and a bit depressed. I exercise daily and eat very clean. My gut feeling is that I can not tolerate the drug. I have a few questions since you are an Arimadex veteran...if you don't mind?? 1. Did you have any traces of blood in your urine? 2. What dosage were you on? 3. Did you have any severe rib or joint pain? Stiff hands? 4. Were you on any other anti-estrogen pills? 5. Were your hormones ever monitored for levels?

I'm reaching out to connect with other women who are on these pills.

Thank you for sharing!

57 yr. Estrogen+ & Her2 +.
Stage II
TCHP treatment
Clinical Trial
Lumpectomy (complete reponse)
Radiation (30 rounds)
6 months Arimadex
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Old 09-21-2016, 01:22 PM   #4
Melissa
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Location: Virginia
Posts: 115
Re: How long did you stay on Arimadex

Hello,

I'm going on my 11th year. I wanted to come off of it but my oncologist suggested I keep taking it.
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Melissa

04/06, (42), 2cm tumor, 7/13 nodes, one positive node under clavicle
mastectomy/reconstruction
grade 3, stage lllb, er-65+, pr-90+, her2+++(80%)
4/AC, 12wks TH then 6wks rads
40 wks herceptin, and tamoxifen.
onc test tamoxifen resistance = poor metabilizer
04/07 ooph & on arimidex
08/07 completed herceptin

04/2020 a 14 years NED
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Old 09-26-2016, 11:42 AM   #5
tricia keegan
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Location: Ireland
Posts: 3,460
Re: How long did you stay on Arimadex

The newest study is showing ten years according to my Onc, I stopped at eight but she just asked me continue for another two years. I had Osteopenia a few years back which was reversed by an annual twenty minute iv of Aclasta.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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