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Old 12-24-2010, 11:24 AM   #1
Kathy66
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Smile Hitting the wall

Hi there

Firstly Merry Christmas (and many of them) to you all) and a question please - my experience is coping really well with Herceptin for the first 13 treatments apart from minor side effects that we all seem to report and then last week suddenly 'hitting the wall' felt as though suddenly my body had given up the fight - maybe its because I've stopped - for the holidays - but I'm finding myself diagnosing myself with all kinds of things because I feel so rough - did anyone else have a similar experience?

Kathy
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Old 12-24-2010, 12:45 PM   #2
DiDi70
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Smile Re: Hitting the wall

Merry Christmas to you too!

Have you had radiation in the past 3 months? The radiation effects can creep up on you even 6 months after the last treatment, causing fatigue. Perhaps this is what you are experiencing? Also, are you eating well?

Another thing to question is how your thyroid function is as hypothyroidism can cause exhaustion.

I really hope that you feel better soon,

Didi
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Old 12-24-2010, 01:10 PM   #3
Mary L
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Re: Hitting the wall

Kathy, your body has been through alot and you have to accept that it is tired. It is so hard to go through all the treatments, chem, radiation and whatever else you have been through. Try to work with you body and do what you are able to do and leave the rest till you feel better. Sometimes we are hard on ourselves and expect everthing to be normal when it isn't quite there. Relax and have a Happy Holiday. Mary L
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Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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Old 12-24-2010, 03:20 PM   #4
tricia keegan
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Re: Hitting the wall

Kathy- it's probably just having the break has brought it home to you how tired your body is, during treatments we use up so much adrenalin just to keep going so don't notice too much.
Have a Happy Christmas and try not to worry but enjoy the rest
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Old 12-24-2010, 04:04 PM   #5
Chelee
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Re: Hitting the wall

Kathy,
I'm not sure where exactly you are with your treatment...but it sounds like you've gotten thru your surgery, chemo, rads and now on to complete your 52 wks of Herceptin? This whole journey is truly a rollercoaster ride as I'm sure you have heard it said. There really are so many ups and down physically, mentally and emotionally. It can be so rough at times . I know when I finished my chemo and just had Herceptin infusions to do I felt like I wasn't doing enough to fight my bc...that is a very normal feeling for most of us.

If you could give a little more detail about where your at with your treatment we could help you out more. As to diagnosing yourself with all kinds of things...we all pretty much do that...comes with the territory I'm afraid. Once you are dx with bc every ache and pain is a cause of concern. A bc dx turns our world upside down, but I can tell you in time it will get better. Just don't be hard on yourself...you have been through alot. Try to stay busy and do things you enjoy. Hang in there because things really will get better...I can almost promise you that.

Chelee
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Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-24-2010, 04:43 PM   #6
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Re: Hitting the wall

Thank you ladies all of you for your support - it's really helpful to hear from you - I have as you guessed done surgery (lumpectomy) chemo and radio and am now doing Herceptin for a year and Tamoxifen for two years - I wasn't sure how to put all that info into my profile as you obviously all have? So yes body has been through it and I probably do need to take it easy - it's hard isn't it when you are used to being able to keep going - maybe a good lesson.

Anyway have a good day tomorrow / today depending on the time zone.

Thanks again

Kathy
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Old 12-24-2010, 11:15 PM   #7
Jackie07
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Re: Hitting the wall

Kathy,

In case nobody has 'private messaged' you, here is how to put your treatment information into the 'signature' field:

Scroll up to the top of the Board and find 'User CP' (2nd one from the left on the colored bar) You will see 'Your control Panel'. Go to 'Settings and Options' and find 'Edit Signature'. Type your treatment history into the box...

Merry Christmas!
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Last edited by Jackie07; 12-24-2010 at 11:19 PM..
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