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08-03-2013, 08:20 AM
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#1
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Senior Member
Join Date: Aug 2011
Posts: 271
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American Cancer Society $200.00 Gas Card
Hi Ladies,
I forgot to mention this. I contacted the American Cancer Society, told them I was participating in a clinical trial at Mayo that would require me to make 11 trips to Rochester (about 4.5 hours from my home) There are hotel stays involved also, since most of my appointments start at 7:30am. I had to fill out a form (and I am not low income) and they sent me a $200.00 Gas Visa card. I can also apply for another one.
This has been helpful. If I add up the hotel and gas costs over the 30 month period with the 11 visits the cost for this trial is about $2000.00. So every little bit helps.
__________________
DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!
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08-03-2013, 08:47 AM
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#2
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: American Cancer Society $200.00 Gas Card
My insurance covered the cost of the trips. You can check and see if they will cover the cost of travel to a phase I trial.
AMC will cover some gas or help with travel to regular appointments too, at least they used to!
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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08-03-2013, 11:28 AM
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#3
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Senior Member
Join Date: Feb 2013
Location: Lincoln, NE
Posts: 265
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Re: American Cancer Society $200.00 Gas Card
Thanks for bringing this up gals!! I was going through some paperwork JUST the other day...at the beginning of my chemo, my RN gave me the form...she TOLD me about it...what a huge blessing for me! I had already been to the AMC, yet didn't know this, nor think I would qualify as with JillaryJill! So, heads up...thanks again for mentioning this!
Lots out there...we've got to our own self advocates...AND, with you all, this site...a huge THANKS!!
__________________
10/18/12 Found pea size lump right breast
11/7/12 Biopsy
12/14/12 Lumpectomy
1/4/13 Rexcision, NO CLEAR MARGINS!! :(
2/11/13 Mastectomy with Expander Placed
2/15/13 INFECTION at Mastectomy site...emergency Surgery!!! Expander removed :(
DX: DCIS, IDC, Stage 2a, 2.7cm, 1/5 nodes positive
ER/PR-, HER2+++
3/28/13 Port placed
4/1/13 Begin 6 Cycles TCH Therapy
4/1/14 Finished Herceptin!!
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08-03-2013, 12:11 PM
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#4
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: American Cancer Society $200.00 Gas Card
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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08-04-2013, 09:39 AM
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#5
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: American Cancer Society $200.00 Gas Card
Okay...
I consider myself to be of average intelligence...
And I'm usually fairly tech savvy...
But I honestly could not find anything on the ACS website about this.
I even tried the link that 'lizbeth posted.
What am I doing wrong?
Denise
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08-04-2013, 11:33 AM
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#6
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: American Cancer Society $200.00 Gas Card
Try calling the 800-227-2345 number. This might be something that is offered, but not promoted.
I know that money might be tight because I've been trying to hustle up donations for the ACS Relay for Life and I feel like I'm extracting teeth with a string and a doorknob. They might only offer it to patients when the have funds in the budget.
But there is a rides program:
http://www.cancer.org/treatment/supp...ad-to-recovery
And a lodging program:
http://www.cancer.org/treatment/supp...opelodge/index
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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08-04-2013, 04:14 PM
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#7
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Re: American Cancer Society $200.00 Gas Card
Thanks for posting.
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08-05-2013, 07:17 PM
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#8
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Senior Member
Join Date: Aug 2011
Posts: 271
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Re: American Cancer Society $200.00 Gas Card
Denise, I called the American Cancer Society and talked to them. I just called the general number. They then sent me a form to fill out. I filled it out and recieved a $200.00 gas gift card a few weeks later. There was also a note enclosed saying I could apply for another one.
__________________
DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!
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08-05-2013, 07:23 PM
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#9
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Senior Member
Join Date: Aug 2011
Posts: 271
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Re: American Cancer Society $200.00 Gas Card
One thing I need to mention. After I filled out the form my onc had to sign it.
__________________
DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!
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