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07-19-2007, 07:06 PM
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#1
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Senior Member
Join Date: Oct 2005
Location: southern california
Posts: 287
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Good news!
I don't post very often, I do respond at times. I just wanted to share with all of you, as you keep me grounded and I have benefited from many of the posts, some good news. I am 1 yr 6 months out of treatment and I had a lump that I was concerened about. I just saw my surgeon yesterday and he did an ultrasound which confirmed that what I was feeling was scar tissue from my surgery. I also had a Mamogram, on the non operation side, prior to seeing him and it was A-1. Which is the best you can get! Also I had been in a study with therapies that were not the normal therapies, and out of all the women that were in the study, we are all NED. I don't expect any replies from this post, I was just so excited by my visit with him that I had to share. If you know anyone that is just starting on this journey, you can let them know that there is hope!
Alice
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07-19-2007, 07:18 PM
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#2
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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I Just Love When It's Scar Tissue
GREAT NEWS, ALICE. Thanks for sharing it. We love good news. I often hear it's scar tissue, and I cheer each time. Who cares? This sharp gasping pain in my side that I've had for yrs, they tell me it's scar tissue. I'm happy, with the pain. I get ev 6 mnth transvaginal pelvic sonograms to be told my ovaries are beautiful (just checking) and I'm happy. And no one sees anything in my CT scans, chest/abd/pelv.
So what is this unusual treatment that has all the women NED?? Pray tell us, Alice. I think we'd all be interested in knowing. Good to hear from you. Keep on posting. It's good for the Soul -- yours and ours. ANDI
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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07-19-2007, 08:01 PM
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#3
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Senior Member
Join Date: Oct 2005
Location: southern california
Posts: 287
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Well I just replied to your last post on your friend. I hope you get It. I supose I should update my signature since it was just starting, when I joined, to have diagnosis and treatments on after my name.
I HAD stage 3 IDC multifocal w node envolvment
I had neo-adjuvant chemotherapy, surgery, radiation
4 x dose dense AC
3 weeks of Carboplatin, Taxol, Herciptin with 1 week Herceptin alone for 4 months. Then surgery,then 35 radiation treatments.
At the time Carboplatin was being used for stage 4 only and they were not giving the Herceptin along with chemo as much.
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07-19-2007, 08:31 PM
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#4
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Always great to hear good news. I am praying that you remain NED!
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07-20-2007, 07:52 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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thanks for posting your good news. I love to hear about when our fears turn out to be something 'normal'! My last fear was a "pimple-like' thing on my scar line...convinced it was bad...you all know the drill!!! it WAS a pimple...go figure!!!
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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07-20-2007, 01:14 PM
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#6
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Alice, Its ALWAYS great to hear good news. That is just fantastic! It must of been a big relief to find out that was only scar tissue. Yeah! May you and NED remain a happy couple.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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07-20-2007, 04:53 PM
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#7
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Alice....I am happy you took the time to share your good news with us. Good news is something we all need to hear.
Hugs and I'm happy for you that all is well.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-20-2007, 05:56 PM
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#8
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Alice,
That's wonderful news! We always enjoy hearing good news.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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