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03-01-2009, 03:44 PM
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#41
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Senior Member
Join Date: Jul 2006
Location: Shingle Springs, CA - near Sacramento
Posts: 295
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Dear Eric and Caryn,
You are in my prayers, with all of us praying and hoping something just has to happen that brings hope and light into your lives. Please know that you and your family are part of our family too - we are hoping and praying right along with you. Miracles do happen!
Love, Donna
__________________
Donna in the Sierra Foothills of California
Diagnosed 6/7/06 invasive ductal carcinoma/ductal carcinoma in situ
Lumpectomy 6/21/06
Pathology: Er 99% Pr 10% Her2/neu 3+
DNA Index 1.0
S-Phase 3/High
Primary Tumor 2.4 cm Sentinel Node Tumor 2.1cm
A/C/T+ Herceptin + rads + Arimidex
stopped Herceptin after 7 mos. due to low MUGA
Surgery for thickened uterine tissue May 2008 - conclusion: side effect of Arimidex
Switched from Arimidex to Femara - joint/tendon problems significantly better!
2 year mark Pet scan and Echo shows all clear!
5 year mammogram with ultrasound shows no sign of cancer - yay!
11 years, 11 months new breast cancer - found lump
Mastectomy 4/30/2018
Pathology: Er99%, PR 28%, Her2 negative! (new type)
Faslodex
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03-01-2009, 03:47 PM
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#42
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Eric, I am so sorry to hear about Caryn. Please know that you are all in my prayers.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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03-01-2009, 03:48 PM
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#43
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hi Eric,
I just got home and you, Caryn and the kids have been on my mind and in my prayers all day. I know it isn't much but I pray that knowing how loved you are and how much I (we all) care helps in a small way.
Asking God for a miracle.........
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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03-01-2009, 03:59 PM
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#44
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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I don't know what to say, I feel sick to my stomach. Please know that I will pray for you, Caryn and your children. Do know that they can't tell you how much time she will have left. It could be much longer than weeks. My husbands secretary was told she had no more than months left, she had glioblastoma (brain cancer)...she is still here almost 2-1/2 years later. I am hoping that these doctors will put their heads together and come up with something that can help her...don't give up hope ..sherryg683
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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03-01-2009, 04:02 PM
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#45
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Eric,
I am sorry to read your post. My first thought is I am glad you are not giving up, maybe there is a new trial,
or treatment ...I am glad you made the calls to the top
dr.
I will pray that some one has an answer for you.
I keep you and Caryn and your children in my prayers.
Kindest Regards,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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03-01-2009, 04:38 PM
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#46
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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it breaks my heart to hear this! so much going on in my personal life that has me messed up right now that this just brings me back down to earth. i'm sending lots of prayers your way
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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03-01-2009, 05:05 PM
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#47
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Senior Member
Join Date: Feb 2006
Posts: 437
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Eric I have not been on these boards in quite awhile and am saddened by this news.
Before I was diagnosed I nursed my mom who had BC mets to her liver. The lesions were too many to count and the onc told me it would probably be 6 mos, tops. ( She was 75 the time ) She responded to Taxol and and lived an additional 5 years of an active life.
Caryn sounds like she is obstructed, can they do a stent proceedure which will allow the liver to drain?
Please forgive me , but I believe where there is life there is hope.
I pray there is an alternative for Caryn, and I will hold you all in my prayers.
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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03-01-2009, 05:31 PM
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#48
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Senior Member
Join Date: Nov 2004
Posts: 190
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I'm praying for you!
__________________
8/98 dx right breast
5/2003 tram flap right breast
8/2004 dx new primary left breast with inflammatory bc
er/pr-, her2neu+++
8/19 taxotere and herceptin
1/15/2005 Navelbine/Herceptin
4/2005 radiation and Herceptin
5/15/2005 Herceptin alone
2/12/2008 skin biopsy positive
2/14/2008 met to sternum, possibly right breast
2/27/08 Start omitarg, herceptin, taxotere trial
3/17/08 Kicked off trial because I started too close to my last herceptin
3/19 start tykerb xeloda
Right breast confirmed met
5/15/08 skin mets gone, no hypermetabolic activity in breast, sternum healing
8/24/08 scans still look good. sternum still active with scarring. No evidence of progression
10/08 Progression in sternum
12/08 Start TDM1 trial
1/09 Scans show stable
12/09 1 year on TDM1 still stable
10/10 progression in chest and liver
11/10 false positive of liver mets; tykerb and herceptin
4/11 Tykerb/Herceptin/Xgeva
4/11 Rads to Sternum
5/12/12 NED Herceptin/Zometa
3/16/19 still NED Herceptin/Zometa very 6months
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03-01-2009, 05:31 PM
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#49
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Sorry to hear the bad news. Seems one of our members has it in her signature that several years ago her liver was found to be 'full of tumors'. I wonder if the situation Caryn has is different because the location - you mention 'duct' - is hard to reach.
I know we are praying for a miracle. But miracles do happen sometimes. So we'll continue to pray for Caryn and your family.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 03-06-2009 at 10:54 PM..
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03-01-2009, 05:58 PM
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#50
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Senior Member
Join Date: Apr 2006
Posts: 131
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I am addding my prayers that a miracle will happen. You have the folks here sending up prayers that it will happen.
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03-01-2009, 06:27 PM
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#51
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Eric,
Praying that Caryn, you and your children have the strength you need to see you through this difficult time. Caryn is blessed to have you by her side.
Love to you,
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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03-01-2009, 06:28 PM
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#52
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Adding my prayers for Caryn right now. There must be another tx option for her.
I have a 12 1/2 and a 16 yr old, too. I have imagined in my mind how it might be to tell my kids this same news one day. It brings me to tears when I do think of this.
Please don't feel bad to share your feelings here with us. We can take it. We are in this together. For better and for worse. It's a sister and brotherhood that ties us together and gets us through the really hard trials with this disease.
Hang in there friend. Hope exists and miracles happen everyday.
Hugs and Prayers,
Lexi
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03-01-2009, 06:31 PM
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#53
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Eric
I know you live close to Philly. Go online and make an appointment with the Cancer Center of American there.
They are innovative and resourceful.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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03-01-2009, 08:17 PM
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#54
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Nothing to add except my prayers and love.
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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03-01-2009, 08:43 PM
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#55
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Dear Eric and Caryn -
I echo Julie2 as I think you have been on this board as long as I have as well.
I see you have given this new news some quick consideration and put out some calls. Keep rattling their cages and jerking chains as you know about the "squeeky wheel" ...
My fervent prayers go your way for that miracle call back with a plan for Caryn.
Your children have lived with the threat of their mother going away for a long time, and I wish only the best blessings for their stout hearts.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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03-01-2009, 09:16 PM
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#56
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Senior Member
Join Date: Sep 2005
Posts: 290
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First Thoughts
Dear Eric and Caryn,
I am praying for you both. My first instinct at reading your post, was to suggest that you ask about radio frequency ablation, thermal ablation, or interstitial laser techniques. These have seen success in primary and secondary liver tumors, and I believe have been used in other types of malignancies as well when ductal metastases have been involved. I obviously don't know the other details of Caryn's current disease status, but I thought I would offer this anyway. Try to stay strong Eric. Your wonderful wife and children need you now more than ever.
Sincerely,
Tom
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03-01-2009, 10:12 PM
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#57
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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What about isolated hepatic perfusion? You posted about this previously. Any possibility of accessing it?
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03-01-2009, 10:13 PM
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#58
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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1: Gan To Kagaku Ryoho. 2009 Feb;36(2):333-5.  Links
[A case of metastatic breast cancer with liver metastasis effectively treated with capecitabine and vinorelbine]
[Article in Japanese]
Inari H, Chiba A, Inaba M, Ino H, Fukahori M, Yoshida A.
Division of Breast and Thyroid Surgery, Kanagawa Cancer Center.
A 31-year-old woman with cancer of the right breast underwent surgery in 1996. Histological examination demonstrated a solid tubular carcinoma that was positive lymph node metastasis and hormonal receptor, but negative for HER2 expression. The patient underwent adjuvant therapy with CAF and tamoxifen. At the age of 40 years old, Multiple liver metastasis appeared to the patient. We treated her with paclitaxel. But multiple liver metastasis became progressive disease. Next we treated with capecitabine and vinorelbine. The liver metastasis reduced, and, in the eighth month, the liver metastasis disappeared after 9 cycles. We changed treatment to goserelin, and anastrozole. The period of complete response was 1 year 3 months.
PMID: 19223759 [PubMed - in process]
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03-02-2009, 04:35 AM
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#59
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Senior Member
Join Date: May 2008
Posts: 28
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Eric, I'm sorry for your news. My prayers are with Caryn, you and your family.
__________________
Found lump 3/07 at age 44
Surgery: 7/07 rt-MRM, lt-Simple Mast. w/ immediate implants using Alloderm
Tumor: 3 cm., grad III, poorly diff., Stage IIA, IDC, ER/PR-, HER2+++(FISH 3.2) 0/14 nodes
Chemo 8/07-3/08 AC x 6 DD, Taxotere x 12
Herceptin 3/08 weekly for 1 year-done 2/17/09!!!!
Brca 2 +, complete hyst 6/15/2009
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03-02-2009, 07:05 AM
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#60
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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Eric,
Please know you, Caryn and your family are in my thoughts and prayers.
Maria
__________________
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Dx'd 8/04 at 41
Stage 1 for some onc's; Stage II for others (if you add up the sizes of all tumors).
Infiltrating DCIS
HER2+, ER+10% & PR-
.9cm tumor not visible on mammo, but palpable; visible on ultrasound
Lumpectomy/ clear margins, no nodes
Had Breast MRI after lumpectomy that revealed two more tumors in same quadrant(.4cm and 1.6cm) that were not visible on either mammo or ultrasound.
Re-excision
DD AC+T; Herceptin one year
Rads
NED/Taking Tamoxifen reluctantly
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