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Old 03-05-2011, 10:15 PM   #1
Estelle
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Join Date: Nov 2009
Posts: 72
Smile Johns Hopkins Vaccine Trial

Hi all,

I just got accepted into the Johns Hopkins Her2 vaccine trial. Is anyone else out there in this trial? I met at one woman from California who is participating -- I am very lucky to live in the DC area and be so close to JH, where I get my treatment. So far I had my scans (all clear!!!), and peptides (which stung like crazy); first vacccines are on 3-14. I'm cross referencing this in the clinical trial board as well.
__________________
Estelle
DX 1/09
two tumors; .7 cm and 1.0 cm, same duct
lumpectomy 2/09
10 positive nodes; scans show no further metastasis, Stage IIIc
AC completed 5/09
Tykerb/Taxol (trial) 6/09, terminated from trial (due to bad reaction to Tykerb) 8/09; switched to Herceptin/Taxol
Taxol finished 10/09
Bilateral mastectomy 11/09
Radiation 12/09 to 1/10
Herceptin finished 7/10
NED
Start Vaccine Trial at Hopkins 2/11
Finished Vaccine Trial 11/11
Continue NED
Port Out 11/11
DEIP Flap 4/17)
8 Years NED 2/17
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Old 03-06-2011, 11:32 AM   #2
bejuce
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Join Date: May 2009
Posts: 510
Re: Johns Hopkins Vaccine Trial

Good luck with the trial, Estelle! I'm participating in one in Berkeley, CA, and had one shot so far - no major reaction or side effect, except a red quarter size bump in my leg where the shot was given.

Hope these vaccines will truly work to keep our tumors at bay!
__________________
ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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