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Old 09-16-2012, 11:34 AM   #10
Lori R
Senior Member
 
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
Re: Is there benefit in surgery for stage iv's

Vonny,
The most important lesson that I have learned from this site is to be your own advocate. Fight to win every single battle in this war.

I am not a Dr., so I am reluctant to offer medical advice but.....I was stage IV. They performed a mastectomy. I asked for extra radiation which was kind of unheard of but my Onc said...well maybe in will prevent a local recurrance. I pushed because of the support on this site.

Well....here I am 5 years later. Granted a scarry signature line because of the liver met but.....I have not had a local recurrance.

If you get the slightest hint that your daughter is not being give a 110% chance to fight on all fronts...get another opinion. Push....who cares if you ruffle a few feathers?

Here is a boost of fiesty energy to help out....Lori
__________________
2007
Oct - Diagnosed - Stage IV
5 c.m. IDC - Left Side er/pr- Her2+++
Node + 2/14 - Single Liver Met
Double Mastectomy
Nov - Begin T+H
2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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