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Help... I'm scared...
My bc mets progressed in my liver and nodes apperared a little larger so we ablated the kidney again and have been trying to get approval for different chemo.
Perjeta and herceptin were denied last Thur. and now gemzar and herceptin were denied?????
Nurse says she will schedule me tomorrow for gemzar at least while we figure out what to do. Insurance doesn't want to restart herceptin since I stopped receiving it with the halaven.
I know people on this board have had perjeta even though it's not first line and any experience with denial of herceptin.
I don't get it. I know the Dr.s office is doing what they can but in the meantime it's 3 weeks since any chemo and will the gemzar do any good without herceptin?
I am dealing with so many family things and then this on top, maybe I am overeacting but I think I need someone to talk me down. I feel like the insurance company would rather me die, probably, cheaper for them.
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3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
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