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Old 09-07-2011, 04:43 PM   #1
CourtneyL
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Location: San Francisco
Posts: 260
Re: Awful...Awful....

I agree, this is absolutely awful. I know a few of the ladies here were working on ways of preventing this from happening. I know Joe use to be able to close a thread. Perhaps we can start closing old threads after a certain amount of time has passed. I know other websites do this - for example all threads automatically close after 90 days. They are still searchable and available but no one can add to it after that. I don't know if this solution would work for everyone though since sometimes we like to add new information to old threads. Just an idea. It is truly awful when a spammer brings up an old and painful thread. Shame on them is right!
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.

Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial

Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED

Send me a PM if you'd like to follow my journey on Caringbridge.
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Old 09-08-2011, 11:02 AM   #2
ElaineM
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Wink Re: Awful...Awful....

The spam is annoying. It is especially hurtful, because it interferes with the exchange of important information and the sharing of good and bad times by people with major health problems who need support.
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ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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