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Old 11-30-2016, 05:03 PM   #21
Senior Member
Join Date: Nov 2016
Posts: 50
Re: Her2 + and Oncotype????

yes, Carol , I'm having trouble using the search box. Can you walk me thru it plz? it's ok to talk to me like I'm in 2nd grade. They know more than most of us anyway, lol
Dx Sept 2015, triple positive, stage IIA, grade 3, Her2++. right breast, no family history (only 54)

Oct 2015, started chemo including Herceptin &Perjeta
Jan 2016, stopped chemo after 5 of 6 rounds due to ulcer
Feb 2016, developed gout from chemo , lumpectomy, clear nodes, went on strong meds for gout
April 2016, started radiation
May 2016, had to stop radiation due to severe reaction to gout meds and radiation. Rushed to ICU, on morphine for 3 days with severe infection
June 2016, Started Arimidex
Aug 2016, Developed a severe case of Telangiectasia
Nov 2016, Sclerathearpy (weekly injections) for gross bloody spider viens from radiation.
Awaiting approval for Hyperbaric Chamber Oxygen Thearpy
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Old 11-30-2016, 06:35 PM   #22
Carol Ann
Senior Member
Join Date: Dec 2013
Posts: 1,045
Re: Her2 + and Oncotype????

Ok ... click on Search in the upper right hand corner, enter what you are looking for in the box ... maybe what it is giving you problems is what to put in the box itself? Use just a couple of words or phrase that best describes what you are looking for.

Examples type in "survival rates" or "triple positive research" "recurrence risk", etc ... don't make it too complicated because the search engine will look for every word you put in, and if there are too many and the posts don't include them, it will tell you no finds, when actually there are probably lots of threads, etc out there.

Less is more!

Note that there is a button to choose either threads or posts, I have always just gone with threads but you can try either one individually and see what comes up.

Sometimes I would just scroll through the pages of threads looking for topics, find one that looks interesting, and start reading. I did that for hours and hours and hours in the beginning.

Let me know if this helps.

Carol Ann
July 24, 2013: "Infected" Right Nipple and benign cyst removed, pathology report revealed Paget's, DCIS, and ILC 1.25 cm, ER+/Pro+/HER2 equivocal, Grade 2 under benign cyst, previous diagnostic mammo/ultrasound said I was perfectly healthy in both breasts.

Aug 18, 2013: MRI report says Left breast is perfectly healthy "consistent with previous studies".

Sept 2013: I insist on a bilateral mastectomy anyway. Too nervewracking to let left breast remain with higher risk after 3 cancers in right, nipple in right is already gone anyhow.

Sept 18, 2013: Bilateral mastectomy, 11 right nodes removed, ALL negative BUT -- ER+/PRO+/HER2+ tumor, 1.0 cm, Grade 2 found in a piece of "grossly unremarkable" breast tissue from prophylactic mastectomy of left breast, no nodes removed.

Oct 25, 2013: 13 left side nodes removed, ALL negative, Stage 1 across the board, NO RADS needed, YAAAAY! Port also installed.

Nov 25, 2013 Begin 6 rounds TCH.

March 10, 2014 Just finished 6th and LAST Chemo today, YAAAAAY!

March 24, 2014 Echocardiogram to make sure I'm still good for Herceptin every 3 weeks.

March 31, 2014 Echo results NORMAL, first Herceptin all by itself. Now if only my eyes would stop streaming from the Taxotere ... :)

April 21, 2014 Started Arimidex and therapy for "mild" lymphedema in left hand and arm

May 2014 Therapy completed, I have sleeves and gloves for both arms, a Flexi touch lymph pump to hook up to for an hour every day, and I've become an arm bandaging expert. :)

June 2014 Begin Fosamax to prevent osteoporosis; bone scan revealed osteopenia

Nov 17, 2014 FINAL Herceptin!

Dec 4, 2014 My right thigh muscle has been extra achy for days ... I discover a blister rash cluster on the side of my right thigh while taking a shower. Port appointment cancelled until Dec 17, my doc is working me in tomorrow afternoon to see me and the rash. My muscle at least feels less achy.

Dec 5, 2014 Yep, I have shingles. Boo! I start acyclovir and also have a prescription for a painkiller just in case for over the weekend.

Dec 17, 2014 Port is OUT!

January 2016 Shingles again and this time it started where my left breast (where the hidden HER2+++ tumor was!) used to be. My onc nurse got me a same day appointment to see my doc when I called and told her I had a rash on the site. The antiviral meds are working once again, though, so that is good news. :)
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