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Old 10-20-2013, 06:45 PM   #1
jacqueline1102
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Join Date: Apr 2012
Posts: 183
Two years ago with MBC
Hello all,

Two years ago I was diagnosed with Inflammatory breast cancer which had spread to the liver. Many a times, I would search the archives here for information which I would take to my oncologist. And for those who wrote to me personally I cannot thank you enough. Words often cannot convey the feeling behind the sentiment. As I reflect on the past two years, I know that I have been able to maneuver the course of this disease a little more easy because of your care and help.

Peace to you all,

Jackie
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10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
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Old 10-20-2013, 11:21 PM   #2
Pamelamary
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Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 494
Re: Two years ago with MBC
Thanks for the good news, Jackie! I hope you long remain in the land of NED!
Best wishes.... pam
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Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
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Old 10-21-2013, 11:19 AM   #3
'lizbeth
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Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
Re: Two years ago with MBC
Jackie,

You got to liver NED on Perjeta and Herceptin - I am so happy to see this. And starting with Inflammatory Breast Cancer - this is such a reason to celebrate!

I wish you a lifetime of NED.
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Old 10-21-2013, 11:58 AM   #4
tricia keegan
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Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Re: Two years ago with MBC
Jackie I'm so pleased you're doing so well still and a happy cancerversary to you with many more!!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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