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Old 03-14-2007, 09:09 PM   #1
rinaina
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Me and Roz Varon
For those of you in the viewing area of Chicago ABC TV morning news, and for others as well, I have a cute story to tell. Roz Varon, morning traffic reporter, was diagnosed with Her2 positive breast cancer about the same time as me. I have been following her progress all along and it appears that we have been pretty much on the same schedule. She recently ditched her wig as did I. At the ABC 7 Chicago new website, Roz has some video updates about herself and a place where you can email her. So I did just that informing her about my situation, not ever thinking that I would get an email back. Well, she not only emailed me back, but said she was so thrilled to hear from someone who also had Her2+ bc because she hadn't come across anyone with it. She also wanted to talk further so she sent me her phone number and I spoke to her today on the phone. She didn't know about this forum so I gave her the website. We said we would keep in touch to let us know how we each are doing. She has been on Herceptin for 6 months and the two tiny spots on her liver have disappeared. I encouraged her to check the forum out despite her fear of reading bad outcomes or bad things in general. So that is my cute little story. What a hoot. See, this cancer keeps bringing many surprises!
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 03-15-2007, 08:44 AM   #2
Sheila
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Rinaiana

I have been following Roz as well...I watch Channel 7 news all the time...She has had several segments on her BC Road...stating that she was stage IV when diagnosed, but she is looking forward to many years ahead...she is a real positive person as you can see.
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Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 03-15-2007, 10:18 AM   #3
rinaina
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Yes Sheila, she is an extremely positive person and prefers not to read or hear anything negative as well. She was so energetic and bubbly just like she appears on tv. I really enjoyed speaking to hear. By conversation end, we were talking about our upcoming Passover holiday!
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 03-15-2007, 05:21 PM   #4
Jean
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Thumbs up That was so nice...
of you Rinaina,
See, there are so many nice things that come out of this illness. I like her attitude, she is paying attention to what is right instead of what is wrong.

Good thinking.
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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