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11-27-2011, 06:48 PM
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#1
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Penquin Cold Caps???
Hi all, I am curious I have a friend who will be starting treatment...has anyone used or know of the product Penquin Cold Caps....does it work? How long have they been on the market?
http://www.msc-worldwide.com/
I would love to advise my friend but do not have enough information. Thank you for your help.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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11-28-2011, 12:56 PM
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#2
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Penquin Cold Caps???
Hi,
They were not available at my hospital in '05 when I had chemo but some facilities did have them. I was chatting with a lady using one while getting her chemo a few months ago and I was just having a zometa tx, she really was'nt impressed and found it difficult to keep it on the whole time and the nurse I spoke to said some people lose some but not all their hair but overall no one using them kept all their hair.
Perhaps someone else knows differently though but I do recall reading that any hair left would be quite straggly with bald spots around the scalp so a scarf or wig would be needed anyway.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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11-28-2011, 10:13 PM
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#3
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: Penquin Cold Caps???
Thank you Tricia,
When I heard of it I thought it was way too good to be true.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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11-29-2011, 04:52 AM
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#4
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Penquin Cold Caps???
Jean its possible others have heard of a better response but I've yet to meet anyone with any great success with it sadly.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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11-29-2011, 11:30 AM
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#5
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Member
Join Date: Nov 2011
Location: Atlanta
Posts: 8
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Re: Penquin Cold Caps???
I used them for 6 rounda of tch. I kept my thick shoulder length hair. Most women do. Noone even knows I was going thru chemo. Even with adriamycin, the hair remains. They stayed on tight, but you do have to have a loving partner help you during the infusion as they must be changed. Frank Fronda invented them, and is an angel to talk to....have your friend call them up. There are imposter caps out there, not working nearly as well...so beware.
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11-29-2011, 06:35 PM
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#6
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: Penquin Cold Caps???
Geewhiz, (love the name)...lol
thank you for the contact I will pass it onto my friend who is having A/C.
She has been so upset over the hair issue.
Will let you know how it goes for her.
Kind Regards,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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11-30-2011, 08:18 PM
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#7
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Member
Join Date: Nov 2011
Location: Atlanta
Posts: 8
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Re: Penquin Cold Caps???
I am happy to pass along the information, there is no reason to lose hair anymore...with any chemo protocol. When I looked in the mirror every morning, I did not see a cancer patient. I saw me. The mental benefit to me was tremendous. I have young children, and it helped to have things as normal as possible. I see it slowly catching on...more oncs ask about it. I think my name is on some sort of list abut them because I get lots of calls from very nervous and upset women. Boy do I remember those days. Still have them occasionally!
It's been a blessing in disguise. Helping calm other women who are facing surgery, chemo, etc..has helped me heal. It's nice to be on the other side of the tunnel, even if I just got here, and by the skin of my teeth.
I SO apologize for big letters and bolding...I am brand new here and can't figure this out...I am highlighting and canceling the Bold button, darn it!!
And Jean...I LOVE your name too!! It will be very easy for me to remember  |
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11-30-2011, 08:21 PM
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#8
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Member
Join Date: Nov 2011
Location: Atlanta
Posts: 8
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Re: Penquin Cold Caps???
Oh hilarious...it doesn't show up bolded.
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