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Old 08-02-2012, 01:33 PM   #1
gqmom
Senior Member
 
Join Date: Jun 2011
Posts: 37
could this be skin mets?

Hello friends! I have a flat pink area on my side near my waist...it's been there for a couple months. I had it looked at during my annual skin check at the derm...they were not concerned. Showed it to my chemo nurse and then my onco's assistant...I told her I was afraid it could be skin mets...she says it's not. Could it be from Herceptin? It doesn't itch or hurt and there are no bumps or anything....no rash or bumps on my breast chest ot anywhere else. Of course I think the worst as I'm sure I always will.
__________________
Dx at 33 in May 2011
IDC and DCIS in left breast
ER-/PR-Her2+
Stage 2A (T1aN1miM0)
Left Mastectomy
A/C x 4
Taxol and Herceptin x 12
Herceptin every three weeks
Prophylactic Right Mastectomy and expanders on both sides June 28, 2012
May 2012 Bone scan, CT, breast MRI all normal
September 2012 Finished Herceptin
February 25, 2013 exchange surgery and port out
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Old 08-02-2012, 04:32 PM   #2
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: could this be skin mets?

I just wanted to respond because I too have had a flat pink patch that is not itchy on my chest and I have had it for almost 8 years. It "arrived" after my bc surgery and scared the wits out of me. Like you, everyone who saw it said the same thing - not skin mets. I almost was going to just have a biopsy but finally a new onc also said - this is not skin mets. So, I watched it and I still watch it (I still HAVE it). I guess its part of the new me. It has not changed in size, color, shape. It's just there and obviously wasn't cancer or I'd have certainly known by now. I always showed it to every doctor I needed to go to - not just the cancer docs (and no - I didn't show it to the dentist, eye doctor or vet).

So your story sounds like mine - I watched it forever just to say "I told you so" but it just didn't happen. So trust (but check it now and again). And keep asking. I did. It helps to hear, "its not skin mets".
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 08-02-2012, 10:33 PM   #3
yanyan
Senior Member
 
Join Date: Apr 2011
Posts: 403
Re: could this be skin mets?

If the patch does not grow bigger or spread, it's usually nothing to be concerned. Mine stayed flat and pink but all of a sudden got red and look inflamed. It got bigger and redder in a short time toward my last herceptin. Biopsy confirmed skin mets.
I hope yours is nothing serious. Btw my tumor marker
Was normal and pet scan didn't pick it even after
Biopsy confirmed recurrence
__________________
1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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Old 08-03-2012, 01:08 PM   #4
gqmom
Senior Member
 
Join Date: Jun 2011
Posts: 37
Re: could this be skin mets?

Anyone else have advice on this topic? Thanks Becky and YanYan for chiming in!
__________________
Dx at 33 in May 2011
IDC and DCIS in left breast
ER-/PR-Her2+
Stage 2A (T1aN1miM0)
Left Mastectomy
A/C x 4
Taxol and Herceptin x 12
Herceptin every three weeks
Prophylactic Right Mastectomy and expanders on both sides June 28, 2012
May 2012 Bone scan, CT, breast MRI all normal
September 2012 Finished Herceptin
February 25, 2013 exchange surgery and port out
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