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Old 05-26-2010, 11:45 AM   #1
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Please let me know what you think i should do next

You have seen my previous post now I want to dedicate this one to options and leave the bitterness of the other one:

-lymph node in breast area (2.3*1.3)
-4 supraclav nodes in right
-1 or 2 supraclav in nodes left

they suggest either systemic treatment or at the mo I am booked to the radiotherapy for a huge amount of treatment on the right only and the breast node...


I have seem treatment to lymph node by injecting ethanol they do it at the Mayo, and appearantly somehwere in norway.. (don't have the money I guess for mayo) anyone knows of any tother interventional radiology places doing that sort of thing? seem logical to me http://www.medscape.com/viewarticle/707412


Anyhow please come forward with treatment options
Many thanks
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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