Cancer in Spinal Fluid - given 6 months - HER2 Support Group Forums

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Cancer in Spinal Fluid - given 6 months

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05-14-2015, 05:04 AM	#1
Saygoon Senior Member Join Date: Jul 2013 Location: Hot Springs, South Dakota Posts: 158	Re: Cancer in Spinal Fluid - given 6 months Elvin - so sorry to hear of your grief. Doctors play God to much I think. So not putting all my eggs in one basket __________________ Paula T. (saygoon means dog, yes I am Native) DX March 2012 Stage IV w/ 5 bone mets to spine 2 on ribs Herceptin, Zometa, Taxotere and Anasterole and of course radiation 2/14/2014 2 mets on pelvic bone Stop Anasterole continue on Herceptin and Zometa start radiation (again) 2/24/2014 start T-DM1 continue Herceptin and Zometa 4/28 more radiation that brings total to 5 (10 days ea) - I think I will soon glow in the dark.... 6/01/2014 Great news! Rib mets gone, 4 of 5 spine mets showing new bone growth and pelvic mets shrinking. 8/28/2014 T11 on spine is being stubborn started Perjeta, Herceptin, Zometa and Taxol - goodbye hair! 9/04/2014 Tomo therapy - pain finally gone 1/3/2015 - starting New Year out as still stable. Feeling positive 2/23/2015 - problems with left leg, bone met flaring up - MORE radiation Whew! 2/24/2015 Stress fracture in right side of pelvic - (great just great) back to wheelchair then walker then..... 2/26/2015 Off Taxol!! Still on Perjeta, Herceptin and Hormone Blocker starting to feel a little more human. 4/10/2015 Cancer has spread to spinal fluid - not sure where I go from here 6/29/2015 Omaya Port placed,begin IT Herceptin on 7/7/2015

05-14-2015, 08:26 AM	#2
michka Senior Member Join Date: Feb 2007 Location: Paris, France Posts: 858	Re: Cancer in Spinal Fluid - given 6 months Saygoon, what do you mean by " The appointment was a little confusing"? An appointment should not be confusing especialy at MD Anderson. I am happy you have several "baskets". I am thinking of you. __________________ 08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20% FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex 12.2010 Mets to liver,Herceptin+Tykerb 03.2011 Liver resection ER+70% PR- 04.2011 Herceptin+Navelbine+750mg Tykerb 06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum 11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin 02.2012 Mets to lungs, nodes, liver 04.2012 TDM1, Ned in 07.2012 04.2015 Stop TDM1/Kadcyla, still Ned, liver problems 04.2016 Liver mets. Back on Kadcyla 08.2016 Kadcyla stopped working. mets to liver lungs bones 09.2016 Biopsy to liver. no more HER2, still ER+ 09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife 01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere 02.2017 30 micro mets to brain breathing getting worse and worse 04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven 06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms

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