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02-21-2010, 04:11 PM
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#21
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: How did it go today, Ellie? Thinking of you!
Ellie, from another crazy old cat lady like laurel, I was convinced recently I had bone mets. Nothing would persuede me otherwise and it's even tougher with our recent loss's here 
Stay strong and I hope you'll be posting with good news soon and looking forward to celebrating with you 
(((hugs)))
Tricia xx
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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02-22-2010, 09:50 AM
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#22
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Re: How did it go today, Ellie? Thinking of you!
Hoping for good news. I hope we will all be celebrating your "bad news," like severe anemia. This is how we live today i.e., congratulations, you have pneumonia instead of lung mets. That just happened to a Her2 buddy of mine. The shadow on her lung is pneumonia. She and her friends are thrilled.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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02-23-2010, 07:36 PM
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#23
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: How did it go today, Ellie? Thinking of you!
Thinking of you, Ellie. I know you are only hours away from hearing your results. Hoping and praying for nothing too scary!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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02-24-2010, 07:37 AM
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#24
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: How did it go today, Ellie? Thinking of you!
Ellie,
Thinking of you.
Amelia
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02-24-2010, 07:39 AM
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#25
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Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
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Re: How did it go today, Ellie? Thinking of you!
Ellie - hang in there - it is already Wednesday for me here in Italy - and just beginning the day now in the US - so thinking of you as you get your news today.
Maybe I was lucky as I was a bit off line the last few months so I missed a lot of the news on losing our band of merry makers... however, I can understand the fear. It isn't our friend, but it is so hard to just act like it isn't something that is somehow ever near the edge of the concious mind...
I'm nearing my first year, and was only stage 1 --- but I still have days I feel I am falling apart - and even a little thing like seeing something on TV about cancer, or even a dream I had the other night that I had cancer again in the liver and bones .... that alone freaked me out and I cried the entire next day. So, it is normal. You are normal. And you are fighter - so you will go on. Like we all do.
Live like there is no tomorrow - and dance like no one is watching! Is one I like.
Take care- sending you good positive energy!
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!
7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!
2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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02-24-2010, 09:09 AM
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#26
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: How did it go today, Ellie? Thinking of you!
Hi Ellie,
Thinking of you. Let us know.
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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02-24-2010, 02:02 PM
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#27
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: How did it go today, Ellie? Thinking of you!
Hi everyone
Just got back from hospital with half the results!!
The really GOOD NEWS is the bone marrow aspirate was clear, no evidence of bc mets or any concerns about secondary leukaemia.Thank you GOD.
The results from the sample of the actual bone are with the pathologists secretary, buried in an audio tape with numerous other patients results, so it will be another couple of days before I know these results.
For the moment I am just so relieved that my bone marrow is clear.
The onc has no idea why my platelets are 'bumping along the bottom' as he puts it.If they stay low his plan is to give me four more doses of herceptin then a break of eight weeks to see if they pick up. Must say I felt nervous about this but thought I would re-visit this at the next appointment.
Once again many, many thanks to all for the advice,support and prayers. To know that you have all been there for me during this time has meant so much.
Love Ellie
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02-24-2010, 02:17 PM
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#28
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: How did it go today, Ellie? Thinking of you!
Hurrah! Praise be to God, Ellie! I've got tears of joy stinging my eyes! Try a good B-Complex to up those platelets. It worked for me. Herceptin was hard on my counts, too. When will you hear about that pesky bone bx?
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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02-24-2010, 02:24 PM
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#29
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: How did it go today, Ellie? Thinking of you!
Ditto Ellie. I am so happy for you!!!! :-) Yes, thank you Lord.
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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02-24-2010, 02:30 PM
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#30
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Re: How did it go today, Ellie? Thinking of you!
I am thrilled for you. Yippee
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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02-24-2010, 02:45 PM
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#31
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Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
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Re: How did it go today, Ellie? Thinking of you!
Great news - even if its not ALL the news. I think the B complex would help too - I take a serious B stress formula and also have heard that B17 is good? I have to find out more about it - but its on my stuff to "research"!
Maybe someone else knows about B17 - but hear its great for fighting cancer...?
Keep the faith and eat your veggies --- more raw the better! Green and dark colored ones have more B-vitamins. Also, I have added powdered Vit C into my morning Juice I make (apple, carrot, celery, fennel and what ever other veggies I have that I want to throw in) but ... I take about 7,000 mg every day (you have to work up to this as it will literally run through you if you don't build up slowly) but there is lots of good info out there that says that Vit C is a great fighter of cancer.
My two cents.
Great news - go girl!!!!!!!!
Karen
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!
7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!
2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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02-24-2010, 03:09 PM
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#32
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: How did it go today, Ellie? Thinking of you!
Hi again
Should get the second half of the results by Friday. If not will be pestering the onc's secretary!!
Will take onboard the vit b issue. Used to take Brewers yeast everyday but have lapsed. Thanks for the reminder.
Ellie
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02-24-2010, 03:33 PM
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#33
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: How did it go today, Ellie? Thinking of you!
Ellie,
I am so glad to hear your good news. Yeah!
Amelia
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02-24-2010, 03:50 PM
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#34
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: How did it go today, Ellie? Thinking of you!
Great news Ellie! Hoping to give you more cheers when you get your next good results..
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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02-24-2010, 05:46 PM
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#35
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Re: How did it go today, Ellie? Thinking of you!
GOOD NEWS!! Keep it up. Lots of healing thoughts
your way. I know how you feel about test results.
Sooner rather than later for me or I will be there at
the door. Take care.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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02-24-2010, 06:29 PM
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#36
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Senior Member
Join Date: Feb 2006
Posts: 437
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Re: How did it go today, Ellie? Thinking of you!
Great news Ellie. Are you taking any other supplement which may depress your counts.
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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02-24-2010, 08:04 PM
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#37
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Senior Member
Join Date: Jun 2009
Posts: 343
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Re: How did it go today, Ellie? Thinking of you!
So happy for your great news and hoping that's all you continue to get!
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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02-25-2010, 05:20 AM
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#38
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Senior Member
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
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Re: How did it go today, Ellie? Thinking of you!
Ellie,
I am so relieved and happy for you. I am sure the last few weeks have been extremely emotionally challenging. Good job hanging in there!!
Please keep us posted on what your onc has to say about the low platelets. I am extremely interested as my platelets (which haven't been an issue during 2 rounds of chemo) have decided to take a dive. After running in the 190s, they have progressively slipped to 150.
I did some reading and one way to amp the little suckers appears to be to increase exercise. I hate to admit it but work has been demanding and stressful so of course my exercise went out the window.
Soooo glad that you can rest easier and here is to many many more years of NED....lots of love...Lori
__________________
2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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02-25-2010, 05:31 AM
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#39
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Re: How did it go today, Ellie? Thinking of you!
Ellie - chiming in on the good wishes and cheers for the good news. Pam
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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02-25-2010, 11:33 AM
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#40
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: How did it go today, Ellie? Thinking of you!
I'm so delighted for you Ellie and hope the next results are just as good
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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