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11-06-2007, 11:20 AM
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#41
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Steph,
Pease accept my sincere sympathy on the passing of your father. He is now at peace with the Lord.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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11-06-2007, 02:11 PM
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#42
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Steph:
I was so sorry to read about the passing of your dad. I lost my beloved daddy unexpectedly this March. I don't have good words to say just that I am so sorry and that I understand what you are feeling.
Love ~ Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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11-06-2007, 06:02 PM
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#43
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Dear Steph,
My condolences to you and your entire family.
Big hug,
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11-06-2007, 08:00 PM
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#44
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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Steph.
I'm so sorry. I have not logged in for awhile and read this. I'm, so very sorry but as you said, it was peaceful and that's as much we can ask.
My prayers to you and your family
MCS
Maria
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11-07-2007, 06:46 AM
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#45
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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Dear Steph,
A celebration of your father's life is a wonderful way to say goodbye...
So sorry for your loss.
maria
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11-07-2007, 08:11 AM
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#46
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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so sorry Steph! Glad it was a peaceful time and he had his loved ones with him.
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11-07-2007, 08:17 AM
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#47
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Oh Sweetness....
My sympathies are with your family and friends who had the wonderful chance to love this man. Another Angel to watch over us. I was so happy to know that the time was peaceful for him, I am sure that gave you some comfort. Take care of yourself Steph and remember that I love you so.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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11-07-2007, 01:57 PM
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#48
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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My heartfelt thanks
Dear friends -
Thank you so much for your sentiments and support as I grieve my father's earthly passing. No blue skies today, the drizzle is back, and I feel like drizzling too.
Here is a link to the obit that was a work of classic collaborative effort by the whole family. When a person was as active and important to so many, we had to keep focus on the main achievements.
http://www.legacy.com/tricityherald/...sonId=97495299
Just had a call from the paper there and was interviewed for another story separate from this obit. Dad's loss seems to be reverberrating through his community. AND he was NOT a politician.
The most difficult thing will be getting through tomorrow, which is the 61st wedding anniversary for mom and dad. Instead of a lovely evening at the country club we will be having the viewing of his body at the chapel. God have mercy on us all.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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11-07-2007, 09:56 PM
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#49
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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My sincerest condolences, Steph. May his memory be a blessing to you and your family,
Marcia
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11-08-2007, 05:37 PM
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#50
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Dear Steph, I'm so sorry for your loss. I will send a prayer out for you and your family, and want to thank you for sharing the beautiful sentiment about what really matters.
Thinking of you and sending hugs,
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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11-08-2007, 07:16 PM
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#51
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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I am so sorry to hear about the loss of your father. I will be keeping you and your family in my thoughts and prayers.
My dad passed in August, 2006 and had beautiful blue eyes, also. My grandson inherited those beautiful blue eyes and I see my dad when I see him.
Your father sounds like an outstanding man and I know he will be missed. Hugs and blessings to you and your family.
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11-08-2007, 08:18 PM
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#52
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Senior Member
Join Date: Sep 2006
Location: Nebraska
Posts: 154
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Steph,
I am soooo sorry. It never is easy to lose anyone, esp. your children or parents. I am thinking of you good friend
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11-09-2007, 11:12 AM
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#53
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Dear Steph,
I am so sorry to hear of your loss. I like the idea of a "Celebration of Life" rather than mourning their passing. Sounds like your dad truly had a life worth celebrating and a family who loved him dearly. What more could any of us ask...
Sending my love and prayers to you and your family,
Kim
__________________
Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.
5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.
9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .
11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!
7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!
June -Dec 2004 UW Vaccine Trial.
7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.
Brain MRI @3 months NED!
2006-2011 brain/body still NED
8/04/11 Taking Herceptin break, will monitor with tumor markers.
6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.
7/23/12 CA15-3 now 49.3
Her2 Serum 26.8
8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49
11/7/12 Add weekly Taxotere for 4 cycles
2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.
November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!
Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara
Jan 2016 Begin Kadcyla
March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla
November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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11-13-2007, 04:04 PM
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#54
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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Been thinkig fo you a lot
since i read your news. I hope you are finding strength and healing in this difficult time. I am and have been sending you a lot of that.
Much love to you and your family Steph.
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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