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06-30-2007, 01:23 PM
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#41
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Senior Member
Join Date: Sep 2005
Location: Lumberton, Mississippi
Posts: 118
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Sending prayer and good thoughts to you also Lu An.
Take care of yourself and sleep as much as you want.
Hugs,
Linda
S. Mississippi
__________________
Diagnosed 12/23/04
Biopsy 12/28/04
Lumpectomy 1/04/05
IDC, ER-PR-, HER2Neu+++
7mm tumor, Stage 1, Grade 3
6 CAF's
38 Rads
Finished 10/05
"Worry looks around. Sorry looks back. Faith looks up."
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07-01-2007, 04:37 AM
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#42
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Senior Member
Join Date: May 2007
Location: Eastern NC
Posts: 65
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Dear LuAnn,
I've been worried about you! Sounds like the last couple of weeks have been too exciting. From your description, WBR sounds like it is a sanity and life saver treatment for you. Symptoms from brain mets are SCARY! Mine were just beginning, and even though I thought I was just getting extraordinarily klutzy (I had a cerebellar tumor), finding out the cause of the headaches, my museum quality bruises from running into things and my inability to pass all the neurological tests (like finger to nose with my eyes closed) took me days to get used to. Decadron is a mlixed blessing too- I felt GREAT at first: super clear thinking and my old energy as well! OF course, that soon changed and it took two tries to get titrated off the stuff. Three weeks later, I'm delighted to be losing the amazing "moon face", the Santa Belly, and the buffalo hump on my back are very slowly going down, and my skin doesn't feel like it's only one cell layer deep... I think it's up to 3 cells deep instead. But for all it's miserable side effects, Decadron sure made life more livable when I needed it. Hope it is doing the same for you.
Know that you and your family stay in my thoughts and prayers.
Warmest regards, Rentrac
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07-01-2007, 05:27 AM
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#43
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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LuAnn
Are you being treated in Ohio or Zion, IL ? Just sending you a hug and lots of love and prayers to overcome this new bump in the road....
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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07-01-2007, 06:07 PM
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#44
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Prayers are-a-coming
Now and always we send prayers. This week we found out that my husband has 5 lesions on the brain-(ranging from 4-9mm). It is an unpleasant thought that our fight will be a bit more trying. We shall have you in our thoughts and prayers for peace of mind. The candle I just lit has your name on it Sweetheart..>>Waiting For A Miracle>>Believe51..(Marie G)
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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07-04-2007, 09:07 PM
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#45
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Wishing you well LuAnn
LuAnn,
I am sending you all my prayers and best thoughts for a complete and speedy recovery from your Canadian neighbour.
All the best
Caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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07-04-2007, 09:35 PM
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#46
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Thinking about you Lu ann, you are in my prayers..sherryg
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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07-05-2007, 08:53 AM
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#47
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Senior Member
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
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Thanks so much for good friends, I'm doing well
I will be finished with WBR July 9. I think i've done well on the tx. Other then the hair falling out and this outrageous appetite I don't feel much different. I was sleeping all the time before. My husband has been doing all the work around here. I'm soo lucky to have his support. God Bless all of you for giving me support. I'll keep you posted. Love, Lu Ann.
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07-06-2007, 05:03 AM
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#48
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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just some more
love and prayer for you from me, Lu Ann. I'm so glad to hear that you have been tolerating the treatment quite well. And so happy you are sharing your experience with us. I'm also sending a lot of gratitude and warmth to your husband for all he is doing-sounds like a gem who really understands what is important for you right now. How is your daughter?
Rest and pamper yourself!
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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07-06-2007, 04:46 PM
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#49
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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It is only me!!
Checking up on you and sending you fresh prayers. My husband found out that he has many mets to the brain, not just 5 and the gamma knife is out for now, we will be doing a regime of 15 days WBR and rads to the pelvis. I am happy to hear that it will be over soon and he will be just as happy.
You are so special Sweetheart and I think of you often. Keep up the great work and thanks for the encouragement. Keep us posted!!
Waiting For A Miracle..>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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07-06-2007, 04:48 PM
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#50
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Sending prayers your way for you and your daughter.
Kind Regards,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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