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Old 09-08-2016, 06:28 AM   #1
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Pertuzumab for treated metastatic patients in Europe

Hello all,

I am going crazy trying to get Pertuzumab in France but as you know the guidelines (FDA Europe...), it is for first line or for never treated metastatic patients.
In the States I see that the Drs give it anyway. And some on this board are doing well in that setting.
I did not have Pertuzumab before TDM1/Kadcyla simply because it was not available.
Does someone know of a country, closer for me than the US where I could get Pertuzumab even with charge.
You can PM me if you wish.
They want to give me Halaven and Tykerb. I am convinced I could do better than that. Am I wrong?
Love to all.
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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Old 09-08-2016, 10:11 AM   #2
Kathy T
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Join Date: Aug 2006
Posts: 79
Re: Pertuzumab for treated metastatic patients in Europe

Hi ! I am stage 4 and have been stable with Herceptin and Pertuzumab for 2 1/2 years. I was previously on TDM1 for 4 1/2 years,stopping because of liver issues. I hope you can get this combo. Good Luck!
KathyT
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