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03-18-2010, 12:58 PM
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#1
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Chelee????
I'm getting really worried. I sent a message to her email address and haven't heard back. Does anybody know where she lives? Last name? Phone #? It's hard to find that kind of info from the Netherlands, Europe.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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03-18-2010, 02:16 PM
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#2
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Chelee????
I sent and received many e-mails then suddenly no reply. She had been having a hard time on the chemo and I am now really worried as we have not heard from her. I don't know what else to do as it's difficult to find details out from England also.
Ellie
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03-18-2010, 03:13 PM
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#3
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Chelee????
I wonder if Joe or Christine have a member list with last names and contact information? I wonder if they can contact her?
I think she lives in California. If you can get a last name you can do a search on http://www.pipl.com
and try to get her contact information. You can also try http://www.whitepages.com.
I hope she is just busy or her computer is out of order. |
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03-18-2010, 04:21 PM
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#4
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Re: Chelee????
Still nothing since the 6th on the other board.
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03-18-2010, 05:39 PM
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#5
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Re: Chelee????
Hi Guys ~
I will call her...sorry I didn't see this earlier..and let you all know.
Love,
Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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03-18-2010, 06:13 PM
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#6
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Re: Chelee????
I just tried calling her and the phone line was all weird so I am thinking she is having internet/dsl problems. I will call again tomorrow. The phone line was full of static. I have a feeling she is OK but having internet problems.
Love,
Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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03-18-2010, 06:24 PM
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#7
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: Chelee????
Thanks, Ruth! I was just getting ready to say that I thought that Chelee did have computer problems from time to time and that we should give her a few more days to get it straight before we saddled up the dogs to run up there.
__________________
For Nicola
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03-19-2010, 12:24 AM
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#8
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Chelee????
I'm ok...just alot going on. I'll let Jacqueline feel you in. I need to get to bed have a bone scan early. I'm having problems with my lungs mixed in with all kinds of things. I'll get it sorted out some how. I always welcome prayers for the clear scans and this lung problem. Thanks everyone.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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03-19-2010, 06:56 AM
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#9
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Chelee????
Chelee,
Glad to hear from you. Hope you have a good day. I have missed you being on the board.
Amelia
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03-19-2010, 07:41 AM
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#10
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Guest
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Re: Chelee????
Hi Chelee,
It's good to see you posting. I am sorry that you are dealing with more health issues, but relieved to see you here. Please know that you are in my thoughts and prayers right now.
Hugs,
Lexi
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03-19-2010, 08:06 AM
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#11
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Senior Member
Join Date: Jul 2006
Location: Newfoundland, Canada
Posts: 153
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Re: Chelee????
Glad to hear from you, I was so scared to read this post.
All the best, hoping you get everything sorted out
Dawn
__________________
Dawn
Mar 2006Stage IIIA, Her2/Neu 3+++, Er & Pr positive, 8 of 18 pos 03/14/06: Mastectomy 04/19/06 started Chemo adriamycin, chlophosphamide, taxotere 25 rads
Nov 1, 06: 3 years Tamoxifen, Herceptin (1yr)
Jan 2009 Femara mets to bone aromasin and aredia
June2009: Full Histerectomy
2/22/2010 6 spots in liver 2 mm-10 mm: switched to xeloda and Herceptin will continue with Aredia J
Scan February 2011 new onc, switch to abraxane
April 2011 NED clear organs, 3 spots on bone scar tissue.
Scans August 2mm spot on liver and lungs. now on to tykerb/xeloda
Dec 2011 scans nothing on lungs, liver down to 1 2 mm spot. j
une 2012 another spot on liver on to cisplatin/gemzar.
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03-19-2010, 08:32 AM
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#12
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Re: Chelee????
Dear Chelee,
So good to hear from you! Adding my prayers for you to feel better soon and have clean results for the scan and lung issues.
hugs,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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03-19-2010, 08:42 AM
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#13
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Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
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Re: Chelee????
Dear Chelee, I am happy to have news although I am sorry you are reporting more worries. I hope the scans will be good. I am keeping you in my thoughts. Hugs. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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03-19-2010, 09:13 AM
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#14
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Senior Member
Join Date: Sep 2005
Posts: 556
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Re: Chelee????
Chelee,
I am thinking about you and praying that you will get clear scans.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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03-19-2010, 09:17 AM
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#15
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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Re: Chelee????
Praying for answers and successful treatment.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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03-19-2010, 11:36 AM
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#16
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Chelee????
Thanks for checking in Chelee. Get plenty of rest and take good care of yourself over the weekend, so you will be ready to do whatever you have to do about the latest bumps in the road towards good health.
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03-19-2010, 02:51 PM
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#17
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: Chelee????
Hi all,
Chelee wrote to me privately, and I am not sure how much she wants me to share. She is having trouble breathing, but the lung X-rays were clear. She's going back for more tests. She's on oxygen and she's exhausted, worried about how she will be able to have her chemo if the lung problem doesn't clear up.
She didn't want to post about all this, as she didn't want to worry us. Ofcourse we got even more worried because of her silence, so that didn't work.
You might as well post about everything Chelee. ;-))) That's what we're here for anyway; for helping you carry the burden of worrying and fretting. You may not have noticed, but we care about you. A lot.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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03-19-2010, 03:39 PM
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#18
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Re: Chelee????
I have to mention that x-rays can sometimes miss clear mucous build-up. My father was thought to be having a heart attack since he was having trouble oxygenating and his recent x-ray was clear. After they found nothing wrong with his heart via angiography and were stumped, they did a broncoscopy and discovered copious amounts of clear mucous.
I know Chelee had post-taxotere pulmonary issues. I think I shared this with her a while back:
LINK
Docetaxel-induced interstitial pneumonitis following non-small-cell lung cancer treatment
Journal Clinical and Translational Oncology PublisherSpringer Milan ISSN1699-048X (Print) 1699-3055 (Online) Issue Volume 9, Number 9 / September, 2007 CategoryReview DOI10.1007/s12094-007-0106-4 Pages578-581 Subject Collection Medicine SpringerLink DateMonday, September 08, 2008 Add to marked items
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Review
Docetaxel-induced interstitial pneumonitis following non-small-cell lung cancer treatment
C. Grande1  , M. J. Villanueva1, G. Huidobro1 and J. Casal1
(1) Servicio de OncologĂ*a MĂ©dica, Hospital Meixoeiro. Complejo Hospitalario y Universitario de Vigo, ES-36200 Vigo, Spain Received: 8 March 2007 Accepted: 18 June 2007 Published online: 21 October 2007
Abstract Interstitial pneumonitis has been described infrequently following administration of docetaxel, used alone or in combination with other chemotherapeutic agents or concurrent irradiation, for non-small-cell lung cancer (NSCLC). This toxicity is of special relevance in NSCLC, as clinical severity and differential diagnosis may be especially challenging. It seems to be due to type I and type IV hypersensitivity reactions to the drug. Clinical and radiographic features are nonspecific and diagnosis is made by exclusion. The rate of grade III–IV docetaxel-induced pneumonitis, ranging from 7 to 47%, depends on several factors, including total dose, chemotherapy schedule and especially concomitant docetaxel treatment with gemcitabine and radiotherapy. Although the usual outcome is cure, it sometimes eventually progresses to pulmonary fibrosis despite steroid treatment. This toxicity must be taken into account when planning treatment strategies for NSCLC in order to reduce its rate and to achieve prompt diagnosis and treatment.
Key words Docetaxel - Interstitial pneumonitis - Non-small-cell lung cancer
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03-19-2010, 05:11 PM
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#19
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Senior Member
Join Date: Jun 2009
Posts: 343
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Re: Chelee????
Chelee, will be praying and thinking of you.
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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03-19-2010, 06:24 PM
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#20
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Chelee????
Chelee,
Hanging with you, Girlfriend. I'll keep you in my prayers. I think Rich may be on to something. Hope you saw the post.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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