scan and doctor update

[Pam P]

I saw the oncologist Thursday. Good news - echo is normal - it always is. Brain MRI looked better than in May - still multiple spots though. Not good: MRI lumbar sacra spine - lots of mets - may be contributing to leg pain.

I have radiation starting Monday on my lumbar and sacral spine. That touches on the lower abdomen and can cause nausea and other gastro problems - diarrhea , constipation. I still have 1 week to go with the femur so the 1st week will be on both areas. Wish they had decided this in the beginning so I could have been done with it all in a week.

PET/CT shows mild progression in all areas - "diffuse met disease in all bony area." CA2729 is up to 5500 from 4700 3 weeks ago.

I'm off halven and will start abaxane, herceptin, zomets on Sept.1

I asked about tdm1 and he said I'd have a rough time getting in with my current brain MRI. I might still call and ask.

I broke down and started to drink boost & ensure. Do not like the taste but am tolerating it. At least I get a few more calories that way.

He's usually a jovial guy; he was very somber. As he was looking at the list of drugs he said - "you are running out of options." Hard to here.

Meanwhile the pain in my left thigh is no better. That radiation isn't doing a thing yet. I was getting by on ibuprofin but now sometimes take oxycodone but only when I know I can sleep.

That's my update still trying to process it all - it keeps getting worse. Love you all pam