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Old 02-05-2013, 12:57 PM   #1
linn65
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Is it just me or is it the WIG

I now have hotflashes that began with chemo, and I suppose now the Tamoxifan. Anyway, I can have a hot flash with my wig on and my head just sweats underneath. I can deal with taking my wig off and wiping the sweat off. However, what is driving me crazy now is I am just starting to get some new hair growth and my head is itching like crazy!!! But I can take the wig off and give my head a good scratch and all is well. Then, I put my wig back on and all I can think about is my head is itching like crazy. The itching is not from the new hair growth so WHAT do wigs just automatically make your head ITCH when you put them on????

Between the hot flashes one minute then cold with goose bumps the next.....And the itchy head!!! Errrrr does this happen with everyone??
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 02-05-2013, 01:31 PM   #2
jaykay
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Re: Is it just me or is it the WIG

I'm sorry! But I haven't had a hot flash in years and my wig doesn't make me itch. Although I do some scratching when I take it off :-). Based on my past experiences with Tamoxifen - I would bet that's the culprit.

I can't wait for new hair growth!!

Best
Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 02-05-2013, 02:32 PM   #3
europa
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Re: Is it just me or is it the WIG

My head was very itchy when my hair started to come back in. My doctor told me that was pretty common as the hair follicles were coming through the skin. I used Jojoba oil every night and it helped with the dryness that the winter air caused. I never wore my wig because it was too darn itchy and I would sweat like crazy. I'm currently on Tamoxifen and I spend my nights covering and uncovering myself. I now do it without waking up. It's part of the Tamoxifen 5 year sentence. Yippee for us.
__________________
DX 10/2011
PET Scan + MRI 10/2011
Lumpectomy 11/11/11
Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node)
AC started 12/2011 ended 1/2012
Taxol + Herceptin weekly for 12 weeks ended 4/2012
30 zaps of radiation done 6/2012
Tamoxifen 6/2012
every 3 weeks of Herceptin for another year.
Metformin Trial 8/12
10/12 MRI- CLEAR
01/13 BRAIN MRI- CLEAR!
01/13 Neck MRI- CLEAR!
FINISHED HERCEPTIN 1/9/2013...Woot Woot
Starting Walter Reed Vaccine Trial 2/13
CT Scans + ultrasound of abdomen CLEAR-5/13
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life.
7/27/2018 hysterectomy and oopherectomy
01/07/2019 Mastectomy and expanders put in
3/22/2019 Vtach, almost died. Cause unknown.
7/22/2019 New perky boobs put in
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018.


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Old 02-05-2013, 06:19 PM   #4
KsGal
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Re: Is it just me or is it the WIG

I had hot flashes as well. At work it would just about make me walk out..miserable. Wake up in the middle of the night throwing the covers off, freezing the next minute. My head, also, was really itchy when the hair started growing back in, and the wig irritated it, plus I was working in a job where I supervised a kitchen, which just made the sweating under the wig worse! This is the second time I have lost my hair, and Im avoiding wearing a wig like the plague. The soft little skull caps feel so much better. The dry skin on my scalp is itchy, so I try to keep is moisturized. I don't know if everyone has these symptoms, but you aren't alone. Hope it gets better soon.
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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Old 02-05-2013, 08:15 PM   #5
starwishn2
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Re: Is it just me or is it the WIG

I'm going through the same thing right now!! I actually think it's the hair growth as my head REALLY itches - even more - as soon as I lay down at night. And, not to whine, but I'm on Arimidex and am starting my second trip through HOT flash land. I've already done this once (early onset of menopause) ...must I go through it again?! Ahhh the joy!!
__________________
Diagnosed 16Dec1993 ITP (auto immune disease - low platelets)
Splenectomy 11Nov2009
Rituxen May2011
ITP playing nice
Diagnosed 3Jul2012 BC

2 cm - Grade 2 - Stage IIB
HER2+++

ER+/PR+
bilateral mastectomy 20Jul2012
Metastasized cancer found 1 lymph node
expanders placed during surgery
TCH chemo "cocktail" started 24Aug2012
every 3 weeks - 6 treatments
Herceptin - 18 treatments
LAST treatment Taxotere & Carboplatin 7Dec2012 -yay!
Continue with Herceptin 26Dec2012

Started Arimidex 01Jan2013 (for 5 years)
Surgery to remove expanders/reconstruction 18Jan2013
Infection in left breast from reconstruction/infection in most nails - SO many meds! 22Feb2013
Left implant not playing nice.... might need to remove and try again - blah! 04Apr2013
3Jul2013 - one year since diagnosis - booo cancer!

15Aug2013 LAST chemo infusion!! YIPPPEEE!!!
13Sep2013 2nd reconstructive surgery.. the FOOBs are looking good!



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Old 02-05-2013, 10:21 PM   #6
Jackie07
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Re: Is it just me or is it the WIG

I used to have very oily skins and the dermatologist had precribed me Nizoral to alternate with DHS 2% Zinc (Head & Shoulder has only 1% Zinc) shampoo. That was 22 years ago and it's been working very well. My current oncologist (dermatologist?) told me to use the Nizoral very infrequently...

You might want to see a dermatologist to take care of your scalp.

One thing I did when I was wearing a wig during chemo was to put a small, thin silk handkerchief inside. Silk is soft and keeps the head warm when it's cold outside while feels cool when it's hot inside...

Whenever I was not at work, I would just wear a cap (in the public) or not wear anything at all (when at home) on my head.
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Old 02-06-2013, 06:42 AM   #7
linn65
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Re: Is it just me or is it the WIG

Europa too funny take the covers on and off without waking up that is hysterical!! At home one minute I am turning the heat up and the next I think OMG it is freaking hot in her so the heat goes down! It does suck when you are trying to work and in the back of your mind all you can think is MY HEAD ITCHES! I did notice the barely shadow of hair I have now is very soft so the texture has changed. I am waiting for it to have a growing spurt!! LOL, does that happen??? I have looked at my head and it doesn't look dry on top, and I think if I put something on it will it somehow stunt the growth of hair?? When I go home the first thing I do is take off my wig and scratch it for a bit and it stops itching. I rub it now out of habit just feeling my head, and I think I know every little new hair growing just from that.

Starwish2 I really do not know the difference between Armidex and Tamox but I am right there with you WHINING because no one else really wants to hear it because they don't get it. So I am whining on here it is like group therapy for me!! We all get these little or kind of big aggravations we must go thru for the "Cure"!

What does everyone else put on their head for itching?? Lord, knows I am going thru radiation now daily, so I don't even want to make a doctors appt with a dermatologist, but I know my rad doctor would give me something for my head. I am a frequent visitor at the Pharmacy, and my pharmacist knows me by name I keep her in business! hahaha.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 02-10-2013, 08:04 AM   #8
4angel
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Re: Is it just me or is it the WIG

My hair is just starting to grow in too. I have mild hot flashes and some itching. I believe the itching is from the hair growing in. I have put Aloe on my head and it seems to help. I don't think most moisturizers will harm your head or slow the hair growth, i used them all the time as I had pretty long hair before BC. and it never hurt the growing. Good luck. I'm just starting hormone treatment with zoledex( shots) until I have the ovaries removed and then will start something new. Hope it will be low on the side effects, but time will tell.
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Old 02-10-2013, 03:15 PM   #9
Becky
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Re: Is it just me or is it the WIG

Gold Bond mediated lotion helps alot. It is the hair growing in. Medicated lotions have that cooling effect that really helps.
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 02-10-2013, 04:12 PM   #10
linn65
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Posts: 371
Re: Is it just me or is it the WIG

If you get your ovaries removed you do not need to take tomax?
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 02-10-2013, 04:52 PM   #11
Becky
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Re: Is it just me or is it the WIG

I got my ovaries removed so I could get off Tamoxifen and go onto Arimidex (an AI). AIs can only be used in postmenopausal women and are proven to perform better. If your cancer is hormone positive, you need to go on something.
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 02-11-2013, 05:56 AM   #12
linn65
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Location: Attica, IN
Posts: 371
Re: Is it just me or is it the WIG

I am ER+ 30%, so I am on Tamoxifen for that....But if getting my ovaries removies I could be off of it that would be really nice. I started taking the Tamoxifen a little over a week ago and the hot flashes have came back like they never left like when I was doing TCH. However, I am hoping the Effexor will take care of those. Anymore, it is always like there is something not quite right...Do you ever feel like can't you just have a day with no complaints!! LOL
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 02-11-2013, 06:00 AM   #13
linn65
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Location: Attica, IN
Posts: 371
Re: Is it just me or is it the WIG

And Becky I have osteopenia too but that was before the cancer! I haven't even told any cancer doctors about that, but I think in the beginning I surely wrote on all the papers with questions I did I can not even remember. Anymore, I feel like if I can make it to work, now to the rads, and OMG the dreaded herceptin on Wednesday which NOW I hate the idea of even going and getting that done. I walk in that chemo room to get that and it is just flat out depressing to me.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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