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Old 01-16-2010, 01:49 PM   #1
bejuce
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Anticancer: A New Way of Life - Book & Talk

Hi everyone,

I had the privilege yesterday of attending a talk at UCSF by Dr. David Servan-Shrieber, author of the book entitled "Anticancer: A New Way of Life". Dr. Servan-Shrieber is a two-time brain tumor survivor (17 years out), co-founder of Doctor Without Borders in the US, a leading researcher in psychiatry, and an all-together amazing man, contributing so much to the anti-cancer cause.

I had gotten his book (in Portuguese) as a gift from my parents, when they came over last year from Brazil to help me during chemo. At the time when I read it (I got through most of it, but never finished it), I was somewhat overwhelmed and feeling guilty that I could have somehow controlled this and avoided getting cancer. The guilty feelings were made worse by comments and all the things that people say, like it must have been your diet, it must have been your stress, and on and on. I heard it all in the beginning and it was a little too much to handle. But I digress. I've come a long way and no longer think that getting cancer was my fault.

In any case, his book is full of supporting data and evidence for doing all the right things that we hear about - avoid sugar, change the omega-6s/omega-3s balance in your body and so on. Keeping in mind he's not an oncologist, but a psychiatrist and 17-year survivor of a brain tumor, here's a summary of some main points I was able to write down on my iPhone during his talk:

  • We all carry cancer cells in our body. Cancer is a natural part of our human biology. We're all exposed to cancer promoters in our lives - 1/4 of people will succumb to it, the other 3/4 will be protected from it by the body's own natural defenses. Our natural defenses must therefore be strenghtened for both prevention and recurrence avoidance purposes. Classical oncology: destroy tumor. Integrative oncology: also strengthen terrain.
  • Cancer promoters he talked about: sugar, trans fats and omega-6s/omega-3s balance favoring the omega-6s, chemical exposure, sedentary lifestyle, lack of social support, lack of sun exposure and vitamin D
  • He showed a study linking a high glycemic load to ER+/PR- breast cancers
  • Avoid soy oil (the one widely used in Brazil for cooking for example), meat that is not grass-fed (grass is very rich in omega-3s, if cows don't eat grass and eat corn they only get omega-6s), eggs today have 20 times more omega-6s than omega-3s so when eating non-organic eggs avoid the yolk and try to get farm-fresh, cage-free, organic eggs, avoid atrazine pesticides (prohibited in Europe but not in the US), air out dry cleaning to prevent the chemicals from being stuck inside the plastic bag and impregnating the clothes, avoid BPA of heated plastics, avoid pesticides and inseticides, avoid chemical cleaning products, avoid skin contact with aluminum
  • Vitamin D is crucial for everyone, he suggested 60 ng/ml for cancer patients (Lappe 2007 study - 1100 UI a day reduced risk in 78% in the studied population)
  • Studies that he mentioned validating the power of diet, exercise, and stress management: Ohio State study by Andersen (2008) showing a 68% reduction in mortality, Cancer maganize/journal (I'll look it up when I have a chance and post it here); Pierce (2007, Jnl of Clin Oncology) - exercise and dietary changes by themselves do not show an impact on survival, but when combined they do; Surth 2003 study published on Nature
  • The power of green tea: Zhang 2009 Int. J. Cancer study - 89% reduction in breast cancer rate with mushrooms (have to check the study to find out what kind) 2-3 times a week and green tea 3 cups a days
  • The anticancer plate: 80% vegetables (add turmeric powder, garlic, onions, thyme, oregano, marjoram, rosemary), the rest whole grains and small fish (sardines in olive oil are great), a fruit or some squares of 70% dark chocolate for dessert is ok (Yay, I'm a chocolohic and find it hard to give it up)
  • Stress by itself does not cause cancer (Lillberg 2001 Int. J. Cancer study with Finish women, Visintainer Seligman 1982 Science study on stress in rats)
  • Do not understimate the power of a good support network of friends and family (Kroenket US nurses study); hooray for this group!
  • Mobile phones and blood brain barrier study (Salford 2003) - especially for children under 12. When talking on a cell phone, use a blutooth device and headphones and keep it away from your head
  • In short, cancer=loss of equilibrium between the cancer promoters and the cancer inhibitors. Promoters: sugar, tobacco, alcohol, omega-6s, chemical pollution, sedentary lifestyle, powerlessness without social support, lack of sunshine. Inhibitors: anticancer phytochemicas, omega-3s, detox phytochemicals, physical activity, social support network, sunshine/vitamin D.
As you can see, it was a talk packed full of information (although it may not be all new to some of you). They said they'll make it available online at some point and I'll post the link here when they do. While I'm not following all of his guidelines by any means (for example, I just ate a bite of a chocolate chip waffle that I made for my kids and a sleepover friend today), I'm trying to adapt myself to them as soon as possible (had canned mackerel on olive oil with beets for dinner last night), I'll read his book again and recommend it for anyone who believes on an integrative approach to fighting the disease.

Have a great weekend everyone!

Marcia (bejuce)
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ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 01-16-2010, 02:08 PM   #2
Ellie F
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Re: Anticancer: A New Way of Life - Book & Talk

Hi Bejuce
I got his book last year after diagnosis. I try to follow his principles but often fall off the waggon!!
What I found very interesting was his section about mind-body connection and cancer.I feel our understanding of how this affects our biology is still very much in it's infancy but nonetheless a valid area for scientific research.I believe I suffered from chronic stress (mainly work related) for a number of years prior to diagnosis and I firmly believe this disrupted my ability to resist this disease.
Ellie
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Old 01-16-2010, 02:37 PM   #3
Jackie07
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Re: Anticancer: A New Way of Life - Book & Talk

Thanks, Marcia, for the wonderful information. The doctor has failed to mention the genetic links to cancer [just found on the Web that he did put the genetic link at 15% in his book.] But that's not what he wanted to emphasize here. I just wanted to add that as a two-time brain tumor survivor (20 years in June, 2010) myself, I'd like to caution about the guilt this type of theory might bring on people.

Now I am going to get a bite of the chocolate that I deserve...

Thanks again for sharing.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 01-16-2010 at 03:39 PM..
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Old 01-16-2010, 02:51 PM   #4
Jackie07
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Re: Anticancer: A New Way of Life - Book & Talk

Found this link and thought it might provide some balanced views on the subject:

http://cancer.suite101.com/article.c...itive_thinking


Another link related to the book:

http://www.nytimes.com/2008/06/01/he...ewanted=1&_r=1


Defenders of the book (including a long comment from our regular, G. D. Pawel):

http://www.honestmedicine.com/2008/1...anecdotal.html
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 07-27-2011 at 02:29 AM..
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Old 01-16-2010, 04:05 PM   #5
Cal-Gal
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Re: Anticancer: A New Way of Life - Book & Talk

Marcia-
WOW--
Thanks so much for this---really great--
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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Old 01-17-2010, 05:33 AM   #6
Mary Anne in TX
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Re: Anticancer: A New Way of Life - Book & Talk

Some days I just need a phone call, email, something reminder to take care of myself! Eating right, exercise, and good friends would be good for me no matter what. Now, just get this ol' chemo brain 65 year old to remember that! Thanks for sharing your experience Marcia! ma
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Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 01-18-2010, 09:34 AM   #7
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Re: Anticancer: A New Way of Life - Book & Talk

Hi Marcia,
Thank you for sharing. I hope that Dr. Servan-Shrieber makes his way to Connecticut. I would love to hear him speak. Back in June '08, the first piece of advice I got from several people whom I respect was to adopt a plant-based diet. I read the Anti-Cancer book (it's now my handy reference guide) and China Study (by Dr. Colin Campbell) which both have similar messages. It's nice to see others trying to follow this diet. I also started (this week) juicing; making a Green Drink of vegeteables (got the advice from another member of this Board). It takes more planning and time to cook but I think it's one more thing to do to keep this nasty Cancer at bay.

Kris...
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06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found


Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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Old 01-19-2010, 05:57 AM   #8
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Re: Anticancer: A New Way of Life - Book & Talk

Marcia,

Thanks for the article. I wish he would come to Georgia.

Amelia
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Old 01-19-2010, 10:24 AM   #9
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Re: Anticancer: A New Way of Life - Book & Talk

Thanks Marcia! It really helps to have these points re-emphasized every so often. It made me get up and take all my supplements and a cup of green tea right away!

hugs,
shobha
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DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
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Old 01-19-2010, 09:24 PM   #10
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Re: Anticancer: A New Way of Life - Book & Talk

I read it also when it came out. While it may not have all the answers as to why cancer, it certainly contains good advice to help patients do all they can to maximize their health and feel as healthy as they can, and cannot hurt. It is not a cure, but it does point the way to allowing one's body to heal and help as much as possible, even knowing as we all do there are no easy answers, and strikes me as a good compliment to traditional care.
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Old 01-19-2010, 09:59 PM   #11
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Re: Anticancer: A New Way of Life - Book & Talk

Great notes! Although...seems like that cell phone/blue tooth issue is a murky mess of conflicting studies. You know..what will they say tomorrow. I would think the safest bet would be to use an old fashioned wired earpiece and keep the cell phone some distance away. This one has a low radiation/high antioxidant rating: http://www.pomegranatephone.com/
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Old 01-19-2010, 11:23 PM   #12
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Re: Anticancer: A New Way of Life - Book & Talk

This is great! Thanks for posting, Marcia. I wanted to attend last week's talk but it was full by the time I RSVP'd. Hopefully our paths will cross one of these days!
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.

Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial

Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED

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Old 07-26-2011, 12:51 PM   #13
bejuce
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Re: Anticancer: A New Way of Life - Book & Talk

So very sad, just found out that David has passed on. His tumor had returned in May '10. I had no idea. Don't know what to think or say. Just feel like crying.
__________________
ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 07-26-2011, 01:11 PM   #14
Jackie07
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Re: Anticancer: A New Way of Life - Book & Talk

He has left a great legacy:

http://www.kpic.com/news/health/39853997.html

http://jaydixit.com/health/anticance...-full-version/

Wondered if his doctors had considered this new brain surgery approach:

http://www.barnesjewish.org/ip/summe...r-brain-tumors
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 07-27-2011 at 01:45 AM..
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Old 07-27-2011, 07:31 AM   #15
Ellie F
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Re: Anticancer: A New Way of Life - Book & Talk

Gosh Marcia, I hadn't heard this news. I am also really sad as I really believed he had conquered this terrible disease.Brain tumours are notoriously difficult to treat I believe so in the circumstances he achieved a great deal. RIP David.
Ellie
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Old 07-28-2011, 06:38 PM   #16
mmoons
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Re: Anticancer: A New Way of Life - Book & Talk

Marcia-

I thought of you when I read that sad news. You did such a beautiful job summarizing Dr. Servan-Shrieber's message.

Sending prayers out to his family and loved ones.

Maureen
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My loves

IDC & DCIS, HER2+++ Diagnosis: October 1, 2008
  • Tumor: 6.8 centimeters, never showed on mammograms
  • ER-/PR-
  • November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
  • Stage IIIc
  • Lapatinib Clinical Trial start: November, 2008
  • Surgery: May 5, 2009
  • Started Herceptin: May 19, 2009
  • Started Radiation (33 rounds): June 10, 2009
  • September 2009: Moved to Michigan to be closer to family
  • 12/09 - still on Herceptin until May 2010
  • August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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Old 07-28-2011, 07:09 PM   #17
Jackie07
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Re: Anticancer: A New Way of Life - Book & Talk

This one has a very nice picture of the doctor:

http://www.post-gazette.com/pg/11208...lthscience.xml
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 07-31-2011, 08:45 PM   #18
hutchibk
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Re: Anticancer: A New Way of Life - Book & Talk

Very sad news about the passing of Dr. Servan-Schrieber. http://www.nytimes.com/2011/07/30/wo...rvan.html?_r=1
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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