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Old 09-27-2012, 06:14 AM   #1
Laurel
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Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
Re: San Antonio Breast Cancer Symposium 12/4 - 12/8

Paula,

Her2Support has historically sent a contingent of members to the S.A. Breast Cancer conference. I encourage you to contact Sassy or Becky to throw your hat in the ring as being willing to represent us there. It is a fascinating experience, one you will never forget. It was there nearly 2 years ago now where I met and roomed with Brenda Hutchinson, met Chris, Paty, Sheila, Joan, Rhonda (Sassy), Steph, and Christine. You will never be the same again after attending and you will love those gals (or guys) even more deeply after having met them, laughed with them, confessed your fears and received theirs. The memory will bless you for years to come. I cannot encourage you enough to reach out to Rhonda (sassy) or Steph or Becky. I am not certain who is heading it up this year, but you are correct to raise the issue now.

It is painful for many of us to contemplate San Antonio without Brenda being there. She attended every year driving down from Austin. May she rally and be among the group again this year!
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Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 09-27-2012, 11:47 AM   #2
StephN
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Location: Misty woods of WA State
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Re: San Antonio Breast Cancer Symposium 12/4 - 12/8

Thanks for all the kudos, Laurel! You were pretty awesome yourself.

Now that the subject has been brought up, I have to report that it looks as though HER2support.org WILL NOT have a booth/representation this year. The deadlines for signing up have passed.

The decision is in the hands of the Druther daughters and they seem to have other priorities at this time.

Paula, if you (or anyone else) wish to go as an individual, you need to register as a Patient Advocate and get a hotel room ASAP. I have info on hotels, etc. if you email me.

I feel Joe would want us to continue going, but it is not my decision. If I could get out of my back/leg problem I would go, but I have no way to foresee how I will feel by that time.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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